Cross-sectional investigation of quality of life determinants among children with tic disorders: The roles of family environmental and clinical factors

Liu, Fang; Wang, Gaohua; Yao, Baozhen; Ye, Jingping; Wang, Junling; Wang, Huaqian; Liu, Hong

doi:10.1016/j.heliyon.2023.e13228

Heliyon

2023

DOI: 10.1016/j.heliyon.2023.e13228

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Cross-sectional investigation of quality of life determinants among children with tic disorders: The roles of family environmental and clinical factors

Fang Liu¹,

Gaohua Wang²,

Baozhen Yao³

et al.

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Cited by 3 publications

References 25 publications

(45 reference statements)

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Factors linked to prognosis in children with provisional tic disorder: a prospective cohort study

Liu,

Fan,

Yao

et al. 2024

Eur J Pediatr

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Factors linked to prognosis in children with provisional tic disorder: a prospective cohort study

Liu,

Fan,

Yao

et al. 2024

Eur J Pediatr

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Reframing stigma in Tourette syndrome: an updated scoping review

Pring,

Malli,

Hardy

et al. 2023

Eur Child Adolesc Psychiatry

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Persistent tic disorders (PTD) such as Tourette’s syndrome (TS) are common childhood-onset neurodevelopmental disorders. Stigmatization of individuals with these disorders remains an ongoing problem. The purpose of this scoping review is to serve as an updated review of the research regarding stigmatization in youth with PTD since the publication of the original systematic review about this topic in 2016. The electronic databases Embase, Web of Science, PubMed, PsycINFO, and CINAHL were searched. Of the 4751 initial articles screened after removing duplications, 47 studies met the inclusion criteria. The studies were examined under the social–ecological stigmatization model, which helps categorize stigmatization into individual, interpersonal, community, and structural levels and serves as a broader definition of stigmatization than the previous systematic review. On the individual level, youth with PTD had lower self-esteem than peers, often leading to fear of future stigmatization, avoidant behaviors, and self-stigmatization. They also experienced higher rates of bullying and other forms of abuse than peers at the interpersonal level. At the community level, youth with PTD faced discriminatory environments in school and work and limited availability of community services and healthcare access. At the structural level, knowledge about PTD was limited in the general population, often about the limited portrayals of PTD in the media. We hope that the broader scope of this review serves to help inform future efforts to decrease the stigmatization faced by this group.

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Predictors of Health-Related Quality of Life in Neurodivergent Children: A Systematic Review

Mahjoob,

Paul,

Carbone

et al. 2023

Clin Child Fam Psychol Rev

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Health-related Quality of Life (HRQoL) is a multi-faceted construct influenced by a myriad of environmental, demographic, and individual characteristics. Our understanding of these influencers remains highly limited in neurodevelopmental conditions. Existing research in this area is sparse, highly siloed by diagnosis labels, and focused on symptoms. This review synthesized the evidence in this area using a multi-dimensional model of HRQoL and trans-diagnostically across neurodevelopmental conditions. The systematic review, conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analysis Checklist, was completed in June 2023 using Medline, PsycInfo, Embase, PubMed, and Cochrane Library. Our search revealed 78 studies that examined predictors of HRQoL in neurodevelopmental conditions. The majority of these studies focused on autism and ADHD with a paucity of literature in other conditions. Cross-diagnosis investigations were limited despite the fact that many of the examined predictors transcend diagnostic boundaries. Significant gaps were revealed in domains of biology/physiology, functioning, health perceptions, and environmental factors. Very preliminary evidence suggested potentially shared predictors of HRQoL across conditions including positive associations between HRQoL and adaptive functioning, male sex/gender, positive self-perception, physical activity, resources, and positive family context, and negative associations with diagnostic features and mental health symptoms. Studies of transdiagnostic predictors across neurodevelopmental conditions are critically needed to enable care models that address shared needs of neurodivergent individuals beyond diagnostic boundaries. Further understanding of HRQoL from the perspective of neurodivergent communities is a critical area of future work.

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Cross-sectional investigation of quality of life determinants among children with tic disorders: The roles of family environmental and clinical factors

Cited by 3 publications

References 25 publications

Factors linked to prognosis in children with provisional tic disorder: a prospective cohort study

Factors linked to prognosis in children with provisional tic disorder: a prospective cohort study

Reframing stigma in Tourette syndrome: an updated scoping review

Predictors of Health-Related Quality of Life in Neurodivergent Children: A Systematic Review

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