Das Patientenrechtegesetz 2013

Hart, Dieter

doi:10.1007/s12312-019-0631-4

Cited by 2 publications

(5 citation statements)

References 2 publications

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“…There are examples of national programmes that postulate that patients are jointly responsible for their health and, consequently, for their well‐being, but physicians should also support patients' self‐responsibility 82–86 . Although the ‘people‐centredness’ approach has become particularly relevant in healthcare, 21,22 from the perspective of patients with psoriasis there are many unmet needs 87 …”

Section: Resultsmentioning

confidence: 99%

“…There are examples of national programmes that postulate that patients are jointly responsible for their health and, consequently, for their well-being, but physicians should also support patients' self-responsibility. [82][83][84][85][86] Although the 'people-centredness' approach has become particularly relevant in healthcare, 21,22 from the perspective of patients with psoriasis there are many unmet needs. 87 Overall, a comprehensive people-centred approach using well-being as a primary goal in psoriasis can complement current standard outcomes, which do not fully reflect the impact of this disease on patients' lives, since: (a) total clearance of the skin disease does not necessarily represent complete well-being; (b) half of psoriasis patients do not feel understood by the medical professional as to the actual mental impact of the disease 51 ; (c) well-being involves personal psychological, emotional and personality dimensions beyond curing the disease 88 ; and (d) current outcome measures have many limitations and do not adequately capture patients' needs and priorities 89 (Figure 1).…”

Section: Shortcomings Of Current Standard Measures Of Qol In Psoriasismentioning

confidence: 99%

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Implementing well‐being in the management of psoriasis: An expert recommendation

Sommer,

Mrowietz,

Gaarn Du Jardin

et al. 2023

Acad Dermatol Venereol

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Psoriasis causes detriment in a person's physical, mental and social health which impairs their quality of life (QoL). However, the current psoriasis management may not adequately address all relevant health domains.Since the goal of healthcare is to restore or maintain health, health outcomes should include all areas of the patient's overall health. Life‐satisfaction, QoL and patient wellbeing are essential to a comprehensive approach to the disease. With the inclusion of more people‐centred policies, care of patients with psoriasis should evolve toward a holistic and integrated assessment of the disease impact, including subjective measures of wellbeing in order to encompass all aspects of health.The main objective of this expert review is to give the concept of wellbeing a place as an entity within the holistic therapeutic approach for patients with psoriasis. Identifying and defining common goals beyond the skin with the patient and testing them throughout the course of treatment will benefit and enhance treatment success. We propose a series of recommendations for application in clinical practice, providing tangible clinical guidance for implementing wellbeing in the management of psoriasis. Among the recommendations are the need to initially listen to the patient, to know their level of empowerment or what they want to achieve, their preferences in decision making, the evaluation of not only the physical but also the emotional impact of the disease (wellbeing), the definition of the aspects that can generate a cumulative deterioration of the disease throughout life, and a continuous assessment of the patient's preferences with the opinion of the expert clinician and the integration of the knowledge of external clinical evidence.

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Section: Resultsmentioning

confidence: 99%

Section: Shortcomings Of Current Standard Measures Of Qol In Psoriasismentioning

confidence: 99%

Implementing well‐being in the management of psoriasis: An expert recommendation

Sommer,

Mrowietz,

Gaarn Du Jardin

et al. 2023

Acad Dermatol Venereol

View full text Add to dashboard Cite

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“…Wichtiger Bestandteil des PatRG war die Einführung des "Behandlungsvertrages" ( § § 630 a-h BGB). Hierbei handelt es sich im Wesentlichen um eine Kodifizierung der höchstrichterlichen Rechtsprechung der vorangegangenen Jahrzehnte [3]. Darüber hinaus regelt es neben den vertragstypischen Pflichten auch an- Fragen zu Patientenrechten richtig beantworten [7].…”

Section: Rechtlicher Hintergrundunclassified

“…Wichtiger Bestandteil des PatRG war die Einführung des „Behandlungsvertrages“ (§§ 630 a–h BGB). Hierbei handelt es sich im Wesentlichen um eine Kodifizierung der höchstrichterlichen Rechtsprechung der vorangegangenen Jahrzehnte [ 3 ]. Darüber hinaus regelt es neben den vertragstypischen Pflichten auch anwendbare Vorschriften, Mitwirkung der Vertragsparteien, Informationspflichten, Aufklärungspflichten, die Einwilligung der Patienten sowie die Dokumentation der Behandlung und die Beweislast bei Haftung für Behandlungs- und Aufklärungsfehler.…”

Section: Rechtlicher Hintergrundunclassified

“…Patienten hingegen suchten überwiegend nicht nach spezifischen Informationen zu diesem Thema und waren überwiegend mit der Behandlung zufrieden. Sie beklagten jedoch insbesondere das Informations- und Aufklärungsverhalten der Behandler und Leistungsträger [ 3 ]. Die Zahlen verdeutlichen jedoch, dass trotz Einführung des PatRG keine durchgreifende Verbesserung der patientenseitigen Kenntnisse eingetreten ist.…”

Section: Kommentarunclassified

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