Culturally-Relevant Online Cancer Education Modules Empower Alaska’s Community Health Aides/Practitioners to Disseminate Cancer Information and Reduce Cancer Risk

Cueva, Katie; Revels, Laura; Cueva, Melany; Lanier, Anne P.; Dignan, Mark; Viswanath, Kasisomayajula; Fung, Teresa T.; Geller, Alan C.

doi:10.1007/s13187-017-1217-4

Cited by 18 publications

(19 citation statements)

References 11 publications

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“…This article summarizes findings from completed cancer education evaluation surveys that assess learners’ backgrounds, likes, critiques, suggestions, changes in capacity to share cancer information, and intent to talk with patients about cancer. Additional findings related to learners’ intent to reduce their own cancer risk has been previously published in the Journal of Cancer Education [28]. The promising findings shared in this manuscript are self-reported changes in capacity and intent to change behavior.…”

Section: Discussionsupporting

confidence: 68%

Culturally-Relevant Online Education Improves Health Workers’ Capacity and Intent to Address Cancer

Cueva

Revels

et al. 2018

J Community Health

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To address a desire for timely, medically-accurate cancer education in rural Alaska, ten culturally-relevant online learning modules were developed, implemented, and evaluated with, and for, Alaska's Community Health Aides/Practitioners (CHA/Ps). The project was guided by the framework of Community-Based Participatory Action Research, honored Indigenous Ways of Knowing, and was informed by Empowerment Theory. Each learner was invited to complete an end-of-module evaluation survey. The survey asked about changes in intent to share cancer information with patients as a result of the module. In 1 year, August 1, 2016-July 31, 2017, 459 surveys were completed by 79 CHA/Ps. CHA/Ps reported that, because of the modules, they felt more knowledgeable about cancer, and more comfortable, confident, and prepared to talk about cancer with their patients, families, and communities. All learners shared that because of the modules, they intended to talk with their patients more often about cancer screenings, tobacco cessation, physical activity, or nutrition. These findings suggest that the application of this collaboratively developed, culturally-relevant, health promotion intervention has supported increased CHA/P capacity and intent to interact with patients about cancer. In the words of a learner: "Doing all these courses makes me a ton times more comfortable in talking about cancer with anyone. I didn't know too much about it at first but now I know a whole lot. Thank you".

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Section: Discussionsupporting

confidence: 68%

Culturally-Relevant Online Education Improves Health Workers’ Capacity and Intent to Address Cancer

Cueva

Revels

et al. 2018

J Community Health

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“…This project was guided by the principles of Community-Based Participatory Action Research (CBPAR) that honors Indigenous ways of knowing and was grounded in Empowerment Theory to provide culturally respectful education that empowers individuals and inspires wellness activities. This work was also conducted in alignment with the proposed framework for creating culturally relevant online cancer education developed from work with Alaska’s Community Health Aides and Community Health Practitioners (CHA/Ps) [ 15 ].…”

Section: Theoretical Frameworkmentioning

confidence: 99%

“…In alignment with the CBPAR principles to “promote co-learning and capacity building” and conduct work in “collaborative, equitable partnerships,” the project team sought to build relationships with community members and recruit a community advisory board to guide project development. Indigenous Ways of Knowing, while diverse and heterogeneous, often include incorporating “affective and subjective elements, and learning within the context of relationships, observations, and experiences” [ 15 , 23 , 24 ]. Consequently, this project sought both to seek out information and to build relationships with community members and potential collaborators in this work.…”

Section: Theoretical Frameworkmentioning

confidence: 99%

Learning Together: Sharing Circles in Rural Alaska on Cancer Education Priorities for Youth

