Abstract:The COVID-19 era exposes what was already a crisis in the medical profession: structural racism, ageism, sexism, classism, and ableism resulting in healthcare disparities for Persons with Disabilities (PWD). Early research highlights these disparities, but we do not yet know the full impact of this pandemic on PWD. Over the last 20 years, many medical schools have attempted to develop disability competency trainings, but discrimination and inequities remain, resulting in a pervasive distrust of medicine by the… Show more
“…This lack of support can also be seen in health care as sociocultural issues resulting in the fact that persons with disabilities do not receive counselling about sexuality as some professionals consider it a private matter [ 10 ]. In terms of the importance of sex counselling, we agree with other studies that highlight the importance of sex education for patients but also for the partner, family and even the caregiver as a basis for PD to maintain appropriate sexual behaviour and avoid risky behaviour [ 49 ]. In addition, a new figure has emerged, that of the sex therapist, who will try to respond to the specific needs of PD.…”
(1) Background: Disability is a dynamic interaction between a person’s health conditions and personal and environmental factors. Disability is an evolving concept, which can be improved by intervening in the barriers that prevent disabled people from functioning in their daily life and enjoying a satisfactory sexual life. Sexuality is an important dimension of life that affects people’s well-being. The aim was to describe and understand the experiences of primary care nurses regarding care for the sexuality of persons with disabilities. (2) Methods: A descriptive qualitative study was designed. Twenty-one in-depth interviews were conducted with nurses. A thematic analysis was used to analyse the data. (3) Results: three main themes emerged: (1) Initial assessment of the patient: competencies for a nurse-patient therapeutic relationship; (2) A comprehensive approach to nursing care for persons with disabilities: the importance of sexuality; and (3) Sex counselling in nursing consultations. (4) Conclusions: Nurses have the skills to develop a good therapeutic relationship with patients. Planning of nursing interventions is required in order to promote individual coping, emotional support, and sex education. Sex counselling is essential to promote autonomy, with the figure of the sex therapist emerging for this purpose.
“…This lack of support can also be seen in health care as sociocultural issues resulting in the fact that persons with disabilities do not receive counselling about sexuality as some professionals consider it a private matter [ 10 ]. In terms of the importance of sex counselling, we agree with other studies that highlight the importance of sex education for patients but also for the partner, family and even the caregiver as a basis for PD to maintain appropriate sexual behaviour and avoid risky behaviour [ 49 ]. In addition, a new figure has emerged, that of the sex therapist, who will try to respond to the specific needs of PD.…”
(1) Background: Disability is a dynamic interaction between a person’s health conditions and personal and environmental factors. Disability is an evolving concept, which can be improved by intervening in the barriers that prevent disabled people from functioning in their daily life and enjoying a satisfactory sexual life. Sexuality is an important dimension of life that affects people’s well-being. The aim was to describe and understand the experiences of primary care nurses regarding care for the sexuality of persons with disabilities. (2) Methods: A descriptive qualitative study was designed. Twenty-one in-depth interviews were conducted with nurses. A thematic analysis was used to analyse the data. (3) Results: three main themes emerged: (1) Initial assessment of the patient: competencies for a nurse-patient therapeutic relationship; (2) A comprehensive approach to nursing care for persons with disabilities: the importance of sexuality; and (3) Sex counselling in nursing consultations. (4) Conclusions: Nurses have the skills to develop a good therapeutic relationship with patients. Planning of nursing interventions is required in order to promote individual coping, emotional support, and sex education. Sex counselling is essential to promote autonomy, with the figure of the sex therapist emerging for this purpose.
“…Even as this workshop enhanced healthcare students' attitudes of CWPD, we consider this but a rst step in the development of a curriculum that properly prepares students to provide quality, compassionate care for patients with all forms of disabilities. Our work is aligned with the transformative potential of "disability-conscious medical education, training, and practice" [29], which draws on insights from intersectional disability justice activism. However, we do not address the many other forms of disability, including cognitive or emotional.…”
Introduction: Children with physical disabilities (CWPD) have historically experienced inadequate and insensitive care across medical settings. A lack of comfort and knowledge about CWPD is prevalent amongst healthcare provider trainees. We developed a new, readily distributable educational resource about CWPD for healthcare professions students and conducted a preliminary study to determine its efficacy in addressing student attitudes towards CWPD.Methods: We collaborated with a working group of stakeholders in the disability community to develop an educational resource for healthcare students. We developed 9 short video clips (with a cumulative duration of 27 minutes) of a primary care visit using simulated participants and embedded them into a 50-minute workshop. We conducted a preliminary study of the workshop for volunteer healthcare professions students using synchronous videoconferencing. Participating students completed assessments at baseline and after the workshop. Our primary outcome measure was change in the Attitudes to Disabled Persons - Original (ATDP-O) scale.Results: Forty-nine healthcare students participated in the training session: 29 (59%) from medicine, and 21 (41%) from physician assistant or nursing programs. The materials were easy to deliver virtually. The workshop resulted in measurable changes in attitudes regarding physical disabilities, with improvement in ATDP-O scores between baseline (M=31.2, SD=8.9) and endpoint (M=34.8, SD=10.1) scores (t(49)= 3.28, p = 0.002, Cohen’s d = 0.38). Conclusions: This video-based educational resource on CWPD is readily distributable and can be delivered virtually as a workshop. In our preliminary study, the workshop improved healthcare students’ perceptions and attitudes toward CWPDs. All materials are available to view, download, or adapt by end-use instructors.
“…1 Despite this, only a fraction of medical schools report curricula on disability, and research demonstrates strong bias among physicians. 2,3 Given the current lack of requirements or guidelines on disability training for physicians from governing bodies in medicine, we believe that trainees should advocate for disability inclusion and representation in medical education. As medical students working toward change at our institution, we recommend the following actionable steps:…”
To the Editor: The quality and safety movement has brought necessary attention to health systems science as a third pillar of medical training alongside the basic and clinical sciences. The American Medical Association's health systems science framework 1 includes advocacy as a key health care process, underscoring the need for physicians to advocate for patients by improving access to care, using community and governmental resources, addressing health disparities, and influencing health policy. However, undergraduate medical education curricula have limited capacity for additional advocacy training. Student-run extracurricular organizations, such as Vanderbilt University School of Medicine's Social Mission Committee, provide an opportunity to fill this gap. The goal of the Social Mission Committee is to advance the social mission of our medical school by empowering students, faculty, and staff to actively partner with our communities to achieve health equity.
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