Cultural adaptation of the Adolescent Pediatric Pain Tool in Turkish children with cancer

Gerçeker, Gülçin Özalp; Bılsın, Elif; Binay, Şeyda; Yılmaz, Hatice Bal; Jacob, Eufemia

doi:10.1016/j.ejon.2018.02.008

Cited by 6 publications

(11 citation statements)

References 21 publications

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“…Most studies also described hypothesis testing properties, convergent and divergent validity. Although reliability measures were often reported, when referencing dichotomous, nominal or ordinal scores, a number of studies failed to demonstrate evidence of kappa calculations and weighting schemes, 43 while some only reported the Pearson or Spearman correlation coefficient without any kappa calculation. 40,65,71 This significantly discounted the strength of reported evidence.…”

Section: Resultsmentioning

confidence: 99%

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Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice

et al. 2021

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Background: Assessing pain in infants, children and young people with life-limiting conditions remains a challenge due to diverse patient conditions, types of pain and often a reduced ability or inability of patients to communicate verbally. Aim: To systematically identify pain assessment tools that are currently used in paediatric palliative care and examine their psychometric properties and feasibility and make recommendations for clinical practice. Design: A systematic literature review and evaluation of psychometric properties of pain assessment tools of original peer-reviewed research published from inception of data sources to April 2021. Data sources: PsycINFO via ProQuest, Web of Science Core, Medline via Ovid, EMBASE, BIOSIS and CINAHL were searched from inception to April 2021. Hand searches of reference lists of included studies and relevant reviews were performed. Results: From 1168 articles identified, 201 papers were selected for full-text assessment. Thirty-four articles met the eligibility criteria and we examined the psychometric properties of 22 pain assessment tools. Overall, the Faces Pain Scale-Revised (FPS-R) had high cross-cultural validity, construct validity (hypothesis testing) and responsiveness; while the Faces, Legs, Activity, Cry and Consolability (FLACC) scale and Paediatric Pain Profile (PPP) had high internal consistency, criterion validity, reliability and responsiveness. The number of studies per psychometric property of each pain assessment tool was limited and the methodological quality of included studies was low. Conclusion: Balancing aspects of feasibility and psychometric properties, the FPS-R is recommended for self-assessment, and the FLACC scale/FLACC Revised and PPP are the recommended observational tools in their respective age groups.

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Section: Resultsmentioning

confidence: 99%

“…number of studies failed to demonstrate evidence of kappa calculations and weighting schemes, 43 while some only reported the Pearson or Spearman correlation coefficient without any kappa calculation. 40,65,71 This significantly discounted the strength of reported evidence.…”

Section: Table 3 (Continued)mentioning

confidence: 99%

Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice

et al. 2021

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“…66 Other studies documented the quality of life of children undergoing cancer treatment, 67 - 70 of parents and caregivers, 18 , 71 and of child survivors. 72 , 73 Many more studies examined the psychometric properties of various disease-specific instruments, particularly in Turkey, such as the KINDL scale, 74 Quality of Life and FAMCARE scales among caregivers, 75 Children's International Mucositis Evaluation Scale, 76 or the Adolescent Pediatric Pain Tool 77 ; and Jordan, including the Pediatric Quality of Life Inventory (PedsQL) Generic Core Scale, PedsQL Family Impact Scale, and the PedsQL Healthcare Satisfaction Hematology/Oncology Scale. 78 …”

Section: Resultsmentioning

confidence: 99%

Economics of Pediatric Cancer in Four Eastern Mediterranean Countries: A Comparative Assessment

Gheorghe

Chalkidou

Shamieh

et al. 2020

JCO Global Oncology

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PURPOSE Cancer is a leading cause of death among children in the Eastern Mediterranean region, where conflict and economic downturn place additional burden on the health sector. In this context, using economic evidence to inform policy decisions is crucial for maximizing health outcomes from available resources. We summarized the available evidence on the economics of pediatric cancer in Jordan, Lebanon, the occupied Palestinian territory, and Turkey. METHODS A scoping review was performed of seven academic databases and gray literature pertaining to pediatric cancer in the four jurisdictions, published between January 1, 2010, and July 17, 2019. Information was extracted and organized using an analytical framework that synthesizes economic information on four dimensions: the context of the health system, the economics of health care inputs, the economics of service provision, and the economic consequences of disease. RESULTS Most of the economic evidence available across the four jurisdictions pertains to the availability of health care inputs (ie, drugs, human resources, cancer registration data, and treatment protocols) and individual-level outcomes (either clinical or health-related quality of life). We identified little evidence on the efficiency or quality of health care inputs and of pediatric cancer services. Moreover, we identified no studies examining the cost-effectiveness of any intervention, program, or treatment protocol. Evidence on the economic consequences of pediatric cancer on families and the society at large was predominantly qualitative. CONCLUSION The available economic evidence on pediatric cancer care in the four countries is limited to resource availability and, to an extent, patient outcomes, with a substantial gap in information on drug quality, service provision efficiency, and cost-effectiveness. Links between researchers and policymakers must be strengthened if pediatric cancer spending decisions, and, ultimately, treatment outcomes, are to improve.

