Creating meaning in fibromyalgia syndrome

Madden, Sue; Sim, Julius

doi:10.1016/j.socscimed.2006.06.020

Cited by 96 publications

(125 citation statements)

References 39 publications

Supporting

Mentioning

120

Contrasting

Order By: Relevance

“…There must be some other reason I feel that, all these rigid things that you try and put in place to protect (28,29,32,34,39,70,73,89,93,94,103 yourself, quite often are actually a problem that you have in your mind rather 108,113,115) than your back. So I think your mind and your back are quite closely linked (93).…”

Section: Conceptual Categoriesmentioning

confidence: 99%

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Toye¹,

Seers²,

Allcock³

et al. 2013

Br J Gen Pract

122

128

View full text Add to dashboard Cite

show abstract

Section: Conceptual Categoriesmentioning

confidence: 99%

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Toye¹,

Seers²,

Allcock³

et al. 2013

Br J Gen Pract

122

128

View full text Add to dashboard Cite

show abstract

“…66,312,323,325,326,330-334,336,338,342-345,350,353-358, 362-365,367,372,374,376,379,385-387 Twenty-eight papers (23 individual studies) explored the experience of people with fibromyalgia. 324,[327][328][329]335,337,[339][340][341]346,349,351,352,[359][360][361]366,373,375,377,378,[380][381][382][383][384] A description of these studies is provided in Tables 6 and 7, showing for each study the age range and source of participants, the country where the study was carried out, the method of data collection and the methodology used. …”

Section: Included Studiesmentioning

confidence: 99%

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

View full text Add to dashboard Cite

Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

show abstract

“…Many studies that investigated the experience of living with fibromyalgia, reported that the loss of quality of life was increased due to a lack of awareness from healthcare providers and limited knowledge of the disease. 4,16,17,19,[25][26][27] Women report stigmatization in the workplace, including being accused of lying about their suffering to try to avoid their duties at work. 20 In addition to these issues, women also experience a loss of freedom, threats to their integrity and struggle to achieve relief and understanding.…”

Section: Introductionmentioning

confidence: 99%

Experiences of women living with fibromyalgia: an exploratory study of their information needs and preferences

et al. 2011

View full text Add to dashboard Cite

Women living with fibromyalgia consistently report experiencing a change in their lives in terms of stigma, inability to work, isolation from society and difficulty in managing their illness. Lack of understanding and knowledge about their disease has been linked to compromised health and quality of life. The aim of this study was to explore the experiences of information use of women living with fibromyalgia. A descriptive phenomenology was used for this study. Participants were identified through gatekeepers for women living with fibromyalgia across Canada. Data was collected via taperecorded interviews. The study was conducted in Canada between 2009-2010. Ten women (18 or older) participated in the research. Three essential themes emerged from the analysis that were vital to understand the unique experiences of women: i) understanding the need for information required to live with fibromyalgia, ii) struggling to meet vital and fundamental information needs and iii) transforming themselves to improve health and quality of life. Women living with fibromyalgia have vital and specific information needs and struggle to find and access appropriate information. They use diverse strategies in overcoming some of the challenges in accessing information. Most significantly, women draw on the information to make changes and to begin to coordinate their lives to live with fibromyalgia. For women living with fibromyalgia, the phenomenon of information use has a significant effect on their lives. Healthcare providers are perceived as an important source of information and need to be better informed, more prepared and dedicated to assisting women with their information needs.

show abstract

Creating meaning in fibromyalgia syndrome

Cited by 96 publications

References 39 publications

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Experiences of women living with fibromyalgia: an exploratory study of their information needs and preferences

Contact Info

Product

Resources

About