Correction to: Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services

Stahmer, Aubyn C.; Vejnoska, Sarah; Iadarola, Suzannah; Straiton, Diondra; Segovia, Francisco Reinosa; Luelmo, Paul; Morgan, Elizabeth; Lee, Hyon Soo; Javed, Asim; Bronstein, Briana; Hochheimer, Samantha; Cho, EunMi; Aranbarri, Aritz; Mandell, David S.; Hassrick, Elizabeth McGhee; Smith, Tristram; Kasari, Connie

doi:10.1007/s40615-019-00587-8

Cited by 5 publications

(3 citation statements)

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“…Although not significant, fewer children with ASD from foreign families had been previously diagnosed. Ethnic minority groups may have fewer opportunities to be diagnosed (Angell et al, 2018;Baio et al, 2018;Lemay et al, 2018) and, as stated by Stahmer et al (2019), it is often more difficult due to cultural and linguistic differences, as we experienced in our sample. In these cases, the diagnosis was also supported by qualitative information provided by teachers and natural context observations.…”

Section: Asd and Associated Sociodemographic Factorsmentioning

confidence: 74%

Autism spectrum disorder prevalence and associated sociodemographic factors in the school population: EPINED study

Morales-Hidalgo¹,

Voltas

Canals³

2021

Autism

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The autism spectrum disorder prevalence data for southern Europe seem to be lower than international reports. The objective of the Neurodevelopmental Disorders Epidemiological Research Project was to estimate the prevalence of autism spectrum disorder in a representative school sample of Tarragona, Spain. Screening was performed through parents ( N = 3727) and teachers ( N = 6894), and 781 children were individually assessed. The overall estimated prevalence was 1.53% (1.78% in preschoolers; 1.30% in primary school children), being significantly higher than the 0.83% previously registered (0.92% and 0.74%, respectively). Respectively, 4.23% and 2.85% of the children showed subclinical autism spectrum disorder. Girls showed a significantly lower prevalence in all the conditions. Severity profiles were distributed as 46% mild, 47% moderate and 7% severe. A high ratio of males (90%) and children from Eastern Europe (16%) was found among severe autism spectrum disorder. Language therapy (51%) and psychological (65%) and educational supports (65%) were given to children with autism spectrum disorder. Pharmacological treatment was only found among school-aged children (37.5%). Public schools provided more educational support (72%) than private schools (36%). The heterogeneity of autism spectrum disorder makes it difficult to determine specific associated sociodemographic factors. The results confirmed a high prevalence of autism spectrum disorder in this province, suggesting a current under-diagnosis by public health services. Lay abstract An increase in the prevalence of autism spectrum disorder has been reported around the world over the past decade. However, the prevalence data for southern Europe seem to be lower than international reports and notable methodological differences have been reported among studies. The objective of the Neurodevelopmental Disorders Epidemiological Research Project was to estimate the prevalence of autism spectrum disorder in a representative school sample of the province of Tarragona, Spain. The study included a screening procedure through parents ( N = 3727) and teachers ( N = 6894), and an individual assessment of children at risk and a comparison group ( N = 781). The overall estimated prevalence in our sample was 1.53%, being significantly higher than the 0.83% previously registered diagnoses. A total of 3.31% of the children presented subclinical characteristics of autism spectrum disorder. Girls showed a significantly lower estimated prevalence in all the conditions. Severity profiles were distributed as 46% mild, 47% moderate and 7% severe. Psychological support (65%), educational support (65%) and language therapy (51%) were given to children with autism spectrum disorder. Pharmacological treatment was only found among school-aged children (37.5%). Public schools provided more educational supports (72%) than private schools (36%). The heterogeneity of autism spectrum disorder makes it difficult to determine specific associated sociodemographic factors. The results confirmed a high prevalence of autism spectrum disorder in the province, suggesting a current under-diagnosis in public health services. In view of the results, it is important to promote early diagnosis and intervention, especially in particular groups such as girls, children with intellectual disabilities and children from immigrant families.

