Critical design factors for information technology supporting type 1 diabetes management

Bedrossian, Jane; Kerr, Laura; Robertson, Leigh; Stewart, Alexis; Suits, John; Patek, Stephen D.; Valdez, Rupa S.

doi:10.1109/sieds.2016.7489311

Cited by 6 publications

(5 citation statements)

References 13 publications

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“…Alongside the need for ground rules, customized, tailored designs/options are an important consideration, as Bedrossian et al 23 have recommended more generally in the design of information technology to support type 1 diabetes management among adolescents. Indeed, our study has highlighted considerable variability in data sharing practices, with parents of younger adolescents, in particular, valuing technology which permitted quick and easy access to data in ''real-time,'' while those of middle adolescents made greater use of retrospective data, including data offering insight into behavioral patterns, which could be detrimental to long-term glycemic control.…”

Section: Discussionmentioning

confidence: 99%

Data Sharing While Using a Closed-Loop System: Qualitative Study of Adolescents' and Parents' Experiences and Views

Lawton

Hart

Kimbell

et al. 2021

Diabetes Technology & Therapeutics

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Objective: To understand and explore data sharing practices among adolescents and their parents using a closed-loop system. Methods: Eighteen adolescents (aged 11–18 years) and 19 parents were interviewed after adolescents had ∼6 months experience of using a closed-loop system, which permitted them to share glucose and insulin data with parents/caregivers. Data were analyzed thematically. Results: There was considerable variability in how parent–child dyads perceived, valued, and undertook data sharing. Parents of early adolescents (11–13 years) reported making extensive use of “real time” data to remotely manage their child's diabetes and early adolescents described needing and wanting this input. Parents of middle adolescents (14–16 years) described making greater use of retrospective data. To avoid conflict and encourage and support their son/daughter's autonomy, these individuals reported practicing watchful waiting and only intervening after concerns about a pattern of problematic behavior or their child's safety arose. Middle adolescents indicated that data sharing had been done primarily for the benefit of their parents, although they also noted quality of life benefits for themselves. Among late adolescents (17+ years), parents were simply remote because their son/daughter had not permitted access to their data. Participants recommended clear ground rules be put in place about when, and how, data sharing should be used. Conclusions: To help parent–child dyads use data sharing in ways which minimize conflict and optimize constructive parental support, we recommend tailored input and support, which takes account of family dynamics, the young person's developmental maturity, and the different ways in which data are used across the adolescent age range.

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Section: Discussionmentioning

confidence: 99%

Data Sharing While Using a Closed-Loop System: Qualitative Study of Adolescents' and Parents' Experiences and Views

Lawton

Hart

Kimbell

et al. 2021

Diabetes Technology & Therapeutics

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“…The trend toward using technology is likely to have the greatest effect on the generalization of information provided from the office or personal intervention to different times of day, locations, environments, and other situations in which the acquisition of new knowledge does not necessarily result in changes of behaviour (Minges et al, 2016). Moreover, the transmission of information through technology reflects a cohort change in how adolescents acquire information, making technology a more salient approach to information transmission to adolescents than written or face-to-face interventions (Bedrossian et al, 2016). However, technology only refers to the means by which information is transmitted and not the content of the information.…”

Section: Technology-driven Interventionsmentioning

confidence: 99%

“…Often the ability to self-manage is not mastered during this transition, placing adolescents at risk for medical complications and lower quality of life as they develop into adulthood (Anderson, Brackett, Ho, & Laffel, 1999;Corathers et al, 2015). Sustainable self-management requires the development of a sophisticated skill set, which includes self-monitoring, self-injection, adhering to a dietary and exercise plan, and avoiding high-risk behaviours common in adolescents such as alcohol abuse (Anderson, Ho, Brackett, Finkelstein, & Laffel, 1997;Bedrossian et al, 2016).There are four essential self-management domains for persons with diabetes: (a) glucose monitoring, (b) insulin delivery, (c) diet, and (d) physical activity. More than 40% of adolescents with diabetes do not conduct scheduled glucose monitoring (Weissberg-Benchell et al, 1995).…”

mentioning

confidence: 99%

Psychoeducational interventions to improve adolescents’ medical management of diabetes: A comprehensive review

