COVID-19–Related Employment Disruptions and Increased Financial Burden Among Survivors of Adolescent and Young Adult Cancer

Waters, Austin R.; Kaddas, Heydon K.; Berghuijs, Karely M van Thiel; Lopez, Perla L. Vaca; Warner, Echo L.; Ou, Judy Y.; Ramsay, Joemy M.; Palmer, Alexandra; Ray, Nicole; Tsukamoto, Tomoko; Fair, Douglas; Lewis, Mark A.; Linder, Lauri; Gill, David; Kirchhoff, Anne C.

doi:10.1089/jayao.2022.0099

Cited by 2 publications

(3 citation statements)

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“…Economic challenges emerging from temporary work stoppages during treatment, and even permanent exit from the workforce, become more pronounced in the face of the pandemic. 19 – 21 The disparity between the costs of home care and that of institutional medical care might have led those with economic vulnerabilities to opt for the former. 22 A resultant concern is a potential decline in end-of-life care quality.…”

Section: Discussionmentioning

confidence: 99%

Impact of the COVID-19 Pandemic on Cancer Death Locations in Japan: An Analysis of Excess Mortality Through February 2023

Nomura,

Nishio,

Abe

et al. 2024

Journal of Epidemiology

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Background: The novel coronavirus disease 2019 (COVID-19) pandemic has significantly impacted end-of-life decisions for cancer patients in Japan, with disparities existing between preferred and actual care settings. Our study investigates the potential shifts in cancer death locations during the pandemic and if there were excess cancer deaths. Methods: Utilizing national mortality data from the Ministry of Health, Labour and Welfare from January 2012 to February 2023, we identified cancer deaths using International Classification of Disease, 10 th revision codes. We assessed death locations, including medical institutions, nursing facilities, and homes. The Farrington algorithm was employed to estimate expected death counts, and the differences between observed and expected counts were denoted as excess deaths. Results: From January 2018 to February 2023, there was consistently increase in the weekly observed cancer deaths. The presence of a definitive excess during the pandemic period remains uncertain. The percentage of deaths in medical institutions declined from 83.3% to 70.1%, while home deaths increased from 12.1% to 22.9%. Between April 2020 and February 2023, deaths in medical institutions frequently fell below the 95% prediction lower limit. Home deaths consistently exceeded the 95% prediction upper limit, with significant excess deaths reported annually. Conclusion: Our study found a shift in cancer death locations from medical institutions to homes in Japan during the COVID-19 pandemic. Our study did not confirm an overall increase in cancer deaths during this period. As with global trends, the profound shift from hospitals to homes in Japan calls for a comprehensive exploration to grasp the pandemic's multifaceted impact on end-of-life cancer care decisions.

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Section: Discussionmentioning

confidence: 99%

Impact of the COVID-19 Pandemic on Cancer Death Locations in Japan: An Analysis of Excess Mortality Through February 2023

Nomura,

Nishio,

Abe

et al. 2024

Journal of Epidemiology

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“…A systematic review assessing the prevalence of cancer‐related financial burden found that nearly half of cancer survivors experienced some form of financial burden 2 . Further recent literature suggests that the prevalence of financial burden among cancer survivors is likely even higher following the economic impact of the COVID‐19 lockdowns 3,4 …”

Section: Introductionmentioning

confidence: 99%

“…2 Further recent literature suggests that the prevalence of financial burden among cancer survivors is likely even higher following the economic impact of the COVID-19 lockdowns. 3,4 As a result of cancer-related financial burden, survivors often engage in online crowdfunding on websites, such as GoFun dMe. com, to raise money to pay for their healthcare and living expenses during and after treatment.…”

Section: Introductionmentioning

confidence: 99%

LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy

Waters,

Easterly,

Turner

et al. 2024

Cancer Medicine

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BackgroundEmerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non‐LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost‐coping behaviors such as crowdfunding is understudied.MethodsWe aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community‐engaged and technology‐based methods. Crowdfunding campaigns were web‐scraped from GoFundMe and classified as cancer‐related and LGBTQ+ or non‐LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy.ResultsA total of N = 188,342 active cancer‐related crowdfunding campaigns were web‐scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019–2022), LGBTQ+ campaigns raised $1608 (95% CI: −2139, −1077) less than non‐LGBTQ+ campaigns. LGBTQ+ campaigns with low (26–45 donors), moderate (46–87 donors), and high (88–240 donors) online reach raised on average $1152 (95% CI: −$1589, −$716), $1050 (95% CI: −$1737, −$364), and $2655 (95% CI: −$4312, −$998) less than non‐LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti‐LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI: −2640, −1182) less than non‐LGBTQ+ campaigns from the same states.Conclusions and RelevanceOur findings revealed LGBTQ+ inequity in cancer‐related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non‐LGBTQ+ cancer survivors—potentially widening existing economic inequities.

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COVID-19–Related Employment Disruptions and Increased Financial Burden Among Survivors of Adolescent and Young Adult Cancer

Cited by 2 publications

References 33 publications

Impact of the COVID-19 Pandemic on Cancer Death Locations in Japan: An Analysis of Excess Mortality Through February 2023

Impact of the COVID-19 Pandemic on Cancer Death Locations in Japan: An Analysis of Excess Mortality Through February 2023

LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy

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