Cross-cultural adaptation of the EMIC Stigma Scale for people with leprosy in Brazil

Morgado, Fabiane Frota da Rocha; Silveira, Erika Maria Kopp Xavier da; Sales, Anna Maria; Nascimento, Lilian Pinheiro Rodrigues do; Sarno, Euzenir Nunes; Nery, José Augusto da Costa; Oliveira, Aldair J.; Illarramendi, Ximena

doi:10.11606/s1518-8787.2017051000167

Cited by 14 publications

(13 citation statements)

References 20 publications

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“… α = Cronbach alpha coefficient, λ = Factor load, SD = standard deviation, TM = two-dimensional model, UM = unidimensional model, NA = not applied The 15 items correspond to the published English [ 51 ] and Portuguese [ 35 ] versions of the scale. All questions had minimum values = 0 (no) and maximum values = 3 (yes).…”

Section: Resultsmentioning

confidence: 99%

“… The 15 items correspond to the published English [ 51 ] and Portuguese [ 35 ] versions of the scale. All questions had minimum values = 0 (no) and maximum values = 3 (yes).…”

Section: Resultsmentioning

confidence: 99%

“…The cross-culturally adapted EMIC-SS for persons affected by leprosy in Brazil [ 35 ] has 15 questions with four Likert-type options: no (0), not sure (1), possibly yes (2), and yes (3). The answer "yes" indicates a strong signal of stigma therefore, it has assigned the highest value (3 points), except for item 2 that has a reversed score.…”

Section: Methodsmentioning

confidence: 99%

“…The EMIC-SS recently underwent a rigorous process of cross-cultural adaptation for the Brazilian population [ 35 ], but its psychometric qualities are still unknown. We expect to confirm the internal consistency of its one- and/or two-dimensional structures that has been shown in previous studies [ 27 ] using confirmatory factor analysis (CFA) and Chronbach alpha.…”

Section: Introductionmentioning

confidence: 99%

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Psychometric assessment of the EMIC Stigma Scale for Brazilians affected by leprosy

et al. 2020

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Background The Stigma Scale of the Explanatory Model Interview Catalogue (EMIC-SS) is a useful option to investigate leprosy-related stigma, but its psychometric qualities are unknown in Brazil. This study investigated the factor structure, the convergent and known-groups validity, and the reliability of the EMIC-SS for Brazilians affected by leprosy. Methodology The Brazilian Portuguese version of the EMIC-SS was validated in 180 persons affected by leprosy at a Reference Center in Rio de Janeiro. Confirmatory factorial analysis (CFA) and Cronbach alpha were used to assess the EMIC-SS internal consistency. The Construct validity was tested using Spearman Correlation, Kruskal-Wallis, and Mann-Whitney tests comparing with the Participation Scale, Rosenberg Self-esteem Scale, Beck Depression Inventory, and a Sociodemographic Questionnaire. Test-retest reliability was evaluated with intra-class correlation (ICC). Main findings CFA confirmed the one- and two-dimensional models of the scale after retaining 12 of the 15 EMIC-SS items. The 12—item EMIC-SS was consistent (α = 0.78) and reproducible (ICC = 0.751, 95% Confidence Interval = 0.657–0.822, p < 0.0001). A significant correlation was observed between the EMIC-SS and the other scales confirming convergent validity. The EMIC-SS and its factors were able to differentiate several hypothesized groups (age, change of occupation, monthly family income, communicating others about the disease, and perception of difficulty to follow treatment) confirming the scale known-groups validity, both in its one and two-dimensional models. Conclusions/Significance Our study found support for the construct validity and reliability of the EMIC-SS as a measure of stigma experienced by people affected by leprosy in Brazil. However, future studies are necessary in other samples and populations with stigmatizing conditions to determine the optimal factor structure and to strengthen the indications of the validated scale.

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Section: Resultsmentioning

confidence: 99%

“… The 15 items correspond to the published English [ 51 ] and Portuguese [ 35 ] versions of the scale. All questions had minimum values = 0 (no) and maximum values = 3 (yes).…”

Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Psychometric assessment of the EMIC Stigma Scale for Brazilians affected by leprosy

et al. 2020

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“…Thus, although the proportion of cases of physical disability is not high, it is necessary that this characteristic be recognised as one of the main causes of the stigma process of leprosy in every parent, as the sequelae can damage the lives of these minors with regard to social coexistence and development (Morgado et al, 2017;Santana et al, 2018).…”

Section: International Journal Of Advanced Engineering Research and Science (Ijaers)mentioning

confidence: 99%

Leprosy in minors under 15: incidence and characteristics of reported cases in the State of Pará in the period 2005 to 2013

Alves¹,

Sousa²,

Miyahara³

et al. 2020

IJAERS

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Objective: To describe the incidence and characteristics of leprosy in children under 15 years of age of the cases reported in the State of Pará, Brazil from 2005 to 2013. Method: The descriptive study, with a quantitative approach, was carried out based on data from the Acute Notification Information System, provided by the State Secretariat of Public Health. In the period studied, 4,251 cases of leprosy were reported in the state of Pará in children under 15 years of age, with an annual average of 472.3 cases/year. Results: There was a 15% decrease in the incidence of leprosy in the state, from 24% new cases/100 000 in 2005 to 20.4% new cases/100 000 in 2013. The year with the highest incidence of the disease was 2005 (24/100,000 inhabitants) and the year with the lowest incidence was 2010 (17.1/100,000 inhabitants); most cases were observed among men (52.2%) and individuals with brown skin color (68.9%), living in urban areas (72%), with indeterminate form (35.5%), followed by dimorph (30.1%), with most cases with negative smear (10.3%), zero degree of physical disability (79.5%) and with the appearance of single lesions (44.9%). 2,552 patients (60%) were classified as paucibacillary. Most of the investigated cases did not have nerves compromised by the disease (87.5%). Despite the decrease between the period studied, the incidence of leprosy in children under 15 in the state of Pará is still considered very high. Conclusion: It is necessary to decentralize the care of the disease carrier by implementing prevention activities (primary, secondary and tertiary) and control, training of family health strategy teams and more efficient coverage of health services.

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Impact of Preventive Campaigns in Dermatology: A Brazilian Experience

Oliveira

2023

Dermatology in Public Health Environments

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Cross-cultural adaptation of the EMIC Stigma Scale for people with leprosy in Brazil

Cited by 14 publications

References 20 publications

Psychometric assessment of the EMIC Stigma Scale for Brazilians affected by leprosy

Psychometric assessment of the EMIC Stigma Scale for Brazilians affected by leprosy

Leprosy in minors under 15: incidence and characteristics of reported cases in the State of Pará in the period 2005 to 2013

Impact of Preventive Campaigns in Dermatology: A Brazilian Experience

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