Course of Social Participation in the First 2 Years After Stroke and Its Associations With Demographic and Stroke-Related Factors

Verberne, Daan P J; Post, Marcel W M; Köhler, Sebastian; Carey, Leeanne; Visser-Meily, Johanna M A; Heugten, Caroline van

doi:10.1177/1545968318796341

Cited by 40 publications

(53 citation statements)

References 54 publications

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“…The lack of an association in perceived frequency of participation and age in this sample is in contrast to other studies that have found that older age is associated with more participation restrictions compared to those who are younger (27, 28). For example, researchers in the Netherlands found that stroke survivors age 70 and above reported greater participation restrictions after 1 year than those below age 70.…”

Section: Discussioncontrasting

confidence: 99%

Participation in Younger and Older Adults Post-stroke: Frequency, Importance, and Desirability of Engagement in Activities

et al. 2019

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Purpose: To characterize and compare frequency and subjective dimensions of post-stroke participation in younger (<65) and older adults (>age 65), in social, productivity and leisure activities, 6 months post-inpatient rehabilitation. Secondary aims included exploration of demographic and clinical factors influencing desire for increased participation and comparison of two measures of participation.Methods: A prospective cohort study of people with stroke (n = 99) who were identified during their inpatient rehabilitation stay and followed-up 6 months post-discharge with telephone interviews using two self-report participation measures. The Stroke Impact Participation subscale (SIS-P) measured the frequency of perceived limitations in social, leisure, productive activities and extent of stroke recovery. The Community Participation Indicators (CPI) examined activity frequency, importance, and desire for increased activity engagement. Descriptive statistics were used to summarize demographic variables and characterize SIS-P and CPI items. Differences between age groups on individual items were examined. Associations between measures and demographic variables were explored.Results: Both groups reported a wide variation in participation restrictions that was not associated with stroke severity and weakly associated with discharge functional status (rho = 0.20–0.35). There were no significant differences between age groups in CPI frequency (for 18/19 items), or the SIS-P. However, there was a trend toward more participation restrictions on the SIS-P among those <65 (p = 0.07). Younger adults (n = 46; median age = 53) were significantly more likely to indicate that they were not doing selected activities enough on the CPI, compared with older adults (n = 56; median age = 76). While age and ethnicity were independently associated with some activities, it was not associated with other activities. The CPI and SIS-P were moderately related at a correlation of rho = 0.54, p < 0.001.Conclusion: The CPI demonstrated value and utility in examining subjective perspectives of activity importance and desire for change for people who are 6 months post-stroke. Although the CPI and SIS-P are moderately related, subjective appraisal of participation in selected individual activities (CPI) better distinguished between age groups and provided unique and distinct information from the SIS-P.

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Section: Discussioncontrasting

confidence: 99%

Participation in Younger and Older Adults Post-stroke: Frequency, Importance, and Desirability of Engagement in Activities

et al. 2019

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“…Stroke impacts individuals not only due to its lethality, but also with respect to negative consequences in terms of changes in functional performance and the social life of survivors [1]. Despite advances in knowledge regarding the epidemiology, etiology, risk factors and treatment of stroke, information about life after this event remains limited [2,3], as well as in relation to environmental factors and the social participation of stroke victims living in the community [3].…”

Section: Introductionmentioning

confidence: 99%

Investigating predictors of community integration in individuals after stroke in a residential setting: A longitutinal study

et al. 2020

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To identify potential predictors of community integration in individuals after stroke using a residential setting-based strategy. MethodA prospective cohort of post-stroke individuals was recruited from the Stroke Unit of the Roberto Santos General Hospital (UAVC-HGRS). All included individuals were aged over 18 years, received a diagnosis of ischemic stroke confirmed by neuroimaging and resided in the city of Salvador (Bahia, Brazil). Following discharge from the stroke unit, the individuals themselves, or their responsible parties, were contacted by telephone to schedule a home visit no less than three months after discharge. All subjects were examined in their homes, at which time the Community Integration Questionnaire (CIQ) was also applied. A robust linear regression model was used to assess community reintegration using CIQ score as the outcome variable. ResultsA total of 124 individuals effectively fulfilled the eligibility criteria: 51.6% were females, the median (IQR) age was 63(53-69) years, 82.3% were non-white, 53.2% were married, the median (IQR) of years of schooling was 6 (4-12) and family income averaged two minimum monthly wages. Investigated individuals presented a median (IQR) NIH Stroke Scale (NIHSS) score of 7 (4-12). Multivariate linear regression identified the following independent predictors of community integration: age (β = -0.095; 95% CI = -0.165 to -0.025; p = 0.008), diabetes mellitus (β = -2.348; 95% CI = -4.125 to -0.571; p = 0.010), smoking habit (β = -2.951; 95% CI = -5.081 to -0.821; p = 0.007), functional capacity upon hospital discharge (β = 0.168; 95% CI = 0.093 to 0.242; p = <0.001) and stroke severity (β = -0.163; CI = -0.318 to -0.009); p = 0.038).

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“…Stroke is a major health problem due to high prevalence, long-lasting disability [1] and social impact [2]. Even though progress has been made in diagnostics and acute treatment, a stroke often has a significant negative impact on a person's health and frequently leads to a wide range of activity limitations and participation restrictions, even in a long-term perspective [3,4]. Hence, active rehabilitation early after a stroke is recommended [5,6].…”

Section: Introductionmentioning

confidence: 99%

Factors related to met needs for rehabilitation 6 years after stroke

et al. 2020

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Introduction Research on stroke rehabilitation mainly concerns the first year of recovery, and there is a lack of knowledge regarding long-term rehabilitation needs and associated factors. Aim The aim was to explore the perceived needs for rehabilitation services of people six years after stroke and factors associated with having rehabilitation services needs met. Methods The study was a 6-year follow up of a prospective study on the rehabilitation process after stroke. Data on perceived needs for rehabilitation, personal factors, disease specific factors, and patient-reported disability were collected through face-to-face interviews in the participants' homes. Logistic regression models were created to explore associations between having rehabilitation services needs met in 11 problem areas (dependent variable) and the independent variables: involvement in decisions regarding care and treatment, sex, age, sense of coherence, self-defined level of private financing, stroke severity, frequency of social everyday activities, perceived impact of stroke, and life satisfaction. Results The 121 participants had a mean age of 63 years at stroke onset and 58% were men. In all problem areas the majority (53-88%) reported having needs met at six years after stroke, however 47% reported unmet needs regarding fatigue and 45% regarding mobility. A lower perceived impact on participation was found to be associated with having rehabilitation services needs met in seven problem areas: mobility, falls, pain, fatigue, concentration, memory, and sight. The strongest association for having needs met was found for the independent variable, involvement in care and treatment, within the three problem areas mobility, falls, and speaking.

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Course of Social Participation in the First 2 Years After Stroke and Its Associations With Demographic and Stroke-Related Factors

Cited by 40 publications

References 54 publications

Participation in Younger and Older Adults Post-stroke: Frequency, Importance, and Desirability of Engagement in Activities

Participation in Younger and Older Adults Post-stroke: Frequency, Importance, and Desirability of Engagement in Activities

Investigating predictors of community integration in individuals after stroke in a residential setting: A longitutinal study

Factors related to met needs for rehabilitation 6 years after stroke

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