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“…A confiabilidade de um instrumento é uma das etapas do processo de validação de um instrumento de medida (HAIR et al, 2014), porém para que um instrumento seja efetivamente válido, ele deve ser submetido à avaliação de suas propriedades psicométricas. No estudo de Gerçeker et al (2018), não foi realizado nenhum tipo de análise fatorial. Alguns pesquisadores, quando um instrumento já tem uma estrutura dimensional definida, optam pela condução apenas da Análise Fatorial Confirmatória (HAIR et al, 2014), porém essa análise também não foi observada nesse estudo.…”

Section: Caracterização Dos Participantesunclassified

“…No entanto, no processo de tradução do instrumento, observou-se que itens apresentavam grafias e significados diferentes, culminando com a opção de conduzir dois estudos distintos. Tal experiência reforça a importância de validar os instrumentos para cada contexto cultural.Por fim, no ano de 2018,Gerçeker et al (2018) conduziu um estudo para verificar a validade e a confiabilidade da versão turca do APPT. Em um primeiro momento, 10 crianças e adolescentes com câncer, de 7 a 18 anos, selecionaram, através do método Q-sort, as palavras que eram conhecidas e utilizadas para descrever sua dor.…”

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Validação do Adolescent Pediatric Pain Tool (APPT) para crianças e adolescentes brasileiros com câncer

Bortoli¹

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Dedico este trabalho àqueles que foram essenciais na minha vida: aos meus pais, Welson e Cecília, que me deram a vida e sempre me incentivaram em persistir com os estudos; aos meus irmãos, Carolina e Marcelo, que sempre estiveram ao meu lado; ao meu marido, João Eduardo, que sempre me apoiou em seguir com os estudos e, principalmente, à minha filha, Isabela, que surgiu na minha vida durante o doutorado e deu mais sentido a ela, além de imprimir motivação para superar as dificuldades e seguir em frente. Amo vocês! AGRADECIMENTOS À Profa. Dra. Lucila Castanheira Nascimento, pela parceria durante todos esses anos, por estar ao meu lado durante toda a minha trajetória de formação profissional e acadêmica, pela compreensão nas minhas ausências, decorrente de minha vida profissional e pessoal, e pela confiança que depositou em mim para a condução desse trabalho. Ao Hospital do Amor de Barretos, em especial ao Dr. Luiz Fernando Lopes e ao Dr. Robson de Castro Coelho, pelo acolhimento e parceria para a realização deste trabalho, e à Glaucia Regina Costa Murra, pelo apoio na viabilização da etapa de coleta de dados. Ao Prof. Dr. Flávio Rebustini, pela parceria, apoio e valiosas contribuições metodológicas e analíticas durante o desenvolvimento desta pesquisa. To Dr. Eufemia Jacob, for the partnership, great discussions, and the availability to clarify any doubt about the APPT, since the development of my Master's dissertation. Às Profas. Dras. Rosana Aparecida Spadoti Dantas e Cláudia Benedita dos Santos, pelas contribuições no exame de qualificação. À amiga Carolina Spinelli Alvarenga, que me apoiou na etapa de coleta de dados em Barretos, tornando esse trabalho possível. Carol, serei eternamente grata por tudo o que fez! À amiga Maria José Menossi, por estar presente em todos os momentos da minha carreira profissional e da minha vida pessoal. À Ana Carolina Andrade Biaggi Leite e Willyane Andrade Alvarenga, que me também me apoiaram em várias etapas do desenvolvimento desta pesquisa. Vocês são parte essencial desse trabalho! Obrigada pela parceria e amizade. À amiga Fernanda Machado Rodrigues Silva, que esteve junto comigo na caminhada do doutorado e da maternidade, e juntas pudemos compartilhar angústias e ansiedades e nos ajudar nessa fase de nossas vidas. Aos enfermeiros da Enfermaria de Pediatria do HC Criança, que permitiram maior flexibilidade na minha escala de trabalho, para que eu pudesse realizar este estudo. Às amigas Nathalia Maria Padilha, Inara Lacativa Bagatini e Michelle Ogrizio Daguano, que sempre estiveram comigo, em todos os momentos da minha vida. "Existem muitas hipóteses em ciência que estão erradas. Isso é perfeitamente aceitável, elas são a abertura para achar as que estão certas". Carl Sagan RESUMO DE BORTOLI, Paula Saud. Validação do Adolescent Pediatric Pain Tool (APPT) para crianças e adolescentes brasileiros com câncer. 2019. 126f. Tese (Doutorado)

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Cultural adaptation of the Adolescent Pediatric Pain Tool in Turkish children with cancer

Cited by 6 publications

References 21 publications

Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice

Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice

Economics of Pediatric Cancer in Four Eastern Mediterranean Countries: A Comparative Assessment

Validação do Adolescent Pediatric Pain Tool (APPT) para crianças e adolescentes brasileiros com câncer

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