COVID‐19 and Autism Research: Perspectives from Around the Globe

Amaral, David G.; Vries, Petrus J. de

doi:10.1002/aur.2329

Cited by 64 publications

(69 citation statements)

References 37 publications

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“…An Autistica live article indicates that global changes required by the pandemic can lead to better understanding and accommodation for autistic people in the medium and long-term, including more flexible and empathetic workplaces; improved access to resources, events, and therapeutic support that can be offered remotely; and embracing innovative and more diverse teaching and learning opportunities (https://www.autistica.org.uk/news/ world-after-coronavirus). More lessons will be learned and innovations developed in the coming months for autistic individuals and their families [5]. In the long-term, this pandemic could foster resilience not only for the autism communities and the stakeholders, but also for the professionals who provide care.…”

Section: Technology To Facilitate Coordinated Multidisciplinary Carementioning

confidence: 99%

“…Although all autistic individuals and their families require some forms of support [ 4 ], care needs vary considerably across individuals and across the lifespan. The new coronavirus disease (COVID-19) pandemic has changed how our local community and global society operate, impacting autistic individuals and their families, as well as autism clinical services and research progress [ 5 ]. An early analysis of globally federated electronic medical record data (through May 14, 2020) shows that individuals with intellectual and developmental disabilities (IDD, including autism) have higher prevalence of specific physical comorbidities associated with poorer COVID-19 outcomes.…”

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confidence: 99%

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Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

et al. 2020

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The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts.

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Section: Technology To Facilitate Coordinated Multidisciplinary Carementioning

confidence: 99%

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confidence: 99%

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

et al. 2020

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“…After the adoption of mitigation strategies characterized by general services lockdown, both public and local initiatives have recognized the needs of the most fragile individuals and specific supportive services have been developed (Boldrini et al, 2020 ; Leocani et al, 2020 ). Nonetheless, greater efforts are needed to meet the needs of the families of children with disability (Amaral and de Vries, 2020 ).…”

Section: The Fragile Condition Of Families Of Children With Disabilitmentioning

confidence: 99%

Alone With the Kids: Tele-Medicine for Children With Special Healthcare Needs During COVID-19 Emergency

Provenzi¹,

Grumi²,

Borgatti

2020

Front. Psychol.

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“…Some studies have been recently published on ASD and COVID-19-related issues regarding supporting recommendations for lockdown period ( Eshraghi et al, 2020 ; Narzisi, 2020a ; Smile, 2020 ), distance-based supporting challenges ( Ameis, Lai, Mulsant, & Szatmari, 2020 ; Narzisi, 2020b ; Stenhoff, Pennington, & Tapp, 2020 ) and world wide perception of ASD researchers ( Amaral & de Vries, 2020 ; ). Also, a number of observational studies have been conducted in order to explore changes in mental and physical status of ASD individuals and their caregivers during this period.…”

Section: Introductionmentioning

confidence: 99%

COVID-19 pandemic effects in people with Autism Spectrum Disorder and their caregivers: Evaluation of social distancing and lockdown impact on mental health and general status

Lugo‐Marín

Gisbert

Setien-Ramos

et al. 2021

Research in Autism Spectrum Disorders

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Among the difficulties associated with Autism Spectrum Disorder (ASD) are those related to adaptation to changes and new situations, as well as anxious-depressive symptoms frequently related to excessive environmental requirements. The main objective of this research is to study the psychological impact of the lockdown due to the social emergency situation (COVID-19) in children/adolescents and adults diagnosed with ASD. Participants were 37 caregivers of children/adolescents with ASD, also 35 ASD adults and 32 informants. Evaluation was conducted through a web survey system and included standardized clinical questionnaires (CBCL and SCL-90-R), which were compared with results before lockdown start, and a brief self-reported survey addressing the subjective perception of changes in daily functioning areas. The results revealed a reduction of psychopathological symptoms in both age groups, but only reaching statistical significance in the adult group, except for Somatization, Anxiety, and Obsessive-Compulsive domains. ASD severity Level 2 showed greater improvement after lockdown onset in the children/adolescent group when compared to ASD Level 1 participants. Younger adults (18-25 yoa) reported greater improvement than older adults (=>25 yoa). Survey results indicate an improvement of feeding quality and a reduction in the number of social initiations during the lockdown. Adult ASD participants perceived a decrease in stress levels after the lockdown onset, whereas caregivers reported higher stress levels at the same point in both age groups. Limitations included the small number of participants and a heterogeneous evaluation window between measures. Pyschopathological status after two months of social distancing and lockdown seems to improve in ASD young adult population.

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COVID‐19 and Autism Research: Perspectives from Around the Globe

Cited by 64 publications

References 37 publications

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

Alone With the Kids: Tele-Medicine for Children With Special Healthcare Needs During COVID-19 Emergency

COVID-19 pandemic effects in people with Autism Spectrum Disorder and their caregivers: Evaluation of social distancing and lockdown impact on mental health and general status

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