Bergmame¹,

Shaw²

2017

Health Psychology Report

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). The increase in technologically assisted psychoeducational interventions using text, apps, and interactive Internet-based programming results in a qualitative update of psychoeducational interventions and program evaluations. Also noted is an increase in the number of family-focused interventions that have been evaluated and published. The results of the current comprehensive literature review yield 42 evaluative studies of psychoeducational interventions for adolescents with type 1 diabetes with mixed outcomes. Despite the variety of interventions and research designs, only two of the 42 studies reported moderate effect sizes. All the others indicated no effects or small effects. Although not conclusive, the most promising approaches involve the use of motivational interviewing involving individual, family, and technological support. The ramifications for future research, potential value of psychoeducational interventions for adolescents, and implementation of technology for delivering psychoeducational interventions for adolescents with diabetes are described. Background Type 1 diabetes is one of the most common chronic illnesses affecting young people in North America (Babler & Strickland, 2015). The incidence of diabetes is growing in the general population, but this growth is especially apparent in low socioeconomic status and ethnic minority groups (Kassai et al., 2015). Being diagnosed with diabetes has a negative influence on academic, social, medical, and overall well-being. However, these negative outcomes are mitigated by effective medical and psychoeducational management (Murphy, Wadham, Hassler-Hurst, Rayman, & Skinner, 2012). Medical management of diabetes requires a multidisciplinary approach that includes medical treatment and adherence to supportive lifestyle management (Sajatovic et al., 2011;Shalev, & Geffken, 2015). Changing behaviour involves psychoeducational interventions that are implemented by physicians, nurses, educators, and parents for the benefit of adolescents. However, the effectiveness of these interventions for changing long-term behaviours is not clear.Adolescents with diabetes present a specific set of developmental challenges in care and management. There is an increased desire for independence, yet the daily living skills required for independence are developing (Markowitz, Garvey, & Laffel, 2015). For all adolescents, this is a challenging developmental period. Many experience a wide range of adjustment and mental health problems (Chilton & Pires-Yfantouda, 2015). Behavior patterns established during this process, including those related to the management of chronic medical issues such as diabetes, can have long-lasting positive or negative effects on future health and well-being. As a result, professionals have unique opportunities to influence adolescents. Parents, members of the community, medical professionals, and educators have the responsibility to promote adolescent development and adjustment as well as to intervene effectively when problems arise. For adolescent...

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“…5,6 Such concerns may be heightened at night and when children are outside parents' direct supervision. 3,8 Parents often struggle to trust others with their child's care, or find people who are willing and able to look after their child. 3,6 The demands of care, and lack of respite, can affect parents' sleep, physical and mental health, personal and professional lives and finances.…”

Section: Introductionmentioning

confidence: 99%

“…Many parents/caregivers experience high levels of anxiety, with fears about hypoglycaemia being especially prominent 5,6 . Such concerns may be heightened at night and when children are outside parents’ direct supervision 3,8 . Parents often struggle to trust others with their child's care, or find people who are willing and able to look after their child 3,6 .…”

Section: Introductionmentioning

confidence: 99%

Parents’ experiences of using remote monitoring technology to manage type 1 diabetes in very young children during a clinical trial: Qualitative study

et al. 2022

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Aims:To explore parents' experiences of using remote monitoring technology when caring for a very young child with type 1 diabetes during a clinical trial. Methods: Interviews were conducted with parents of 30 children (aged 1-7 years) participating in a trial (the KidsAP02 study) comparing hybrid closed-loop insulin delivery with sensor-augmented pump therapy. In both arms, parents had access to remote monitoring technology. Data analysis focused on identification of descriptive themes. Results: Remote monitoring technology gave parents improved access to data which helped them pre-empt and manage glucose excursions. Parents observed how, when children were in their own care, they could be more absent while present, as their attention could shift to non-diabetes-related activities. Conversely, when children were others' care, remote monitoring enabled parents to be present How to cite this article: Hart RI, Kimbell B, Rankin D, et al; the KidsAP Consortium. Parents' experiences of using remote monitoring technology to manage type 1 diabetes in very young children during a clinical trial: Qualitative study.

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Critical design factors for information technology supporting type 1 diabetes management

Cited by 6 publications

References 13 publications

Data Sharing While Using a Closed-Loop System: Qualitative Study of Adolescents' and Parents' Experiences and Views

Data Sharing While Using a Closed-Loop System: Qualitative Study of Adolescents' and Parents' Experiences and Views

Psychoeducational interventions to improve adolescents’ medical management of diabetes: A comprehensive review

Parents’ experiences of using remote monitoring technology to manage type 1 diabetes in very young children during a clinical trial: Qualitative study

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