Criança com paralisia cerebral: qual o impacto na vida do cuidador?

Abstract

cristiane xavier silva 1 édva duarte brito 2 francisco stélio de sousa 3 inacia sátiro xavier de frança 4 Objetivou-se investigar o impacto que o nascimento da criança com Paralisia Cerebral (PC) causa na vida dos cuidadores. Estudo descritivo-qualitativo com sete cuidadoras de crianças com PC. Utilizou-se entrevista semi-estruturada, análise de conteúdo temática. Ocorreu crise familiar devido ao nascimento da criança com PC. A interação familiar com a criança melhorou após a obtenção de maiores esclarecimentos sobre a sua saúde. As cuidadoras assumem papel pro-ativo no processo reabilitador do filho. Aprenderam a relevar o estigma imputado aos seus filhos, mas enfrentam agravos à sua saúde, dificuldades financeiras e para conduzir seus filhos até o serviço de reabilitação devido a insipiente oferta de transporte inter-municipal. Conclui-se que PC é uma condição psicomotora pouco entendida pelos pais e familiares das crianças. Os profissionais de saúde precisam oferecer maior grau de informação acerca da patologia e do manuseio da criança com PC. Há necessidade de rede social de apoio. DESCRITORES: Paralisia Cerebral; Cuidadores; Enfermagem em Reabilitação. This study aimed to investigate the impact that the birth of a child with Cerebral Palsy (CP) causes in the caregivers' lives. It is a qualitative-descriptive study performed with seven female caregivers of children with CP. It was used a semi-structured interview with thematic content analysis.There was a family crisis due to the birth of children with CP. The family interaction with the child improved after obtaining further information about their health. The caregivers take pro-active role in the rehabilitation process of the child. They learn to overlook the stigma attributed to their children, but face injuries to their health and difficulties in different sectors, such as: financial difficulties and to lead their children to the rehabilitation service because of incipient offer of inter-municipal transportation. The conclusion is that CP is a psychomotor condition which is not properly understood by parents and family of CP children. Health professionals need to provide greater information about the pathology and care of children with CP, and a social support network is required.

Physiotherapeutic stimulation in infants with Down syndrome to promote crawling

“…According to Silva [14], the Bobath Concept uses exercises that encourage weight transfers, making use of assistive materials such as Swiss ball and rollers. In this way, the patient learns to obtain greater proprioceptive control and spatial notion.…”

The tension between the language of literature and the language of clinical practice/research in Brazilian medical publications

“…In Brazil, studies reveal that for every 1000 children born, seven have CP if all types (spastic, dyskinetic, ataxic, and mixed) are considered. 1 In a retrospective study from the electronic medical records of 743 patients treated at a hospital unit supporting disabled children, Binha et al observed a higher prevalence of consultations in the 2 to 4 years age group, with the unilateral (diparesis) subtype being the most frequent and no marked differences in the distribution of Gross Motor Function Classification System levels. 2 More than half of these patients and their families did not receive any type of government social assistance or benefit.…”