Correlations in health status between estimates of families of people with amyotrophic lateral sclerosis and estimates of staff

Abstract

Even though the staff's estimates of participants were roughly equivalent to their self-estimates, there were some differences. This result calls attention to the importance of working in teams in which different professional roles are combined and integrated, making it possible to form a holistic view of the situation of each family. A concern overlooked by one member of staff might be covered by another, and different focuses on the family may give a better composite picture of their life situation, which could lead to better support to the family.

Every Second Counts

“…However, nurses' primary duties are to provide information, give advice and support based on a holistic approach, and encourage families to be involved in, for example, the end-of-life care. 32 Research 33 shows different correlations between health professionals and patients' estimation of well-being. Nurses' estimation of patients' well-being correlated better than the physicians'.…”

Communicative Participation in People with Amyotrophic Lateral Sclerosis

“…The scale has shown strong internal consistency and construct validity, and has been found to correlate with objective measures of muscle strength and pulmonary function and quality-of-life measures [26], although a more recent investigation of the scale showed that it might benefit from a modification of its response options to increase sensitivity across the spectrum of ALS progression [27]. The ALSFRS-R was used in a Swedish translation similar to a version used by Ozanne and Persson [28]. Functions according to the ALSFRS-R were assessed together with the participant.…”