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Section: Asd and Associated Sociodemographic Factorsmentioning

confidence: 74%

Autism spectrum disorder prevalence and associated sociodemographic factors in the school population: EPINED study

Morales-Hidalgo¹,

Voltas

Canals³

2021

Autism

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“…Notably, correlations between RITA-T and ADOS-2 total was uniquely significant in the minority group (denoted as "Other") whereas SA sub-scores were uniquely significant in the Asian subgroup but not in the other nor White groups. This is notable because, in addition to delays in ASD noted above, additional delays in diagnosis are common in minority groups (12)(13)(14)(15). Several factors likely contribute to these delays (e.g., low socioeconomic status, cultural/language barriers, and shortage of accessible therapeutic resources or diagnostic testing, including the ADOS).…”

Section: Discussionmentioning

confidence: 99%

“…In addition, the difficulties posed by standard evaluation methods are even greater among minority groups (e.g., African American, Hispanic, Asians, and etc.) in the USA due to language and cultural barriers, including a bias against mental diseases or conditions (12)(13)(14)(15). To improve this situation, easier, and faster alternative methods have been proposed and applied with various feasibilities and sensitivities (6,16).…”

Section: Introductionmentioning

confidence: 99%

Validation of Rapid Interactive Screening Test for Autism in Toddlers Using Autism Diagnostic Observation Schedule™ Second Edition in Children at High-Risk for Autism Spectrum Disorder

et al. 2021

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The Rapid Interactive screening Test for Autism in Toddlers (RITA-T) is a fast and inexpensive early screening measure for autism spectrum disorder (ASD) that was tested previously in children 18–36 months-old; the current validation study compared the RITA-T with the Autism Diagnostic Observation Schedule™ Second Edition (ADOS-2). The hypothesis is to validate the RITA-T with comparison to the ADOS-2. Thirty-five individuals (18–84 months-old) identified as at risk for ASD received the RITA-T and the ADOS-2 during a single visit. Participants were split into two age groups and both whole-group and sub-group data analysis were conducted. With all participants, RITA-T scores correlated significantly with ADOS-2 total scores (P < 0.001), social affect (SA) sub-scores (P < 0.001), and restrictive and repetitive behavior (RRB) sub-scores (P < 0.05). Similarly, ADOS-2 total and SA scores were significantly correlated in both age groups, while the RRB sub-score was only significant in females (P < 0.05). Lastly, correlations using subgroups based on ethnicity were only significant in the minority (“Other”) group for ADOS-2 total scores and in the Asian group for SA sub-scores (P < 0.05). Our receiver operating characteristic analysis showed that the optimal cut-off score of the RITA-T was consistently at 14, with a sensitivity of 81% and a specificity of 89% in the combined age group with the ADOS-2 and with a sensitivity 74% and specificity 50% with the DSM-5; The area under the curve was 0.84 (95%CI: 0.69–0.99) for ASD classified by ADOS-2 and 0.89 (95%CI: 0.79–0.99) for ASD diagnosed by DSM-5. The RITA-T performed similarly to the ADOS-2 when both were administered in a single visit. Significant correlations between the measures help validate the potential usefulness of the RITA-T as a rapid early screening measure of ASD. This study helps to show that the RITA-T may be used in a larger age range than originally reported and in different ethnic groups. The study involves human participants and was reviewed and approved by the Institutional Review Board (IRB) of Massachusetts General Hospital (MGH, 2017P0000857).

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Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care

Weitlauf

Miceli

Vehorn

et al. 2023

J Autism Dev Disord

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Correction to: Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services

Cited by 5 publications

References 0 publications

Autism spectrum disorder prevalence and associated sociodemographic factors in the school population: EPINED study

Autism spectrum disorder prevalence and associated sociodemographic factors in the school population: EPINED study

Validation of Rapid Interactive Screening Test for Autism in Toddlers Using Autism Diagnostic Observation Schedule™ Second Edition in Children at High-Risk for Autism Spectrum Disorder

Screening, Diagnosis, and Intervention for Autism: Experiences of Black and Multiracial Families Seeking Care

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