Creating a pediatric advisory board for engaging youth in pediatric health research: A case study

Orellana, Minerva; Valdez-Soto, Miguel; Brockman, Tabetha A.; Balls-Berry, Joyce E.; Rocha, Marco; Allyse, Megan; D’Souza, Karen; Riggan, Kirsten A.; Juhn, Young J.; Patten, Christi A.

doi:10.1017/cts.2021.399

Cited by 7 publications

(5 citation statements)

References 8 publications

(7 reference statements)

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“…Moreover, partnering with SMY-serving organizations will enable researchers to identify critical factors in uencing health disparities more effectively among these groups and potential solutions from a stakeholder perspective (Hergenrather et al, 2013). Additionally, youth Advisory Boards have effectively supported the design of adolescent research representative of their health concerns, respecting youth's ability to provide informed assent for research and providing health bene ts for youth throughout the process (Orellana et al, 2021). These youth-centered advisory boards have also been shown to garner greater buy-in with the target population by increasing engagement and trust with the research team -thus improving interest and enrollment (Orellana et al, 2021) Institutional Review Board issues.…”

Section: Recommendations and Implications For Future Intervention Dev...mentioning

confidence: 99%

“…Additionally, youth Advisory Boards have effectively supported the design of adolescent research representative of their health concerns, respecting youth's ability to provide informed assent for research and providing health bene ts for youth throughout the process (Orellana et al, 2021). These youth-centered advisory boards have also been shown to garner greater buy-in with the target population by increasing engagement and trust with the research team -thus improving interest and enrollment (Orellana et al, 2021) Institutional Review Board issues. The Society for Adolescent Health and Medicine emphasizes the need for research to focus on the health outcomes of sexual minority youth (i.e., lesbian, gay, bisexual, transgender, queer).…”

Section: Recommendations and Implications For Future Intervention Dev...mentioning

confidence: 99%

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Teen dating violence interventions for sexual minority youth: A scoping review

Smith

Singer

Jann

et al. 2022

Preprint

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Background. Sexual minority youth (SMY) are disproportionately impacted by teen dating violence (TDV). However, current interventions do not address the distinct needs of SMY. Culturally safe and effective TDV prevention interventions targeted to SMY are needed. The purpose of this review is to (1) examine TDV interventions that are inclusive of SMY and (2) determine the effectiveness of the interventions in terms of both knowledge and behavioral changes.Methods. A scoping review was conducted and includes studies that met the following inclusion criteria: (1) evaluated a TDV prevention program,(2) included participants who identify as lesbian/gay, bisexual, unsure, or queer; (3) reported outcomes for SMY; and (4) were published in the English language. The Effective Public Health Project Quality Assessment Tool for Quantitative Studies and Garrard Matrix Method were employed to critically evaluate articles and synthesize findings.Results. A comprehensive search was conducted using five electronic databases that revealed 878 articles. Three articles were included in this review. Findings revealed that culturally targeted interventions improved dating violence knowledge and decreased the acceptance of sexual violence from pre-post intervention. However, current interventions have limited impact on behavioral outcomes among SMY. Moreover, quality assessments revealed that existing interventions were either weak or moderate, highlighting the need for additional research and culturally targeted TDV interventions.Discussion/Conclusion. Implications for future intervention development regarding measurement, recruiting and community partnership, institutional review board issues, improving behavioral outcomes, addressing unique risk factors, cultural targeting, intervention design, and methodological approaches are described.

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Section: Recommendations and Implications For Future Intervention Dev...mentioning

confidence: 99%

Section: Recommendations and Implications For Future Intervention Dev...mentioning

confidence: 99%

Teen dating violence interventions for sexual minority youth: A scoping review

Smith

Singer

Jann

et al. 2022

Preprint

View full text Add to dashboard Cite

show abstract

“…The formation and implementation of the PAB is described in detail in a companion manuscript [9]. Briefly, the PAB was formed in 2019 with 18 members (9 female and 9male) aged 11-17 years; 73% were from an underrepresented racial/ethnic minority group.…”

Section: Pediatric Advisory Board (Pab)mentioning

confidence: 99%

Views and experiences of youth participants in a pediatric advisory board for human subjects research

D’Souza

Orellana

Riggan

et al. 2021

J. Clin. Trans. Sci.

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“…This agency often develops into a sense of stewardship and responsibility toward the health of their peers and their community ( 3 ). Engaging young people in designing research also increases recruitment of young people from diverse populations, fosters youth-friendly messaging, and increases youth research participation ( 4 , 5 ). Academic researchers who include youth also report an increased commitment, inspiration, and pride about their projects ( 6 ).…”

Section: Introductionmentioning

confidence: 99%

Through the looking glass: empowering youth community advisory boards in Tanzania as a sustainable youth engagement model to inform policy and practice

Chow,

Goi,

Salm

et al. 2024

Front. Public Health

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More young people are living in the world than ever before, 90% of whom reside in low and middle income countries (LMICs). To address their needs, it is critical to have sustainable youth engagement when determining policy and to advance effective implementation of youth-focused interventions. Youth Community Advisory Boards (CABs) are a sustainable mechanism to achieve this goal. This paper describes engagement with youth CAB members across four locations in Tanzania. To set youth CAB meeting agendas and priorities, we asked youth CAB members to write (using free text) the top five challenges faced by young people in their communities (highest to lower priority). The Google Forms survey link was presented at the May 2023 youth CAB meeting and disseminated through WhatsApp. The survey was completed by smartphone, tablet, or paper provided to the youth liaison for data entry. Results were translated from Swahili to English and coded using excel. Findings were then presented back to the youth CABs at the September 2023 meeting. At that meeting, youth CAB members were then asked to write (free text) potential solutions to the most commonly described challenges. The surveys had response rates of 90% (84/93) for challenges and 78% (71/93) for solutions. The number one reported challenge was unemployment and financial instability (45%). Gender based violence (13%), sexual reproductive health issues (8%), and alcohol and drug use (8%) were in the top four both by priority and frequency of report. Other important challenges included physical and mental health, malnutrition, relationships, education, and societal and environmental norms, among others. Solutions included job creation, improved education, expanded legal systems, youth-friendly health care services, and increased social support through peer networks and community support. The National Accelerated Action and Investment Agenda for Adolescent Health and Wellbeing (NAIA-AHW) 2021/22-2024/25 includes most, but not all, of these top challenges and solutions. Ensuring young people have a seat at the policy table is critical to effective youth-empowerment in health and other related programs. Including a youth CAB member to represent this collective in youth-related government activities is a sustainable model to achieve this goal.

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Creating a pediatric advisory board for engaging youth in pediatric health research: A case study

Abstract: This version may be subject to change during the production process.

Cited by 7 publications

References 8 publications

Teen dating violence interventions for sexual minority youth: A scoping review

Teen dating violence interventions for sexual minority youth: A scoping review

Views and experiences of youth participants in a pediatric advisory board for human subjects research

Through the looking glass: empowering youth community advisory boards in Tanzania as a sustainable youth engagement model to inform policy and practice

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