Cumulative life course impairment of alopecia areata

Burns, Lindsay H.; Mesinkovska, Natasha Atanaskova; Kranz, Dory; Ellison, Abby; Senna, Maryanne M.

doi:10.4103/ijt.ijt_99_20

Cited by 18 publications

(1 citation statement)

References 31 publications

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“…Welsh and Guy (2009) suggested that people with AA may experience a grieving process where coping strategies evolve and clear differences between gender-specific adaptations exist. Burns et al (2020) also considered life span, suggesting that cumulative life course impairment can be influenced by coping style. Barkauskaite and Serapinas (2020) discussed the therapeutic implications of psychological states experienced by people with AA, calling for greater consideration of the loss of perceived self and grieving processes.…”

Section: Coping With Alopecia Areatamentioning

confidence: 99%

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Huck,

Brickham,

Shelton

2024

European Journal of Health Psychology

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Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.

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Section: Coping With Alopecia Areatamentioning

confidence: 99%

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Huck,

Brickham,

Shelton

2024

European Journal of Health Psychology

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Overall and Racial and Ethnic Subgroup Prevalences of Alopecia Areata, Alopecia Totalis, and Alopecia Universalis

Mastacouris

Strunk

et al. 2023

JAMA Dermatol

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ImportancePrevalences of alopecia areata (AA), alopecia totalis (AT), and alopecia universalis (AU) are poorly established.ObjectiveTo estimate overall and subgroup prevalences of AA and its subtypes.Design, Setting, and ParticipantsThis cross-sectional study using electronic records comprising the Explorys database (Watson Health, IBM Corporation) included children, adolescents, and adults seeking healthcare across the 4 census regions in the US between January 1, 2019, and December 31, 2019. The statistical analysis was conducted between July 21, 2022, and December 22, 2022.Main Outcomes and MeasuresPrevalent cases of AA, AT, and AU.ResultsOf the 1 093 176 patients who met inclusion criteria, 1812 had at least 1 code for AA, 1216 female (67%) and 596 male (33%) patients. Overall age-and-sex standardized prevalences among adults and among children and adolescents were observed to be 0.18% and 0.10%, respectively. The age-standardized prevalence ratio in women to men was 1.32. Standardized prevalence was highest in those aged 30 to 39 (297 per 100 000; 95% CI, 263-335) and 40 to 49 (270 per 100 000; 95% CI, 240-303) years. The highest standardized prevalence was observed among Asian patients (414 per 100 000; 95% CI, 306-548), followed by patients reporting another race or multiple races (314 per 100 000; 95% CI, 266-368), Black (226 per 100 000; 95% CI, 199-255), and Hispanic/Latino (212 per 100 000; 95% CI, 129-328) patients. White patients had the lowest standardized prevalence (168 per 100 000; 95% CI, 157-179) among racial and ethnic subgroups. Relative to White patients, standardized prevalence ratios for Asian, Black, and Hispanic/Latino patients were 2.47 (95% CI, 2.17-2.81), 1.35 (95% CI, 1.26-1.44), and 1.26 (95% CI, 1.03-1.55), respectively. Cases of AT and AU comprised approximately 9% of patients diagnosed with AA.Conclusions and RelevanceThe findings of this cross-sectional study suggest that there is a significant burden of AA, AT, and AU in the US in which people of color, particularly Asian Americans, appear to be disproportionately affected.

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Principles of Measurement and Assessment in Dermatology

Finlay,

Ali

2024

Rook's Textbook of Dermatology

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This chapter describes why it is important to measure the severity of skin disease, what can and should be measured, who should do the measuring and how to interpret scores. The validation of measures is explained, including by electronic delivery. The concept of core outcomes is described, as are the clinical assessment tools used across the main inflammatory skin diseases. Many objective methods for measuring skin disease are being developed. The measurement of the impact of skin disease can be assessed by using a range of different quality of life measures, usually questionnaires, including disease specific, dermatology specific and generic measures that can also be used across medicine. Most measures are designed for use in adults, but there are separate questionnaires for use in specific age ranges such as children and adolescents. Skin disease can have a major secondary impact on the quality of life of partners and other family members: this impact is assessed by a parallel range of disease specific, dermatology specific or generic measures. There are also methods to measure the impact of skin disease on psychological health, on sexual functioning and on ability to work.

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Cumulative life course impairment of alopecia areata

Cited by 18 publications

References 31 publications

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Peer-Recommended Coping Strategies for Individuals Living With Alopecia Areata

Overall and Racial and Ethnic Subgroup Prevalences of Alopecia Areata, Alopecia Totalis, and Alopecia Universalis

Principles of Measurement and Assessment in Dermatology

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