Culture familiale de la drépanocytose et image du corps chez les enfants atteints

The Psychological Impact of Sickle Cell Disease on the Sick Child's Family

“…There is an absence of studies on the palliative care of sickle cell patients. This may shed light on the difficulty of caregivers in predicting the death of these patients despite the severity and spontaneity of the crises, even if these crises often return, for families, like the imminent death of the patient [27].…”

“…Children are often hospitalized following fits of pain or chronic anemia, which are the main symptom of sickle cell anemia, which remains a taboo disease in families [27] studied, through interviews and drawings, the impact of the family taboo concerning sickle cell anemia on the structure of the body image of sick children. There is a complex link between knowing about but not understanding their disease, and showing/saying something of their body, as they experience it.…”

“…Therefore, they do not give them space and time to say and express the way in which they experience their illness. This leads them to feel more isolated in the family and not supported by siblings [27].…”

Sickle Cell Anemia and Family Taboo: The Experience of a Sister of a Sick Child in Cameroon

“…Initially distributed in malaria-endemic areas like sub-Saharan Africa, migratory movements of populations have gradually changed its distribution around the world [4]. Consequently, this disease is present in practically all the countries having the populations originating in Africa and the regions around the Mediterranean [5].…”

“…Talking about sickle cell anemia is taboo among African and African families. As a result, children with this disease more often find it difficult to talk about their illness and to verbalize their experience [5].…”