Cross-cultural adaptation of the Malay version of the child self-report Health-related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) in Malaysia

Wo, Su Woan; Lai, Pauline Siew Mei; Ong, Lai Choo; Low, Wah Yun; Lim, Kheng Seang; Tay, Chee Geap; Wong, Chin Chin; Ranjini, Sivanesom

doi:10.1016/j.yebeh.2015.06.023

Cited by 4 publications

(3 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The subsequent layers consist of extended family, other friends and acquaintances. For CWE, due to the isolation and stigma they may face, it is not surprising most had a small circle, but as the number grew there was a benefit to their QoL as has been shown in other studies [10].…”

Section: Cwe Having More Friendsmentioning

confidence: 55%

“…There have been very few studies about QoL in CWE in sub-Saharan Africa [7,8] including in Kenya where there are mostly qualitative studies and focusing on stigma [9]. The CHEQOL-25 tool has been used in other developing countries, where cross-cultural transferability, testretest reliability, and internal consistency have all been well demonstrated [10]. There is no published data on the use of the tool in sub-Saharan Africa.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Determining the quality of life of children living with epilepsy in Kenya—A cross-sectional study using the CHEQOL-25 tool

Hussain

Orwa

Sokhi

et al. 2020

Seizure

View full text Add to dashboard Cite

Epilepsy is a chronic neurological disorder that is often diagnosed in childhood and may negatively impact physical, social and psychological abilities. Most tools measuring quality of life (QoL) rely on parent/ caregiver feedback rather than the child's perspective. CHEQOL-25 is a QoL tool that documents both child and caregiver perspectives across five domains. The primary objective was to determine the QoL of children living with epilepsy (CWE) using the CHEQOL-25 tool in a Kenyan paediatric population. Other objectives were to describe the correlation between the caregivers' and children's' perspectives and describe factors affecting QoL. Method: We conducted a cross-sectional study across four sites in Nairobi. Quantitative data was collected using a self-administered CHEQOL-25 questionnaire. Caregivers and their children aged 7-15 years attending neurology clinics participated in the study. We used Kappa statistics to compare child and caregiver responses. Results: A total of 354 participants were interviewed (177 children and 177 caregivers). A good QoL was reported by 60.5 % of children with a similar caregiver perception of 56.5 %. Caregivers with little education and male caregivers were associated with a poor QoL (p = 0.01); other socio-demographic factors had little impact on the measured QoL of CWE. Parent and child questionnaires correlated well in terms of response in terms of interpersonal (p = 0.001) and intrapersonal (p = 0.004) domains. Conclusion: This study demonstrated that a good quality of life was reported by the majority of CWE and their caregivers, although some factors such as a male caregiver gender and lower level of education were associated with poor QoL.

show abstract

Section: Cwe Having More Friendsmentioning

confidence: 55%

Section: Introductionmentioning

confidence: 99%

Determining the quality of life of children living with epilepsy in Kenya—A cross-sectional study using the CHEQOL-25 tool

Hussain

Orwa

Sokhi

et al. 2020

Seizure

View full text Add to dashboard Cite

show abstract

“…The QoL of children with epilepsy after surgery was assessed using the CHEQOL-25 scale, a QoL assessment tool proposed by Gabriel Ronen, which evaluated five aspects of epilepsy: “Present Concerns,” “Interpersonal Emotion,” “Secrecy,” “Normality,” and “Future Worries.” Subjects responded to five questions for each aspect and a total percentage score for each item was calculated, with higher scores representing a better QoL ( 17 ). The CHEQOL-25 scale is being used in children with epilepsy postoperatively in some developing countries in Southeast Asia ( 18 ). The questionnaire is designed to be filled out either by the children or by the caregivers, but, as the children in the present study had seizures, we elected to have the questionnaire filled out by the caregivers.…”

Section: Methodsmentioning

confidence: 99%

Quality of life of children with residual seizures after epileptic resection surgery

Zhang

Liang

et al. 2022

Front. Neurol.

View full text Add to dashboard Cite

ObjectiveEpilepsy dramatically affects the quality of life (QoL) of children, and resection surgery can improve their QoL by reducing seizures or completely controlling them. Children who have postoperative seizures tend to show a poorer QoL. The aim of the present study was to investigate the QoL of children with seizures after resection surgery and its influencing factors.MethodsIn the present study, we retrospectively reviewed 151 consecutive children who underwent resection surgery. We then divided them into two groups, seizure and seizure-free groups, according to the seizure outcomes 1 year after surgery. Variables were categorized into a number of factor types such as preoperative factors, surgery-related factors, postoperative factors, and family factors. QoL and seizure outcomes more than 3 years after surgery were assessed according to the ILAE seizure outcome classification and the CHEQOL-25 scale.ResultsForty-three (28.5%) of the 151 children had seizures 1 year after surgery, and two children died during the follow-up period. The mean CHEQOL-25 scale for children with seizures was 63.5 ± 18.2, and 20 (48.8%) patients had poor QoL. Surgery-related factors, such as surgical complications and surgical sequelae, were not statistically associated with QoL. Preoperative language development retardation or language dysfunction [odds ratio (OR) = 29.3, P = 0.012) and postoperative ILAE seizure outcome classification (OR = 1.9, P = 0.045)] were significantly associated with QoL.SignificanceChildren with seizures after resection surgery had a relatively poor QoL. Surgery-related factors, such as surgical complications and surgical sequelae, cannot predict the QoL. Preoperative language development retardation or language dysfunction and postoperative ILAE seizure outcome classification were independent predictors of the quality of life (QoL). For children who could not achieve the expected freedom from seizure after surgery, a lower ILAE grade (ILAE 1-3) is also an acceptable outcome since it predicts a higher QoL.

show abstract

Quality of life in Malaysian children with epilepsy

Fong

Chang

Kong

et al. 2018

Epilepsy & Behavior

View full text Add to dashboard Cite

Cross-cultural adaptation of the Malay version of the child self-report Health-related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) in Malaysia

Cited by 4 publications

References 7 publications

Determining the quality of life of children living with epilepsy in Kenya—A cross-sectional study using the CHEQOL-25 tool

Determining the quality of life of children living with epilepsy in Kenya—A cross-sectional study using the CHEQOL-25 tool

Quality of life of children with residual seizures after epileptic resection surgery

Quality of life in Malaysian children with epilepsy

Contact Info

Product

Resources

About