Criterion-related validity of the PDDBI: Comparison with the ADOS-2

Schutte, Claire; Devlin, Morgan; Richardson, Wendy; Hill, Jeanna; Hewitson, Laura

doi:10.1016/j.rasd.2019.04.003

Cited by 4 publications

(2 citation statements)

References 18 publications

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“…The PDDBI measures challenging behaviors and social communication specific to the ASD phenotype (Cohen & Sudhalter, 2005) and challenging behaviors that are not specific to ASD (e.g., aggressiveness, specific fears, and arousal regulation problems). Several studies have validated the clinical utility of the PDDBI for determining behavioral profiles of children with ASD to guide treatment decisions (Cohen & Flory, 2019;Schutte et al, 2019). The PDDBI has also been used as an outcome measure in quasiexperimental and randomized controlled intervention trials (Holzinger et al, 2019;Mankad et al, 2015) and has been included in an extensive phenotyping battery for an ongoing biomarker qualification study (McPartland et al, 2020).…”

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confidence: 99%

Informant (Dis)Agreement on Ratings of Challenging Behaviors and Social Communication in Preschool Children With Autism Spectrum Disorder

Reetzke

Pfeiffer

Kalb

et al. 2021

J Speech Lang Hear Res

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Purpose Cross-informant ratings are considered best practice for assessing children with autism spectrum disorder (ASD). However, informant disagreement often occurs, which can pose significant challenges to various aspects of clinical services. This study explored the degree of parent and speech-language pathologist (SLP) agreement on ratings of challenging behaviors and social communication skills in preschool children with ASD. Method Fifty-eight informant ratings of challenging behaviors and social communication skills were collected from parents and SLPs on the same 29 preschool children with ASD ( M = 49.93 months, SD = 11.67 months) using the Pervasive Developmental Disorder Behavior Inventory. Parent versus SLP group rating comparisons were assessed with paired t tests and Cohen's d effect sizes. Intraclass correlation coefficients were calculated to examine interrater reliability between individual parent and SLP ratings. Bland–Altman plots were generated to evaluate informant agreement across the entire range of Pervasive Developmental Disorder Behavior Inventory composite scores. Results Group comparisons indicated that parents rated arousal regulation problems as more severe than SLPs, with no other group differences observed. Parents and SLPs exhibited poor agreement on ratings of challenging behaviors; however, moderate to good agreement was observed for social communication ratings. Conclusions These results highlight the importance of including parents in the assessment and treatment planning process for preschool children with ASD, as parents may report key behavioral concerns that clinicians may not otherwise observe. Understanding behaviors that may be more prone to informant disagreement has implications for promoting a shared understanding of behavioral concerns and treatment targets between parents and clinicians.

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confidence: 99%

Informant (Dis)Agreement on Ratings of Challenging Behaviors and Social Communication in Preschool Children With Autism Spectrum Disorder

Reetzke

Pfeiffer

Kalb

et al. 2021

J Speech Lang Hear Res

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“…The ADOS Calibrated Severity Score (CSS) was computed as a measure of child autism symptoms (ADOS; Lord, Risi, et al, 2020;Lord, Rutter, et al, 2020;Lord et al, 2012). Good interrater reliability has been reported for ADOS items (κ w = 0.55-1.00; Lord, Risi, et al, 2020;Lord, Rutter, et al, 2020;Lord et al, 2012), and ADOS total scores have been found to be concurrently correlated with other measures of pervasive developmental disorder (r = 0.27; Schutte et al, 2019).…”

Section: Methodsmentioning

confidence: 98%

Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia

Smith

Sulek

Abdullahi

et al. 2021

Autism

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Parents from individualist cultures (those focused on autonomy of individuals; that is, Australian) may view their autistic children differently compared to parents from collectivist cultures (where community needs are valued over an individual’s, that is, South-East Asian cultures). As most research on autism and parenting has been undertaken in Western individualist cultures, knowledge of parenting beliefs and mental health within collectivist cultures is lacking. We compared the mental health, quality of life, well-being and parenting sense of competency between families raising an autistic child from two groups: 97 Australian parents and 58 parents from South-East Asian backgrounds. Children from both groups were receiving the same community-based early intervention. No group differences were found on the measures of mental health but, when compared to Australian parents, parents from South-East Asian backgrounds reported higher well-being and less impact on their quality of life resulting from their child’s autism-specific difficulties. Furthermore, a positive association between well-being and quality of life was only observed for South-East Asian parents. Hence, the views of, and responses to, disability for South-East Asian parents may act as a protective factor promoting well-being. This novel research indicates that culture plays a role in parenting autistic children and highlights the need to accurately capture cultural background information in research. Lay abstract We know that parents of autistic children experience poorer mental health and lower well-being than parents of non-autistic children. We also know that poorer mental health among parents of autistic children has been observed across different cultures. Most research focuses on Western cultures, so we know little about parental mental health and well-being of parents from different cultural backgrounds; yet, it is likely that cultural background contributes to how parents view their child’s condition and respond to the diagnosis. Here, we compared mental health, quality of life and well-being between families raising an autistic child from Australian backgrounds to families from South-East Asian backgrounds. All children in the current study were receiving the same community-based early intervention. When compared to the general population, parents had poorer mental health overall, but there were no differences between the two groups of parents. However, parents from South-East Asian backgrounds reported higher well-being and fewer difficulties associated with their child’s autism. These findings suggest that cultural background likely influences not only parent’s view of, and response to, their child’s autism, but also their own sense of well-being. As researchers and clinicians working with families of autistic children, we should more explicitly consider family’s cultural background within our work.

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Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention

Anderson,

Hochheimer,

Warren

et al. 2024

Autism Research

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This 24‐week single‐blind trial tested a modular approach for young autistic children (MAYAC) that was delivered for fewer hours per week and modified based on child progress and parental input compared to comprehensive behavioral intervention treatment as usual (CBI, TAU). Participants were autistic children, ages 18–60 months of age. MAYAC was initially 5 h of intervention per week, one of which was parent training and the other four direct therapy focusing on social communication and engagement, but additional modules could be added for up to 10 h per week. Comprehensive behavior intervention was delivered for ≥15 h per week. Outcome measures included the Vineland Adaptive Behavior Scales; VABS, the Ohio Autism Clinical Improvement Scale – Autism Severity; OACIS – AS and the Pervasive Developmental Disorder Behavior Inventory – Parent; PDDBI‐P. Implementation and parent satisfaction measures were also collected. Fifty‐six children, mean age of 34 months, were randomized. Within‐group analysis revealed significant improvements from baseline to week 24 for both MAYAC (p < 0.0001) and CBI, TAU (p < 0.0001) on the VABS. The noninferiority test was performed to test between group differences and MAYAC was not inferior to CBI, TAU on the VABS (p = 0.0144). On the OACIS – AS, 48.0% of MAYAC and 45.5% of CBI were treatment responders there were no significant changes on the PDDBI‐P, for either group. Treatment fidelity was high for both groups (>95%) as was parent satisfaction. Findings from this small trial are promising and suggest MAYAC may be an alternative for some young autistic children and their families to CBI, TAU.

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Criterion-related validity of the PDDBI: Comparison with the ADOS-2

Cited by 4 publications

References 18 publications

Informant (Dis)Agreement on Ratings of Challenging Behaviors and Social Communication in Preschool Children With Autism Spectrum Disorder

Informant (Dis)Agreement on Ratings of Challenging Behaviors and Social Communication in Preschool Children With Autism Spectrum Disorder

Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia

Comparative effectiveness trial: Modular behavior approach for young autistic children compared to comprehensive behavioral intervention

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