COVID-19: Public and patient involvement, now more than ever

Murphy, Edel; Tierney, Edel; Shé, Éidín Ní; Killilea, Martha; Donaghey, Casey; Daly, Anne; Roche, M.; Loughlin, Deirdre Mac; Dinneen, Séan F.

doi:10.12688/hrbopenres.13067.1

Cited by 34 publications

(38 citation statements)

References 14 publications

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“…Notably missing from Twitter and the newspaper articles were the direct insights into these changes from older people themselves. Their exclusion is aligned to a broader decrease in patient and public participation in research and policy that has occurred during the pandemic [11,75]. Recognising this gap, organisations such as the British Geriatrics Society have called for the inclusion of older people in COVID-19 research [76].…”

Section: Limitationsmentioning

confidence: 99%

New Ways of Working? A Rapid Exploration of Emerging Evidence Regarding the Care of Older People during COVID19

Shé

O’Donnell

O’Shea

et al. 2020

IJERPH

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Health and social care staff have had to quickly adapt, respond and improve teamwork, as a response to the COVID-19 pandemic. Our objective was to rapidly summarize the emerging evidence of new ways of working in the care of older people during this period. We conducted an exploration of the emerging evidence within the timeframe of 1 March 2020 to 11 May 2020. To capture a broad perspective, we undertook thematic analysis of Twitter data which was extracted through a broad search for new ways of working in health and social care. For a more in-depth focus on the health and social care of older people, we undertook a systematic scoping of newspapers using the Nexis UK database. We undertook a validation workshop with members of the interprofessional working group of the Irish National Integrated Care Programme for Older People, and with researchers. A total of 317 tweets were extracted related to six new ways of working. There was evidence of using telehealth to provide ongoing care to patients; interprofessional work; team meetings using online platforms; trust and collaboration within teams; as well as teams feeling empowered to change at a local level. 34 newspaper articles were extracted related to new ways of working in the care of older people, originating in England (n = 17), Wales (n = 6), Scotland (n = 6), Ireland (n = 4) and Germany (n = 1). Four main themes were captured that focused on role expansion, innovations in communication, environmental restructuring and enablement. The results of this exploration of emerging evidence show that health and social care teams can transform very rapidly. Much of the change was based on goodwill as a response to the pandemic. Further analysis of empirical evidence of changing practices should include the perspectives of older people and should capture the resources needed to sustain innovations, as well as evaluate gaps in service provision.

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Section: Limitationsmentioning

confidence: 99%

New Ways of Working? A Rapid Exploration of Emerging Evidence Regarding the Care of Older People during COVID19

Shé

O’Donnell

O’Shea

et al. 2020

IJERPH

Self Cite

View full text Add to dashboard Cite

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“…In response, patient advocates, organisations, and civil society groups in many countries have worked in overdrive, supporting their communities,2 collating information about the nature and impact of the pandemic, and urging policy makers to heed the findings34 and work collaboratively with them to develop new inclusive and equitable policies 5…”

mentioning

confidence: 99%

Healthcare decision making should be democratised

Richards¹,

Scowcroft²,

Doble³

et al. 2021

BMJ

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The covid-19 pandemic has precipitated radical changes in healthcare practices and highlighted outdated ways of working that are not fit for purpose in the digital age. It also stalled progress on shared decision making and patient and public involvement in healthcare. Early in the pandemic, well embedded structures for involvement were suddenly disrupted 1 at a time when the concerns of patients and the public could scarcely have been greater.

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“…Co-production should not be viewed as “another thing to get done,” but as a way to accomplish relevant, meaningful research ( 22 ). Now more than ever, mental health research must be driven by all who are likely to be impacted by the pandemic ( 23 ). Indeed, the pandemic has the potential to allow for the possibility for greater inclusivity and broader relevance, and can create a space for individuals with lived experience to be involved in ( 24 ).…”

Section: Reflection 2: In Responding Quickly We May Have Overlooked the Role Of Experts By Experiencementioning

confidence: 99%

Looking Back to Move Forward: Reflections on the Strengths and Challenges of the COVID-19 UK Mental Health Research Response

et al. 2021

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In the face of the COVID-19 pandemic, the swift response of mental health research funders and institutions, service providers, and academics enabled progress toward understanding the mental health consequences. Nevertheless, there remains an urgent need to understand the true extent of the short- and long-term effects of the COVID-19 pandemic on mental health, necessitating ongoing research. Although the speed with which mental health researchers have mobilized to respond to the pandemic so far is to be commended, there are valid concerns as to whether speed may have compromised the quality of our work. As the pandemic continues to evolve, we must take time to reflect on our initial research response and collectively consider how we can use this to strengthen ensuing COVID-19 mental health research and our response to future crises. Here, we offer our reflections as members of the UK mental health research community to discuss the continuing progress and persisting challenges of our COVID-19 response, which we hope can encourage reflection and discussion among the wider research community. We conclude that (1) Fragmentation in our infrastructure has challenged the efficient, effective and equitable deployment of resources, (2) In responding quickly, we may have overlooked the role of experts by experience, (3) Robust and open methods may have been compromised by speedy responses, and (4) This pandemic may exacerbate existing issues of inequality in our workforce.

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COVID-19: Public and patient involvement, now more than ever

Cited by 34 publications

References 14 publications

New Ways of Working? A Rapid Exploration of Emerging Evidence Regarding the Care of Older People during COVID19

New Ways of Working? A Rapid Exploration of Emerging Evidence Regarding the Care of Older People during COVID19

Healthcare decision making should be democratised

Looking Back to Move Forward: Reflections on the Strengths and Challenges of the COVID-19 UK Mental Health Research Response

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