Cygnus: a psychoeducational group for carers of people with a personality disorder

Sutherland, Ruth; Holland, Alice Ann; Prince, Sharon

doi:10.1332/239788220x15785278215080

Cited by 1 publication

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“…However, recently the implementation of caregivers' education programmes is now recommended in UK government guidance ( 28 ), and caregivers are given a right to support in accordance with the Care Act ( 29 ). Furthermore, training opportunities have become increasingly available for caregivers of people with specific mental health conditions, such as personality disorder ( 30 , 31 ) or schizophrenia ( 32 ). Despite this, access to forms of peer support and training are often denied to many caregivers by the cared-for person's fears ( 33 ).…”

Section: Discussionmentioning

confidence: 99%

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health

Fox

2022

Front. Psychiatry

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It is difficult to understand what it feels like for people with mental ill-health to be cared-for and supported by family members; this experience is often little-explored. Narratives about caring have been increasingly written alongside first-person accounts of recovery, however, there is a dearth of literature written to gain the perspective of being cared-for because of mental distress. Thus, using autoethnography, I present three critical incidents occurring at different points in my recovery to enable exploration of experiences of being cared-for. Firstly, a critical incident at the point of acute unwellness is introduced, secondly an incident during a consultation with a health professional is highlighted, and finally a moment of transition when embarking on an independent life with my husband-to-be is described. I use autoethnography to connect “the autobiographical and personal to the cultural, social, and political”. I consider how the identity of a carer is continually negotiated in a relationship with the service user in both the “private” and the “public” worlds during recovery. I reflect on how professionals can support both service users and carers in a triangle of care, by providing information and support, alongside promoting the development of independence and agency for the service user whilst in the caring relationship. Finally, I introduce a service model which promotes a family network approach to empower the service user, and highlight training programs on recovery that enable carers. I conclude by suggesting the potential of both approaches to support carers to promote the recovery of the service user.

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Section: Discussionmentioning

confidence: 99%

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health

Fox

2022

Front. Psychiatry

View full text Add to dashboard Cite

show abstract

Cygnus: a psychoeducational group for carers of people with a personality disorder

Cited by 1 publication

References 4 publications

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health

Experiences of Being Cared-For: The Perspective of an Expert-by-Experience in Mental Health

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