COVID-19 and Biomedical Experts: When Epistemic Authority is (Probably) Not Enough

Pietrini, Pietro; Lavazza, Andrea; Farina, Mirko

doi:10.1007/s11673-021-10157-5

Cited by 9 publications

(1 citation statement)

References 32 publications

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“…Public health and policy measures aimed at containing the pandemic, when not carefully planned, can result in negative health and socio‐economic consequences for populations who are made vulnerable by systems, such as children with NDD‐MC and their families (Pietrini et al, 2022). Care coordination is one intervention to address these inequities; however, little is known regarding the impact of COVID‐19 pandemic restrictions on care coordination (Jesus et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

Currie

Materula

Gall

et al. 2023

Child

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Background The COVID‐19 pandemic and subsequent public health restrictions created significant challenges for children with neurodevelopmental disabilities with medical complexity and their caregivers including restrictions in care coordination for children and their families. Care coordination enhances families' skills in accessing and coordinating medical, education and disability care across sectors and systems. Objective This study examined the implications of pandemic restrictions on care coordination from caregiver perspectives. These experiences can inform emergency preparedness planning and recovery strategies. Method A qualitative descriptive design was utilized to explore and describe the experience of caregivers of children with neurodevelopmental disabilities and medical complexity. Nineteen caregivers were interviewed about their experience with care coordination during the pandemic. Findings Caregiver experiences of care coordination during the pandemic highlighted the importance of care coordination during a public health emergency. Two themes emerged: (1) disruptions to care coordination from initial COVID‐19 restrictions leading to lack of access to supports and services, increasing level of need, and impacts of disruption for caregivers and children; and (2) adaptation and responsiveness to COVID‐19 restrictions by advocating for families and managing uncertainties. Recommendations Recommendations include recognition of care coordination as a protective factor, designation as an essential service and sustained or increased funding for care coordination during emergencies. Families should be engaged in identifying care needs during care coordination, including during public health emergencies.

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Section: Introductionmentioning

confidence: 99%

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

Currie

Materula

Gall

et al. 2023

Child

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AI and society: a virtue ethics approach

et al. 2022

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Infosphere, Datafication, and Decision-Making Processes in the AI Era

Lavazza

Farina

2023

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A recent interpretation of artificial intelligence (AI) (Floridi 2013 , 2022 ) suggests that the implementation of AI demands the investigation of the binding conditions that make it possible to build and integrate artifacts into our lived world. Such artifacts can successfully interact with the world because our environment has been designed to be compatible with intelligent machines (such as robots). As the use of AI becomes ubiquitous in society, possibly leading to the formation of increasingly intelligent bio-technological unions, there will likely be a coexistence of a plethora of micro-environments wrapped and tailored around humans and basic robots. The key element of this pervasive process will be the capacity to integrate biological realms in an infosphere suitable for the implementation of AI technologies. This process will require extensive datafication. This is because data is the basis of the logical-mathematical codes and models that drive and guide AI. This process will have huge consequences on workplaces, on workers, as well as on the decision-making processes required for the functioning of future societies. In this paper we will offer a comprehensive reflection on the moral and social implications of datafication as well as a set of considerations about its desirability, which will be informed by the following insights: (1) full protection of privacy may become structurally impossible, thus leading to undesirable forms of political and social control; (2) worker’s freedom may be reduced; (3) human creativity, imagination, and even divergence from AI logic might be channeled and possibly discouraged; (4) there will likely be a push towards efficiency and instrumental reason, which will become preeminent in production lines as well as in society.

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COVID-19 and Biomedical Experts: When Epistemic Authority is (Probably) Not Enough

Cited by 9 publications

References 32 publications

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

AI and society: a virtue ethics approach

Infosphere, Datafication, and Decision-Making Processes in the AI Era

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