2021

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Culturally relevant health promotion with youth is an opportunity to reduce health inequities in cancer. This manuscript describes sharing circles conducted with three communities in the Northwest Arctic region of Alaska. The circles were designed to begin understanding community priorities and lay the foundation to develop culturally relevant cancer education. The project was guided by the principles of Community-Based Participatory Action Research (CBPAR), honored Indigenous ways of knowing, and was grounded in Empowerment Theory. The project team facilitated 13 sharing circles in November 2019 in three communities in the Northwest Arctic. There were a total of 122 participants, including teachers/school staff (31%), community members (30%), high school students (23%), and health professionals (16%). The circles explored youth knowledge, perceptions, questions, concerns, and hopes for cancer information; community members’ desires for youth knowledge about cancer; and how teachers would like content to be formatted for effective inclusion in their classrooms. Common themes from the sharing circles included a desire for information on cancer prevention (all 13 sharing circles) and a need for information on cancer risk factors (12). In most sharing circles, participants shared that cancer information for youth should include stories like those of local people, cancer survivors, and role models (11), visuals (8), and local data and statistics (8). In addition, teachers and school staff in all communities wanted an online resource for teaching about cancer in their classrooms that had short videos/visuals with related lesson plans and activities. “ If I learn, I can reduce the chance of getting cancer in the future. ”

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“…The deleterious impact of biomedical hegemony has resulted in a silencing of alternative knowledge (Flesch, 2007;Hardon and Pool, 2016). A vast literature has emerged to Á conceptualize culturally appropriate care (e.g., see Ramsden, 1990;McCormick, 1996;Anderson et al, 2003;Wilson, 2008;Baba, 2013;Kirmayer, 2013;Crawford, n.d.), Á document existing models (Johnson, 2006;Mignone et al, 2007;Salaverry, 2010;Scaioli, 2010;Wetterhall et al, 2011;Kirmayer and Ban, 2013;Haynes et al, 2014;Carrie et al, 2015;Marsh et al, 2015;Browne et al, 2016;Menendez, 2016;Pelcastre-Villafuerte et al, 2017;Sandes et al, 2018), and Á evaluate the impact of innovations on outcomes (Mignone et al, 2007;Lavoie et al, 2010b;Mignone et al, 2011;Mignone and Gómez Vargas, 2015;Browne et al, 2016;Browne et al, 2018;Cueva et al, 2018aCueva et al, , 2018b.…”

Section: Equitable Access To Health Carementioning

confidence: 99%

Historical foundations and contemporary expressions of a right to health care in Circumpolar Indigenous contexts

Lavoie

Stoor

Rink

et al. 2021

Elementa: Science of the Anthropocene

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Although numerous comparative Indigenous health policy analyses exist in the literature, to date, little attention has been paid to comparative analyses of Circumpolar health policy and the impact these policies may have on Indigenous peoples’ rights to health. In this article, we ground our discussion of Indigenous peoples’ right to access culturally appropriate and responsive health care within the context of the United Nations Declaration on the Rights of Indigenous Peoples (UNDRIP). Under UNDRIP, signatory states are obligated to guarantee that Indigenous peoples have access to the same services accessible to all citizens without discrimination. Signatory states must also guarantee access to services that are grounded in Indigenous cultures, medicines, and practices and must address Indigenous peoples’ determinants of health at least to the same extent as their national counterparts. Our analysis finds that the implementation of this declaration varies across the Circumpolar north. The United States recognizes an obligation to provide health care for American Indian and Alaska Native people in exchange for the land that was taken from them. Other countries provide Indigenous citizens access to care in the same health care systems as other citizens. Intercultural models of care exist in Alaska and to some extent across the Canadian territories. However, aside from Sámi Norwegian National Advisory Unit on Mental Health and Substance Use in northern Norway, intercultural models are absent in Nordic countries and in Greenland. While Russia has not ratified UNDRIP, Russian policy guarantees access to health care to all citizens, although access is particularly limited in rural and remote environments, including the Russian Arctic. We conclude that Circumpolar nations should begin and/or expand commitments to culturally appropriate, self-determined, access to health care in Circumpolar contexts to reduce health inequities and adhere to obligations outlined in UNDRIP.

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Culturally-Relevant Online Cancer Education Modules Empower Alaska’s Community Health Aides/Practitioners to Disseminate Cancer Information and Reduce Cancer Risk

Cited by 18 publications

References 11 publications

Culturally-Relevant Online Education Improves Health Workers’ Capacity and Intent to Address Cancer

Culturally-Relevant Online Education Improves Health Workers’ Capacity and Intent to Address Cancer

Learning Together: Sharing Circles in Rural Alaska on Cancer Education Priorities for Youth

Historical foundations and contemporary expressions of a right to health care in Circumpolar Indigenous contexts

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