Cultural Adaptations of Evidence‐based Home‐visitation Models in Tribal Communities

Hiratsuka, Vanessa Y.; Parker, Myra; Sanchez, Jenae; Riley, Rebecca; Heath, Debra; Chomo, Julianna C.; Beltangady, Moushumi; Sarche, Michelle

doi:10.1002/imhj.21708

Cited by 20 publications

(67 citation statements)

References 30 publications

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“…We were able to conduct a particularly in-depth exploration of our efforts to balance community needs with scientific rigor. Our work resembles what Hiratsuka et al (2018) found in their review of adaptations made to four home visiting models within tribal communities. In both cases, our work and Hiratsuka et al, deep structural adaptations included community engagement and hiring of community members to deliver the program as well as the development of new handouts, content or activities, and changes to delivery and training.…”

Section: Lessons Learnedsupporting

confidence: 70%

“…We frame our adaptations using the approach proposed by Resnicow et al (1999) and recently applied to evaluations of home visiting programs adapted to tribal settings in the MIECHV program by Hiratsuka et al (2018). Hiratsuka et al reviewed four home visiting programs adapted within tribal communities.…”

Section: Adapting Home Visiting Programs Within American Indian Commumentioning

confidence: 99%

“…At each site, two groups of staff were hired-one to conduct research activities and the other to implement PFR home visiting services. All staff members were American Indian tribal members, a deep structure adaptation (Hiratsuka et al, 2018). At each site, university research staff and tribal members collaborated to create job postings for local positions and to determine where and how to advertise for applicants.…”

Section: Study Settings Hiring and Namingmentioning

confidence: 99%

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Promoting First Relationships®: Implementing a Home Visiting Research Program in Two American Indian Communities

et al. 2020

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Background Few, if any, home visiting programs for children under the age of three have been culturally adapted for American Indian reservation settings. We recently adapted one such program: Promoting First Relationships®. Objectives To culturally adapt Promoting First Relationships® while maintaining program fidelity, we used a community-based participatory approach to elicit input from two American Indian partners. Methods University-based researchers, reservation-based Native project staff, and Native tribal liaisons conducted collaborative meetings, conference calls, and focus groups to adapt Promoting First Relationships® to reflect local community needs and values. Lessons Learned Working closely with onsite Native project staff, being flexible and open to suggestions, and attending to the logistical needs of the community are imperative to developing and implementing adaptations. Conclusions Several adaptations were made based on the collaboration between researchers and Native project staff. Collaboration is critical for adapting programs so they can be tested in ways that respect both American Indian culture and research needs.

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Section: Lessons Learnedsupporting

confidence: 70%

Section: Adapting Home Visiting Programs Within American Indian Commumentioning

confidence: 99%

Section: Study Settings Hiring and Namingmentioning

confidence: 99%

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Promoting First Relationships®: Implementing a Home Visiting Research Program in Two American Indian Communities

et al. 2020

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“…SCF has extensive experience in tailoring clinical and research processes, and the language used to describe them, to the needs and preferences of its patient population ( Driscoll et al, 2013 ; Starks et al, 2015 ; Hiratsuka et al, 2017a , b , 2018c , 2019a , b ; Muller et al, 2017 ; Dillard et al, 2018 ). For example, considerable organizational resources are devoted to training clinicians and staffin the use of a “shared language” that encourages rapport among employees and between providers and patients and was referred to by participants ( Eby, 2007 ; Gottlieb, 2013 ).…”

Section: Discussionmentioning

confidence: 99%

“…These standards echo the principle-based approach to communicating about precision medicine described by participants, and suggests that patients, providers, and leaders have internalized these concepts and come to expect their application in patient engagement. In addition, major research streams at SCF concern the exploration of community preferences regarding dissemination of research results and involve tailoring interventions developed for use in other populations to meet the needs, expectations, and preferences of patients ( Starks et al, 2015 ; Hiratsuka et al, 2017a , 2018a , b , c , 2019b ; Muller et al, 2017 ; Beans et al, 2018 ; Shane et al, 2018 ). Any effort to communicate about precision medicine at SCF will benefit from this organizational commitment to and competency in tailoring clinical and research practices to patient needs.…”

Section: Discussionmentioning

confidence: 99%

Community Perspectives on Communicating About Precision Medicine in an Alaska Native Tribal Health Care System

et al. 2020

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Background: Precision medicine seeks to better tailor medical care to the needs of individual patients, but there are challenges involved in communicating to patients, health care providers, and health system leaders about this novel and complex approach to research and clinical care. These challenges may be exacerbated for Alaska Native and American Indian (ANAI) people, whose experiences of unethical research practices have left some ANAI communities hesitant to engage in research that involves extensive data-sharing and diminished control over the terms of data management and who may have distinct, culturally-informed communication needs and preferences. There is need for communication research to support Tribal health organizations and ANAI people as they consider implementation of and participation in precision medicine. To address that need, this study characterizes the informational needs and communication preferences of patients, providers, and leaders at an Alaska Native Tribal health organization. Methods: We conducted 46 individual, semi-structured interviews to explore perspectives on precision medicine and related communication needs among patients, providers, and leaders of a Tribal health organization. Analysis involved teambased coding to identify a priori and emergent themes, followed by identification and recoding of content relevant to precision medicine informational needs and communication preferences. Results: Patients, providers, and leaders were described as both sources and recipients of information about precision medicine. Information deemed essential for making decisions about whether to participate in or implement a precision medicine program included information about the clinical and research applications of precision medicine, benefits and risks, health system costs and impacts, and data management practices. Preferred communication channels included digital and non-digital informational materials, as well as in-person learning opportunities for individuals and groups. Participants also describe contextual factors and barriers that influenced the acceptability and effectiveness of approaches to health communication. Woodbury et al. Alaska Native Precision Medicine Communication Conclusion: Results can inform approaches to communicating information about precision medicine to stakeholders within Tribal and other health care systems considering implementation of precision medicine in clinical or research contexts.

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Contextual Issues for Implementation and Evaluation of Home‐visitation Programs for American Indian and Alaska Native Communities: An Introduction to the Tribal Maternal, Infant, and Early Childhood Home Visiting Program

Novins

Meyer

Beltangady

2018

Infant Mental Health Journal

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Home-visiting programs have become a key component of evidence-based services for pregnant women, new mothers, their infants, and their families. When Congress authorized the Maternal Infant and Early Childhood Home Visiting Program (MIECHV) in 2010, it set aside 3% of the $1.5 billion in funding to support home-visiting programs operated by tribes, Tribal MIECHV programs have been funded in 14 states and have served over 3,100 families, providing nearly 55,000 home visits to families at risk for poor child, maternal, and family outcomes. In this Introduction to the Special Issue of the Infant Mental Health Journal on the Tribal MIECHV initiative, we provide some key contexts of the work of the Tribal MIECHV grantees as well as an overview of the issues covered in the other articles.

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Cultural Adaptations of Evidence‐based Home‐visitation Models in Tribal Communities

Cited by 20 publications

References 30 publications

Promoting First Relationships®: Implementing a Home Visiting Research Program in Two American Indian Communities

Promoting First Relationships®: Implementing a Home Visiting Research Program in Two American Indian Communities

Community Perspectives on Communicating About Precision Medicine in an Alaska Native Tribal Health Care System

Contextual Issues for Implementation and Evaluation of Home‐visitation Programs for American Indian and Alaska Native Communities: An Introduction to the Tribal Maternal, Infant, and Early Childhood Home Visiting Program

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