Culturally Adapting Evidence on Dementia Prevention for Ethnically Diverse Communities: Lessons Learnt from co-design

Brijnath, Bianca; Medel, Carolina Navarro; Antoniades, Josefine; Gilbert, Andrew Simon

doi:10.1080/07317115.2022.2101968

Cited by 9 publications

(12 citation statements)

References 39 publications

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“…The process was challenging with divergent perspectives on the interpreters’ role and different expectations regarding the training content. Our findings highlight that co-designed products are developed through negotiation and compromise as we have previously observed (Brijnath et al, 2023). Ultimately, co-designing training is the first of a three-phase project, and the effectiveness and impact of the MINDSET training package in improving interpreters’ communication is being further evaluated through a randomized control trial and implementation study.…”

Section: Discussionsupporting

confidence: 73%

The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments

et al. 2023

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There is a growing demand for interpreter-mediated cognitive assessments for dementia. However, most interpreters lack specialist knowledge of dementia and cognitive assessment tools. This can negatively affect the way instructions and responses are conveyed between clinicians and patients, undermining clinicians’ ability to accurately assess for cognitive impairment. This article reports on the co-design of an online dementia training package, MINDSET, which aims to address this gap. Two iterative online co-design workshops were conducted in October and November 2021, using a World Café approach. Sixteen clinicians, interpreters, and multilingual family carers of a person with dementia participated. Based on these workshops, training and assessment materials were developed and tested with 12 interpreters from April to June 2022. The training package comprises online modules: 1) Knowledge of Dementia and Australia’s Aged Care System, 2) Briefings and Introductions, 3) Interpreting Skills, 4) Interpreting Ethics, and 5) Cross-cultural Communication. The codesign process highlighted divergent perspectives between clinicians and interpreters on an interpreter’s role during a cognitive assessment, but it also facilitated negotiation and consensus building, which enriched the training content. The training is now developed and will be evaluated in a randomized control trial and subsequent implementation study.

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Section: Discussionsupporting

confidence: 73%

The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments

et al. 2023

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“…These points resonate with ongoing research examining dementia in ethnically diverse communities [3 ▪▪ ]. It suggests key ontological and epistemological departures are necessary from the current dementia science, which to date has not been particularly inclusive of diverse populations [59 ▪▪ ].…”

Section: Dementia Care and Digital Media: The Current State Of The Artmentioning

confidence: 70%

“…The imperative for action stems from longstanding barriers to inclusive care and the pressing need to address them. Ethnically diverse communities are less likely to receive messages related to dementia prevention, early diagnosis, referral to specialist care, be prescribed cholinesterase inhibitors, and participate in dementia clinical trials [3 ▪▪ ,4,5]. They also have few culturally appropriate home- and community-based services, insufficient language support, and encounter greater difficulties navigating complex health and aged care systems [6–9,10 ▪▪ ,11].…”

Section: The Case For Actionmentioning

confidence: 99%

“…Culturally adapting resources: This goes beyond mere translation of materials to incorporate changes to accommodate language, context, concepts, family, communication, content, and cultural norms and practices [60]. Linguistic adaptation requires consideration of the education levels, linguistic and intergenerational preferences of community members; for example, younger Greeks living in Australia may prefer to receive information in English rather than in Greek [3 ▪▪ ].…”

Section: Dementia Care and Digital Media: The Current State Of The Artmentioning

confidence: 99%

“…Interventions that tackle lifestyle and/or care factors such as food or leisure activities must account for how variables such as migration, gender, culture, history, and transnationalism affect different communities’ attitudes to dementia and its care. This does not mean that it is not possible to co-design and adapt across multiple languages and cultures; rather, by doing so, researchers and providers should be attuned to common themes and points of difference across different groups as well as the risks of ‘flattening out’ key aspects of cultural specificity (e.g., co-designing a single animation on dementia prevention for different cultural groups rather than adapting it to each one) [3 ▪▪ ].…”

Section: Dementia Care and Digital Media: The Current State Of The Artmentioning

confidence: 99%

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Inclusive dementia care for ethnically diverse families

Brijnath

Antoniades

Cavuoto

2023

Current Opinion in Psychiatry

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Purpose of review With population ageing and global migration, rates of dementia are set to rapidly increase in ethnically diverse populations. This narrative review examines recent evidence on what constitutes culturally appropriate models of care. Recent Findings Barriers to inclusive care continue to prevail, amplifying dementia disparities in ethnically diverse communities. Cultural models that can address these include ensuring health and aged care staff are culturally competent, language supports are available, and cultural practices are integrated into daily care routines. Fundamentally, systems must be reformed to ensure they meet the needs of diverse end-users. More inclusive and widespread ethno-specific services are needed, and governments need to be mindful of demographic transitions in their populations and plan accordingly to meet future demand. Digital media and new technologies offer promising new ways to deliver culturally appropriate care to ethnically diverse groups, but its full potential is yet to be realised. Summary Persistent dementia disparities in ethnically diverse communities can be overcome by operationalising cultural models of care, leveraging the promise of digital media, and systems redesign.

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Examining Brain and Mental Health Inequities from a Global Lens: Insights and Opportunities

Iyengar

Azar

Gallagher‐Thompson

2023

Clinical Gerontologist

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Culturally Adapting Evidence on Dementia Prevention for Ethnically Diverse Communities: Lessons Learnt from co-design

Cited by 9 publications

References 39 publications

The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments

The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments

Inclusive dementia care for ethnically diverse families

Examining Brain and Mental Health Inequities from a Global Lens: Insights and Opportunities

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