Creating a Place for Caregivers in Personal Health: The iHealthSpace Copilot Program and Diabetes Care

Chung, Jeanhee; Berkowicz, David; Ho, Benjamin; Jernigan, Michael C.; Chueh, Henry C.

doi:10.1177/193229681100500106

Cited by 3 publications

(4 citation statements)

References 13 publications

(18 reference statements)

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“…Five articles [23,24,27,29,31] described an item that could be related to cluster 4, mentioning it five times. Elements 3 and 5 of this cluster assert that involving client representatives in the care chain for monitoring or improving patient care helps to enhance the quality of integrated care.…”

Section: Cluster 4 Quality Of Carementioning

confidence: 99%

“…Elements 3 and 5 of this cluster assert that involving client representatives in the care chain for monitoring or improving patient care helps to enhance the quality of integrated care. This is represented in a study [27] that states that "the iHealthSpace Copilot program is designed to allow patients to grant caregivers access to their health record and to the services offered through iHealthSpace on their behalf." Element 4 focuses on the use of evidence-based guidelines and standards.…”

Section: Cluster 4 Quality Of Carementioning

confidence: 99%

“…Interprofessional teamwork is mentioned in just three articles [23,27,41], with one mention each. These studies describe how patient portals were deployed within a multi-disciplinary team.…”

Section: Cluster 6 Interprofessional Teamworkmentioning

confidence: 99%

“…Articles with the most items (ten or more) on the Minkman model [22,23,24,25,27] primarily have outcomes that state that the attitudes of users, both patients and professionals, is a major factor in the functional use of a patient portal. Articles reporting on portals with a medium number of functionalities (five to eight) differentiated between outcomes on design and development of a patient portal [26,28,29,30], positive effects on health-related issues [31,32] or creating awareness and self-management among patients [33,34,35].…”

Section: Study Outcomementioning

confidence: 99%

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In pursuit of integrated care: the contribution of patient portals (Preprint)

Zwikker¹,

Scheepers²,

Smit³

et al. 2018

Preprint

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Background: Advocates of patient portals claim that they can strengthen integrated care for patients with complex or chronic health issues. However, it remains unclear how patient portals can achieve this, since indicators of integrated care are absent in most research on the matter. Objective: This study investigates the claim that patient portals can strengthen integrated care by reviewing the current research with Minkman's model of integrated care. Methods: A systematic search of PubMed, PsycInfo and Embase was conducted on research literature about patient portals (and related search terms) that was published between 2006 and 2016. Parts of the selected texts were scored on items which contribute to or hinder clusters of the Minkman model, or were absent from the model. Results:The 22 selected studies we analyzed with the Minkman model implicitly address several clusters of integrated care. Most prevalent were patientcenteredness (55 mentions), delivery system (49 mentions) and performance management (33 mentions); the least prevalent were interprofessional teamwork (3 mentions) and commitment (2 mentions). Five studies showed ways in which portals can hinder integrated care (12 mentions), while four studies showed ways in which they can promote integrated care that is not yet present in Minkman's model. Conclusions: Since the majority of the studies described items that contribute towards clusters of the Minkman model, the claim that patient portals can strengthen integrated care appears to have some merit. Items with negative impact are few and are primarily related to the implementation of portals for users. Based on our findings, we advocate using all the clusters of the Minkman model, since it can help patient portals be designed and implemented more effectively.

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Section: Cluster 4 Quality Of Carementioning

confidence: 99%

Section: Cluster 4 Quality Of Carementioning

confidence: 99%

Section: Cluster 6 Interprofessional Teamworkmentioning

confidence: 99%

Section: Study Outcomementioning

confidence: 99%

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In pursuit of integrated care: the contribution of patient portals (Preprint)

Zwikker¹,

Scheepers²,

Smit³

et al. 2018

Preprint

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What is a PHR? Definitions of Personal Health Record (PHR) Used in Literature—A Systematic Literature Review

Koskinen

Rantanen

2020

Communications in Computer and Information Science

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Patient Health Record Systems Scope and Functionalities: Literature Review and Future Directions

2017

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BackgroundA new generation of user-centric information systems is emerging in health care as patient health record (PHR) systems. These systems create a platform supporting the new vision of health services that empowers patients and enables patient-provider communication, with the goal of improving health outcomes and reducing costs. This evolution has generated new sets of data and capabilities, providing opportunities and challenges at the user, system, and industry levels.ObjectiveThe objective of our study was to assess PHR data types and functionalities through a review of the literature to inform the health care informatics community, and to provide recommendations for PHR design, research, and practice.MethodsWe conducted a review of the literature to assess PHR data types and functionalities. We searched PubMed, Embase, and MEDLINE databases from 1966 to 2015 for studies of PHRs, resulting in 1822 articles, from which we selected a total of 106 articles for a detailed review of PHR data content.ResultsWe present several key findings related to the scope and functionalities in PHR systems. We also present a functional taxonomy and chronological analysis of PHR data types and functionalities, to improve understanding and provide insights for future directions. Functional taxonomy analysis of the extracted data revealed the presence of new PHR data sources such as tracking devices and data types such as time-series data. Chronological data analysis showed an evolution of PHR system functionalities over time, from simple data access to data modification and, more recently, automated assessment, prediction, and recommendation.ConclusionsEfforts are needed to improve (1) PHR data quality through patient-centered user interface design and standardized patient-generated data guidelines, (2) data integrity through consolidation of various types and sources, (3) PHR functionality through application of new data analytics methods, and (4) metrics to evaluate clinical outcomes associated with automated PHR system use, and costs associated with PHR data storage and analytics.

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Creating a Place for Caregivers in Personal Health: The iHealthSpace Copilot Program and Diabetes Care

Abstract: We successfully extended an existing patient portal to accommodate the creation of custodial accounts. We will use this portal to assess the impact of custodial access in the care of older patients with diabetes.

Cited by 3 publications

References 13 publications

In pursuit of integrated care: the contribution of patient portals (Preprint)

In pursuit of integrated care: the contribution of patient portals (Preprint)

What is a PHR? Definitions of Personal Health Record (PHR) Used in Literature—A Systematic Literature Review

Patient Health Record Systems Scope and Functionalities: Literature Review and Future Directions

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