Creating Technologies with People Who have Dementia

Astell, Arlene

doi:10.1007/978-3-030-06076-3_2

Cited by 5 publications

(3 citation statements)

References 43 publications

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“…Thus, while support from care partners (in this case their spouse) enabled some individuals with MCI/EOD to engage in the research, prompting from their spouse impacted the direction of the conversation. This supports previous findings of the importance of distinguishing the needs and priorities of individuals with MCI or dementia from those of their family members ( Astell, 2006 , 2019 ). This example serves to highlight that having people with MCI/EOD physically engage in relevant tasks or activities is especially appropriate and valuable to ascertain their needs, abilities, and use of technology.…”

Section: Discussionsupporting

confidence: 91%

Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed

et al. 2021

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Earlier diagnosis and longer working careers is resulting in more individuals being identified as having Mild Cognitive Impairment or Early Onset Dementia (MCI/EOD) when they are still in the workforce. While there is growing interest in the dementia research community and beyond to develop technologies to support people with dementia, the use of technology for and by people with MCI/EOD in the workplace has had very little attention. This paper presents a two-part study involving interviews and participatory sessions to begin to understand the workplace experiences and the role of technology among people living with MCI/EOD. We present our findings from working with seven people with MCI/EOD and two care partners to explore technology design. Our results indicate several similarities as well as a few differences between MCI/EOD and later-onset dementia with respect to challenges using technology and design considerations for supporting engagement and use of technology. Lessons learned through the process of working with people with MCI/EOD through participatory methods is presented along with recommendations to foster an inclusive, respectful, and empowering experience for participants with MCI/EOD.

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Section: Discussionsupporting

confidence: 91%

Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed

et al. 2021

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“…Comprehensibly, most of the technologies used were not aligned with the REAFF framework, as these were not explicitly designed to take into consideration the needs of people with dementia [ 45 , 46 ]. Most of the technologies used did not follow, for example, the augmenting or failure free principles, as participants did not complete the tasks independently.…”

Section: Discussionmentioning

confidence: 99%

“…Thus, to enhance the user experience for people with dementia while using novel technology, additional guidelines have been suggested to help developers in designing technologies while addressing the need for people with dementia, such as the responding, enabling, augmenting, failure-free (REAFF) framework [ 45 , 46 ]. The REAFF framework focuses on 4 principles: (1) responding (technologies should respond to the needs of people with dementia), (2) enabling (technologies should improve the quality of life of people with dementia), (3) augmenting (technologies should be able to adapt to the reserved skills of people with dementia), and (4) failure free (technologies should be as easy to use as possible without discouraging people with dementia).…”

Section: Introductionmentioning

confidence: 99%

User Experience of Interactive Technologies for People With Dementia: Comparative Observational Study

Ferreira¹,

Ferreira²,

Cavaco³

et al. 2020

JMIR Serious Games

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Background Serious games (SGs) are used as complementary approaches to stimulate patients with dementia. However, many of the SGs use out-of-the-shelf technologies that may not always be suitable for such populations, as they can lead to negative behaviors, such as anxiety, fatigue, and even cybersickness. Objective This study aims to evaluate how patients with dementia interact and accept 5 out-of-the-shelf technologies while completing 10 virtual reality tasks. Methods A total of 12 participants diagnosed with dementia (mean age 75.08 [SD 8.07] years, mean Mini-Mental State Examination score 17.33 [SD 5.79], and mean schooling 5.55 [SD 3.30]) at a health care center in Portugal were invited to participate in this study. A within-subject experimental design was used to allow all participants to interact with all technologies, such as HTC VIVE, head-mounted display (HMD), tablet, mouse, augmented reality (AR), leap motion (LM), and a combination of HMD with LM. Participants’ performance was quantified through behavioral and verbal responses, which were captured through video recordings and written notes. Results The findings of this study revealed that the user experience using technology was dependent on the patient profile; the patients had a better user experience when they use technologies with direct interaction configuration as opposed to indirect interaction configuration in terms of assistance required (P=.01) and comprehension (P=.01); the participants did not trigger any emotional responses when using any of the technologies; the participants’ performance was task-dependent; the most cost-effective technology was the mouse, whereas the least cost-effective was AR; and all the technologies, except for one (HMD with LM), were not exposed to external hazards. Conclusions Most participants were able to perform tasks using out-of-the-shelf technologies. However, there is no perfect technology, as they are not explicitly designed to address the needs and skills of people with dementia. Here, we propose a set of guidelines that aim to help health professionals and engineers maximize user experience when using such technologies for the population with dementia.

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Using the TUNGSTEN Approach to Co-design DataDay: A Self-management App for Dementia

Astell

Dove

Morland³

et al. 2020

Human–Computer Interaction Series

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User expertise illuminates people's motivations for using technology (Hassenzahl 2011), including the reasons that they do or do not use applications, devices and services. Identifying user's priorities aligns with the current or 'third wave' of HCI, which embraces the experience and meaning-making of the technology user(s) (Bødker 2015). When working with people living with dementia, expertise from families can also deepen one's understanding of potential users' motivations for and challenges experienced when using new technologies, particularly at home (Astell et al. 2009). In healthcare settings, frontline staff are also experts in understanding the technologies they both use and support, as well as the challenges to innovation and implementation within their services (Astell and Fels In Press).At the present time there are no disease-modifying therapies for dementia (Bennett 2018;Mehta et al. 2017), but current and future technologies could provide practical, affordable and scalable solutions (Astell 2019). Globally, the majority of people live with dementia at home, supported by family, friends and the wider community (Prince et al. 2015). Thus, what is needed are accessible and affordable digital solutions that A. Astell (B) • E. Dove

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Creating Technologies with People Who have Dementia

Cited by 5 publications

References 43 publications

Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed

Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed

User Experience of Interactive Technologies for People With Dementia: Comparative Observational Study

Using the TUNGSTEN Approach to Co-design DataDay: A Self-management App for Dementia

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