Daslne: the challenge of developing a regional database for autism spectrum disorder

Abstract

The setting up of a database of children with autism spectrum disorder (ASD) in the north east of England is described. Best practice has been followed and included involving parents in planning and implementation at all stages, oversight by a multi-agency group, management by a multidisciplinary steering group, and independent administration of the database. From a potential listing of 986 children with ASD aged 3-12 years, the parents of 511 have so far responded (51.8%), although response rate varies considerably by local authority. Data checking has shown the information to be valid and case ascertainment broadly representative. The uses to which the data are being put and the continuing challenges are outlined.

Sistemas de ayuda entre iguales con poblaciones de niños del espectro autista en escuelas inclusivas. Una revisión sistemática

“…Con toda probabilidad, la predominancia de este género se debe a los datos de prevalencia indicados en los últimos estudios llevados a cabo, en los que aparecen cifras que refieren una proporción hombre-mujer de 4 a 1 (McConachie et al 2009). En lo que atañe a los participantes con DT, predominan aquellas intervenciones en las que un mínimo de 3 niños reciben pautas instructivas acerca del modo más apropiado de interaccionar con sus compañeros con TEA.…”

The impact on the family of the co‐existing conditions of children with autism spectrum disorder

“…By comparing the characteristics of children from families who consented to join Dasl n e and ASD‐UK with families who decided not to take part, Dasl n e has been shown to be representative of children with ASD living in the North East of England in terms of gender and Townsend deprivation index [McConachie et al, ]. ASD‐UK has been shown to be representative of children with ASD for the rest of the UK in terms of gender, diagnosis type, median year of birth, and Townsend deprivation index [Warnell et al, ; Wood et al, ].…”

Reducing Specific Phobia/Fear in Young People with Autism Spectrum Disorders (ASDs) through a Virtual Reality Environment Intervention

“…Recruitment was from the database of children with autism spectrum disorder living in the north east (Dasl n e) [29]–[30], held at Newcastle University (8 participants) and through a local Community Mental health team (1 participant); see Consort Flow Diagram (Figure 1). Recruitment from the database was via mail out to all young people within the age range who lived within the vicinity of the VRE.…”