Correlates of Dominicans’ Identification of Cancer as a Worrisome Health Problem

Sepulveda-Pacsi, Alsacia L.; Bakken, Suzanne

doi:10.1007/s10903-016-0509-9

Cited by 7 publications

(6 citation statements)

References 40 publications

(41 reference statements)

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“…These findings may not reflect women’s experiences at smaller community clinics or in rural areas. In addition, we previously reported a high level of breast cancer worry in the catchment community of the current study, which included regularly screened women with pro‐screening attitudes. Thus, the current study results, particularly in terms of interest in following a more intensive breast cancer screening, may not describe the full breadth of women’s perspectives, including those of women with a more limited screening history.…”

Section: Discussionmentioning

confidence: 97%

“You probably can’t feel as safe as normal women”: Hispanic women’s reactions to breast density notification

Pacsi‐Sepulveda

Shelton

Rodríguez

et al. 2019

Cancer

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Background Patient advocacy has led to state‐level legislative mandates for the release of personal mammographic breast density information to women undergoing screening mammography. More research is needed to understand the impact of this information on women’s perceptions and mammography screening behavior. Methods Semistructured interviews were conducted in English and Spanish with 24 self‐identified Hispanic women who had undergone at least 1 mammogram since breast density notification was enacted in New York State. The women ranged in age from 43 to 63 years. Women were asked about their understanding and perceptions of the communication of New York State‐mandated breast density information, and any actions they have taken or would take in response to this information. A content analysis of the qualitative data from the translated and transcribed interviews was conducted. Results The majority of participants had no prior knowledge of breast density and expressed confusion and apprehension regarding the meaning of dense breasts when presented with the notification information. Many participants understood having dense breasts to be a serious and abnormal condition, and reported feelings of worry and vulnerability. Participants mostly expressed a strong interest in learning about breast density and obtaining additional and more frequent breast cancer screening tests. These behavioral intentions were consistent with participants’ overall favorable view of breast cancer screening and a belief that their faith, as well as regular screening, can help to protect them from breast cancer morbidity and mortality. Conclusions Hispanic women conveyed proactive breast cancer screening intentions in response to breast density notification, despite inadequate comprehension of this information and negative emotional responses.

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Section: Discussionmentioning

confidence: 97%

“You probably can’t feel as safe as normal women”: Hispanic women’s reactions to breast density notification

Pacsi‐Sepulveda

Shelton

Rodríguez

et al. 2019

Cancer

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“…We approached the design, implementation, evaluation, and maintenance of our precision medicine curriculum using principles of Community‐based Participatory Research (CBPR) (Figure 1) (Israel, Schulz, Parker, Becker & Community‐Campus Partnerships for, 2001; Skinner et al, 2015). Our initial steps included strategic partnering with a local non‐profit community‐based organization, the Northern Manhattan Improvement Corporation (NMIC) that serves the Washington Heights and Inwood communities of Upper Manhattan to first explore community constituent health concerns overall and specifically related to cancer, a topic previously found to be of concern to the community (Sepulveda‐Pacsi & Bakken, 2017). As our second step, we conducted an assessment of educational needs and learning preferences via quantitative surveys and focus groups among 497 adult community members (18+ years) accessing the services of NMIC, our community‐based organization partner (Hillyer et al, 2017).…”

Section: Methodsmentioning

confidence: 99%

Community education to enhance the more equitable use of precision medicine in Northern Manhattan

Hillyer

Schmitt

Reyes

et al. 2020

Journal of Genetic Counseling

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Focusing screening and treatment to those most likely to benefit is the promise of precision medicine but inequitable distribution of precision medicine innovations may exacerbate health disparities. We investigated whether complex genomic concepts can be successfully communicated to diverse populations. Incorporating principles of Community‐based Participatory Research, we created a precision medicine curriculum tailored to the needs of our predominantly Hispanic community. We administered the curriculum over 26 months, assessed pre‐ and post‐test comprehension of 8 genetics‐related terms, and compared comprehension differences based on demography and health literacy. In total, 438 individuals completed pre‐/post‐test assessments. At pre‐test, 45.6% scored ≥75% across eight major constructs; 66.7% at post‐test. Comprehension increased for 7/8 terms with greatest pre/post‐test increases for ‘mutation’ (55% to 78%) and ‘sporadic’ (34% to 59%). Mean pre‐test comprehension scores (≥75%) were lower for Spanish versus. English speakers; mean post‐test scores were equivalent. No heterogeneity by demographics or health literacy was observed. We demonstrate that a brief community educational program can improve knowledge of complex genomic concepts. Interventions to increase understanding of genomic concepts underlying precision medicine are key to patients making informed treatment and prevention decisions and may lead to more equitable uptake of precision medicine initiatives.

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“…This analysis utilized data from the 2012-2013 Washington Heights/Inwood Informatics Infrastructure for Comparative Effectiveness Research (WICER) follow-up Community Health Survey study (Lee, Boden-Albala, Larson, Wilcox, & Bakken, 2014; Masterson Creber et al, 2017; Sepulveda-Pacsi & Bakken, 2017). The WICER Community Health Survey collected comprehensive sociocultural information from a convenience sample of adults (≥18 years) residing within the Washington Heights/Inwood communities of northern Manhattan (zip codes 10031, 10032, 10033, 10034, and 10040).…”

Section: Methodsmentioning

confidence: 99%

The Influence of Latino Symptom Experience on Participation in Usual Activities and Satisfaction With Participation in Social Roles

Koleck

Suero-Tejeda

Bakken

2018

Hisp Health Care Int

Self Cite

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Introduction: Little is known about the Latino symptom experience and how symptoms influence participation in usual activities and satisfaction with participation in social roles. Methods: Secondary analysis of survey data collected in community and clinic settings was conducted. Data were collected using Health-Related Quality of Life (HRQOL) 30-day items and Patient Reported Outcome Measurement System (PROMIS) symptom status scales. Descriptive statistics, univariate linear and multiple linear regression models were computed. Results: Participants (N=2,974) were primarily female and Dominican. Most surveys were completed in Spanish and in the community setting; and the clinic sample had more symptoms. In the multiple linear regression for participation in usual activities, as the number of days with symptoms increased, the number of days that poor physical or mental health influenced participation in usual activities increased. In addition, for satisfaction with participation in social roles, as the number of days with pain and levels of depression and anxiety increased, and levels of satisfaction decreased. Spanish survey administration was associated with decreased levels of satisfaction; and recruitment setting was not a significant predictor. Conclusion: The study addressed multiple knowledge gaps about the Latino symptom experience.

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Correlates of Dominicans’ Identification of Cancer as a Worrisome Health Problem

Cited by 7 publications

References 40 publications

“You probably can’t feel as safe as normal women”: Hispanic women’s reactions to breast density notification

“You probably can’t feel as safe as normal women”: Hispanic women’s reactions to breast density notification

Community education to enhance the more equitable use of precision medicine in Northern Manhattan

The Influence of Latino Symptom Experience on Participation in Usual Activities and Satisfaction With Participation in Social Roles

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