Criteria deemed important by the relatives for designating a reference person for patients hospitalized in ICU

Quenot, Jean‐Pierre; Meunier-Beillard, Nicolas; Ksiazek, Eléa; Abdulmalak, Caroline; Berrichi, Samia; Devilliers, H.; Ecarnot, Fiona; Large, Audrey; Roudaut, Jean-Baptiste; Andreu, Pascal; Dargent, Auguste; Rigaud, Jean‐Philippe

doi:10.1016/j.jcrc.2020.02.017

Cited by 3 publications

(9 citation statements)

References 31 publications

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“…We asked them to choose a reference person (RP) in order to facilitate communication. A reference person (RP) is a person designated among the patient's next of kin during hospitalization in the ICU, in the absence of an officially designated surrogate [12,13]. The call was conducted by either a resident or a senior doctor, and included daily news from the patient.…”

Section: Introductionmentioning

confidence: 99%

Psychological effects of remote-only communication among reference persons of ICU patients during COVID-19 pandemic

Cattelan¹,

Castellano

Merdji

et al. 2021

j intensive care

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Background During COVID-19 pandemic, visits have been prohibited in most French ICUs. Psychological effects, for reference persons (RPs), of remote-only communication have been assessed. Methods All RPs of patients referred to ICU for COVID-19 were included. HADS, IES-R, and satisfaction were evaluated at admission, discharge/death, and 3 months. At 3 months, a psychologist provided a qualitative description of RPs’ psychological distress. Results Eighty-eight RPs were included. Prevalence of anxiety and depression was 83% and 73% respectively. At 3 months, lower HADS decrease was associated with patient death/continued hospitalization, and/or sleeping disorders in RPs (p < 0.01). Ninety-nine percent RPs felt the patient was safe (9 [7; 10]/10 points, Likert-type scale), confident with caregivers (10 [9; 10]/10 points), and satisfied with information provided (10 [9; 10]/10 points). All RPs stressed the specific-type of “responsibility” associated with being an RP in a remote-only context, leading RPs to develop narrow diffusion strategies (67%) and restrict the array of contacted relatives to a very few and/or only contacting them rarely. 10 RPs (30%) related the situation to a prior traumatic experience. Conclusion RPs experienced psychological distress and reported that being an RP in a remote-only communication context was a specific responsibility and qualified it as an overall negative experience. Trial registration NCT04385121. Registered 12 May 2020. https://clinicaltrials.gov/.

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Section: Introductionmentioning

confidence: 99%

Psychological effects of remote-only communication among reference persons of ICU patients during COVID-19 pandemic

Cattelan¹,

Castellano

Merdji

et al. 2021

j intensive care

View full text Add to dashboard Cite

show abstract

“…Despite the dispositions of successive French laws regulating patients’ rights, this important aspect of the patient–caregiver relation remains problematic. Two previous French studies [6] , [7] explored criteria that could be used to identify specific individuals among the patients’ relatives who were considered best suited to act as the intermediary in case no official surrogate had been designated before the patient's admission to the ICU. The defining criteria were identified using a questionnaire completed by caregivers [7] and by the family members of ICU patients.…”

Section: Introductionmentioning

confidence: 99%

“…The defining criteria were identified using a questionnaire completed by caregivers [7] and by the family members of ICU patients. [6] The criteria identified by caregivers in the questionnaire items as being the most important for selecting a reference person were having a good knowledge of the patient's wishes and values, an emotional attachment to the patient, and an adequate understanding of the patient's clinical history. [7] Family members selecting a surrogate from among themselves also identified the same criteria as determinants of their choices, [6] although the criterion of being a family member was considered more important by the families than by the caregivers in the choice of a surrogate.…”

Section: Introductionmentioning

confidence: 99%

“… [6] The criteria identified by caregivers in the questionnaire items as being the most important for selecting a reference person were having a good knowledge of the patient's wishes and values, an emotional attachment to the patient, and an adequate understanding of the patient's clinical history. [7] Family members selecting a surrogate from among themselves also identified the same criteria as determinants of their choices, [6] although the criterion of being a family member was considered more important by the families than by the caregivers in the choice of a surrogate. A family centered approach [8] emphasizes these criteria for selecting a surrogate, not least because the healthcare team will have to discuss various ethical questions with that person during the patient's ICU stay.…”

Section: Introductionmentioning

confidence: 99%

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Criteria deemed important by ICU patients when designating a reference person

Quenot¹,

Meunier-Beillard²,

Ksiazek³

et al. 2022

Journal of Intensive Medicine

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“…Having to nd a new way to communicate with and inform relatives, we committed to call families every day before 6 pm, and at any time in case of acute problem. We asked them to choose a Reference Person (RP) in order to facilitate communication [11]. The call was conducted by either a resident or a senior doctor, and included daily news from the patient.…”

Section: Introductionmentioning

confidence: 99%

Psychological Effects of Remote-only Communication Among Reference Persons of ICU Patients During COVID-19 Pandemic

Cattelan

Castellano²,

Merdji

et al. 2020

Preprint

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Background: During COVID-19 pandemic, visitations have been prohibited in most French ICUs. We aimed to assess psychological effects, for reference persons (RPs), of experiencing remote-only communication with both caregivers and the patient during COVID-19 pandemic.Methods: All RPs of patients referred to ICU for COVID-19 were included. HADS, IES-R, and satisfaction were evaluated at admission, discharge/death and 3 months. At 3 months, an interview with a psychologist provided a qualitative description of RPs’ psychological distress.Results: Eighty-eight RPs were interviewed at patient admission and discharge, and 33 accepted the 3rd month-interview. Prevalence of anxiety and depression symptoms was 65% and 32% respectively at patient admission and 27% and 24% at discharge/death, with a significant decrease between ICU admission and discharge/death (23 [16;31] versus 16 [9;21] points, p<0.01). At 3 months, lower HADS decrease was associated with patient death/continued hospitalization, and/or sleeping disorders in RPs (p<0.01). Despite visit prohibition, 99% RPs felt the patient was safe (9 [7;10]/10 points, Likert-type scale). They also felt confident with caregivers, therapeutic decisions (10 [9;10]/10 points) and satisfied with the manner/frequency information was provided (10 [9;10]/10 points). All RPs stressed the specific-type of “responsibility” associated with being an RP in a remote-only context. The 3 salient themes turned out to be dichotomous variables: positive (9 RPs, 27%) vs. negative (24 RPs, 73%) subjective experience; wide (11 RPs, 33%) vs. narrow (22 RPs, 67%) information diffusion strategies: only a third chose to transmit the information to many relatives. Only 10 RPs (30%) related the situation to a prior traumatic experience.Conclusion: In a distressing situation, remote-only communication allowed RPs to remain involved in decision processes and maintain contact with patient and caregivers.Trial registration: NCT04385121. Registered 12 May 2020. https://clinicaltrials.gov/

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Criteria deemed important by the relatives for designating a reference person for patients hospitalized in ICU

Cited by 3 publications

References 31 publications

Psychological effects of remote-only communication among reference persons of ICU patients during COVID-19 pandemic

Psychological effects of remote-only communication among reference persons of ICU patients during COVID-19 pandemic

Criteria deemed important by ICU patients when designating a reference person

Psychological Effects of Remote-only Communication Among Reference Persons of ICU Patients During COVID-19 Pandemic

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