Cystic Fibrosis and Transition to Adult Medical Care

Tuchman, Lisa; Schwartz, Lisa A.; Sawicki, Gregory S.; Britto, Maria T.

doi:10.1542/peds.2009-2791

Cited by 190 publications

(173 citation statements)

References 47 publications

Supporting

Mentioning

162

Contrasting

Unclassified

Order By: Relevance

“…7 Other authors have cited the lack of developmentally appropriate tools for assessing child and family readiness for transition as a barrier to transition. 8,9 The result is that many pediatricians, youth, and families have found a limited availability of adult providers with whom to arrange a smooth transition of care. [10][11][12][13][14] In addition, evidence indicates that many adult providers feel unprepared to care for young adults with complex chronic conditions.…”

Section: Introduction and Methodologymentioning

confidence: 99%

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Cooley¹,

Sagerman²,

et al. 2011

View full text Add to dashboard Cite

Optimal health care is achieved when each person, at every age, receives medically and developmentally appropriate care. The goal of a planned health care transition is to maximize lifelong functioning and well-being for all youth, including those who have special health care needs and those who do not. This process includes ensuring that high-quality, developmentally appropriate health care services are available in an uninterrupted manner as the person moves from adolescence to adulthood. A well-timed transition from child- to adult-oriented health care is specific to each person and ideally occurs between the ages of 18 and 21 years. Coordination of patient, family, and provider responsibilities enables youth to optimize their ability to assume adult roles and activities. This clinical report represents expert opinion and consensus on the practice-based implementation of transition for all youth beginning in early adolescence. It provides a structure for training and continuing education to further understanding of the nature of adolescent transition and how best to support it. Primary care physicians, nurse practitioners, and physician assistants, as well as medical subspecialists, are encouraged to adopt these materials and make this process specific to their settings and populations.

show abstract

Section: Introduction and Methodologymentioning

confidence: 99%

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Cooley¹,

Sagerman²,

et al. 2011

View full text Add to dashboard Cite

show abstract

“…470 Similarly, a 2003 monograph containing general information on CF in the workplace 471 did not specifically address healthcare professions. Guidelines for adult CF care programs in the United States, 472 for nurses participating in this care transition in Ireland, 473 and a recent study of the health outcomes of adults who transitioned from pediatric to adult care centers 474 did not discuss providing career counseling to individuals with CF who were interested in healthcare professions.…”

Section: Healthcare Personnel With Cfmentioning

confidence: 99%

Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update

Saiman

Siegel

LiPuma

et al. 2014

Infect. Control Hosp. Epidemiol.

344

382

View full text Add to dashboard Cite

The 2013 Infection Prevention and Control (IP&C) Guideline for Cystic Fibrosis (CF) was commissioned by the CF Foundation as an update of the 2003 Infection Control Guideline for CF. During the past decade, new knowledge and new challenges provided the following rationale to develop updated IP&C strategies for this unique population:1. The need to integrate relevant recommendations from evidence-based guidelines published since 2003 into IP&C practices for CF. These included guidelines from the Centers for Disease Control and Prevention (CDC)/Healthcare Infection Control Practices Advisory Committee (HICPAC), the World Health Organization (WHO), and key professional societies, including the Infectious Diseases Society of America (IDSA) and the Society for Healthcare Epidemiology of America (SHEA). During the past decade, new evidence has led to a renewed emphasis on source containment of potential pathogens and the role played by the contaminated healthcare environment in the transmission of infectious agents. Furthermore, an increased understanding of the importance of the application of implementation science, monitoring adherence, and feedback principles has been shown to increase the effectiveness of IP&C guideline recommendations.2. Experience with emerging pathogens in the non-CF population has expanded our understanding of droplet transmission of respiratory pathogens and can inform IP&C strategies for CF. These pathogens include severe acute respiratory syndrome coronavirus and the 2009 influenza A H1N1. Lessons learned about preventing transmission of methicillin-resistant Staphylococcus aureus (MRSA) and multidrug-resistant gram-negative pathogens in non-CF patient populations also can inform IP&C strategies for CF.

show abstract

“…58 An alternative to using longitudinal studies to evaluate the impact of transition on patient outcomes and assess overall improvement in the transition process is quality improvement initiatives and evaluation designs. [66][67][68][69] Quality improvement research could help identify best practices for transition, 66 factors within transition that affect outcomes positively or negatively, 52,56,57 and individual predictors for successful transition. 52,56 Funding streams generally focus on specific diseases, but the field of transition research would benefit from more generalized research that can identify effective methods across disease groups.…”

Section: Discussionmentioning

confidence: 99%

Transition Care for Children With Special Health Care Needs

et al. 2014

View full text Add to dashboard Cite

WHAT'S KNOWN ON THIS SUBJECT: More children with special health care needs are surviving to adulthood and entering the adult health care system. Effective transition of care can promote continuity of developmental and age-appropriate care for these individuals. WHAT THIS STUDY ADDS:Existing studies provide modest transition care support. Methods for providing transition care warrant attention, and future research needs are wide ranging. Consistent and accepted measures of transition success are critical to establishing an adequate body of literature to affect practice. abstractBACKGROUND: Approximately 750 000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS:We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS:We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS:The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.

show abstract

Cystic Fibrosis and Transition to Adult Medical Care

Cited by 190 publications

References 47 publications

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Infection Prevention and Control Guideline for Cystic Fibrosis: 2013 Update

Transition Care for Children With Special Health Care Needs

Contact Info

Product

Resources

About