Danish Registry of Childhood and Adolescent Diabetes

Abstract

AimThe aims of the Danish Registry of Childhood and Adolescent Diabetes (DanDiabKids) are to monitor and improve the quality of care for children and adolescents with diabetes in Denmark and to follow the incidence and prevalence of diabetes.Study populationThe study population consists of all children diagnosed with diabetes before the age of 15 years since 1996. Since 2015, every child followed up at a pediatric center (<18 years of age) will be included.Main variablesThe variables in the registry are the quality indicators, demographic variables, associated conditions, diabetes classification, family history of diabetes, growth parameters, self-care, and treatment variables. The quality indicators are selected based on international consensus of measures of good clinical practice. The indicators are metabolic control as assessed by HbA1c, blood pressure, albuminuria, retinopathy, neuropathy, number of severe hypoglycemic events, and hospitalization with ketoacidosis.Descriptive dataThe number of children diagnosed with diabetes is increasing with ∼3% per year mainly for type 1 diabetes (ie, 296 new patients <15 years of age were diagnosed in 2014). The disease management has changed dramatically with more children treated intensively with multiple daily injections, insulin pumps, and increased number of self-monitored blood glucose values per day. These initiatives have resulted in a significant improvement in HbA1c over the years and a decrease in the number of children experiencing severe hypoglycemia, diabetic nephropathy, and retinopathy.ConclusionThe systematic collection of data in DanDiabKids documents improved quality of care over the last 12 years, despite a substantial increase in the number of patients cared for by pediatric departments in Denmark, fulfilling the purpose of the registry.

A systematic review of non‐genetic predictors and genetic factors of glycated haemoglobin in type 1 diabetes one year after diagnosis

“…In the event of duplicate studies, only one was considered. Some studies investigated independent factors on the same large cohort and so have been included in the selection: the Danish registry of childhood and adolescent diabetes (DanDiabKids); the Diabetes‐Patienten‐Verlaufsdokumentation or diabetes‐patient‐documentation (DPV Germany‐Austria); the T1D exchange clinic network (T1DX); the Swedish childhood diabetes registry (SweDiabKids) As no review exists on the genetic factors of HbA1c in T1D patients and due to the low number of studies, a similar search strategy was used, with the additional following inclusion/exclusion criteria: (1) the term “genetic” listed in the key words; (2) no date limit for publications; and (3) a less restrictive age limit (childhood and early adulthood).…”

Exploring Variation in Glycemic Control Across and Within Eight High-Income Countries: A Cross-sectional Analysis of 64,666 Children and Adolescents With Type 1 Diabetes

“…Anonymized data from six large registries/ audits of children with T1D were used, representing eight countries: Germany and Austria from the Prospective Diabetes Follow-up Registry (DPV) (16), England and Wales from the National Pediatric Diabetes Audit (NPDA) (17), U.S. from the T1D Exchange (T1DX) (18), Sweden from the Swedish Pediatric Diabetes Quality Registry(SWEDIABKIDS) (8),Denmark from the Danish National Diabetes Registry (DanDiabKids) (19), and Norway from the Norwegian Childhood Diabetes Registry (NCDR) (20). All data sources were population-based registries or audits covering .80% of the national population of children with T1D, except for T1DX, which was a clinic-based registry (Table 1).…”

Rehabilitation in Germany 2004–2016 A Multicenter Analysis Over a Period of 13 Years in Children and Adolescents with Diabetes Mellitus

“…Worldwide the increase of diabetes in children and adolescents is mainly due to an increase in the number of patients with type 2 diabetes [4,16,17]. The present analysis revealed a small increase in the number of patients with type 2 diabetes.…”

“…The prevalence of diabetes in children and adolescents is increasing worldwide [5,16,17]. Rehabilitation strategies aim to optimize the quality of diabetes control, improve patients' ability for diabetes self-management and to increase understanding of acute and long-term complications.…”