Coronavirus disease 2019 (<scp>COVID</scp>‐19) and individuals with intellectual and developmental disabilities in Nigeria

Ijezie, Ogochukwu Ann; Okagbue, Hilary I.; Oloyede, Olufemi A.; Heaslip, Vanessa; Davies, P. S. W.; Healy, Jane

doi:10.1002/pa.2601

Cited by 4 publications

(4 citation statements)

References 45 publications

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“…Second, all included studies were conducted in HICs, which may have introduced bias and limited the generalisability of the findings. In most cultures, IDD is accompanied by marginalisation and stigmatisation [ 125 , 126 ]. It would be interesting to examine what extent the QoL of adults with DS via self-and proxy reports is universally bound.…”

Section: Discussionmentioning

confidence: 99%

Quality of life in adults with Down syndrome: A mixed methods systematic review

et al. 2023

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Background As the life expectancy of adults (aged ≥ 18 years) with Down syndrome increases for a plethora of reasons including recognition of rights, access, and technological and medical advances, there is a need to collate evidence about their quality of life. Objective Using Schalock and Verdugo’s multidimensional quality of life assessment model, this systematic review aimed to identify, synthesise and integrate the quantitative and qualitative evidence on quality of life in adults with Down syndrome via self-and proxy-reporting. Methods Five databases were systematically searched: MEDLINE, CINAHL, PsycINFO, Scopus, and Web of Science to identify relevant articles published between 1980 and 2022 along with grey literature and reference lists from relevant studies. A mixed methods systematic review was performed according to the Joanna Briggs Institute methodology using the convergent integrated approach. The review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Results Thirty-nine studies were included: 20 quantitative, 17 qualitative, and 2 mixed methods studies. The synthesised findings were grouped into the 8 core domains of quality of life: personal development, self-determination, interpersonal relations, social inclusion, rights, emotional, physical and material well-being. Of the 39 studies, 30 (76.92%) reported on emotional well-being and 10 (25.64%) on rights. Only 7 (17.94%) studies reported that adults with Down syndrome have a good quality of life centred around self-determination and interpersonal relations. Most adults with Down syndrome wanted to become more independent, have relationships, participate in the community, and exercise their human rights. Self-reported quality of life from adults with Down syndrome was rated higher than proxy reported quality of life. Discrepancies in quality of life instruments were discovered. Conclusion This review highlighted the need for a better systematic approach to improving the quality of life in adults with Down syndrome in targeted areas. Future research is required to evaluate self-and proxy-reporting methods and culture-specific quality of life instruments that are more appropriate for adults with Down syndrome. In addition, further studies should consider including digital assistive technologies to obtain self-reported quality of life data in adults with Down syndrome. International prospective register of systematic reviews registration number CRD42019140056.

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Section: Discussionmentioning

confidence: 99%

Quality of life in adults with Down syndrome: A mixed methods systematic review

et al. 2023

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“…A limitation of this review is the lack of quality appraisal of the papers included. Although scoping reviews do not aim to assess the quality of the evidence (see [24]), in light of the emerging nature of ID research in Nigeria, we did not carry out one, because we wanted to be able to access the available studies relevant for this scoping review notwithstanding their methodological strength and rigor. We acknowledge and corroborate McKenzie, McConkey and Adnams' [3] recommendation that there is a need for improvement in "disability data collection" in Africa in the context of reporting, methodological rigor and robustness.…”

Section: Limitationsmentioning

confidence: 99%

“…The literature has consistently acknowledged the scarcity of information and empirical research about people with ID in developing countries such as Nigeria, e.g., [2,4,24]. For example, a recent meta-synthesis [6] of disability research in Western Africa revealed that, of the 223 disability articles from West Africa reviewed, only 24 were papers related to people with ID in the whole of West Africa; however, there was no information from the meta-synthesis on how many of these 24 ID studies were specifically derived from Nigeria [6].…”

Section: Introductionmentioning

confidence: 99%

A Scoping Review of Empirical Literature on People with Intellectual Disability in Nigeria

Sango

Deveau

2022

Disabilities

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Intellectual disability (ID) is an emerging field of research in Nigeria. This review seeks to identify what has been published in order to describe the evidence and to identify the major gaps in knowledge and practice. A systematic search of five databases and an African disability journal yielded 15 papers that reported on empirical studies related to people with ID in Nigeria. Fifteen studies across the databases and journal searched met the inclusion criteria. The participants included adults and children with ID and their families. Twelve of the papers employed quantitative methods, two were qualitative and one was a mixed methods study. There is a paucity of empirical research on people with ID in Nigeria, thus emphasising the need for more primary research about people with ID living in Nigeria. Nigeria is estimated to have the largest population of people with disabilities in Africa; however, this review found limited empirical work regarding their lives, prevalence and care. This limited evidence hinders the understanding of the challenges people with an intellectual disability face and potentially inhibit the creation of policy-oriented solutions to their plights in a globalised world.

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“…COVID-19 has a multi-dimensional effect on various organs of the body and has also generated a plethora of psychiatric manifestations across the different strata of the society [ 21 ]. The importance of disease outcomes in relation to the individual’s social integration has been known to interfere with a person’s quality of life [ 21 ]. Thus, the interest in health-related quality of life of patients who have been affected by the condition increased, during the pandemic and afterwards.…”

Section: Introductionmentioning

confidence: 99%

Assessment of the quality of life of COVID-19 recovered patients at the Ghana Infectious Disease Centre

Amedewonu,

Aryeetey,

Godi

et al. 2024

PLoS ONE

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Background The Coronavirus Disease (COVID-19), initially thought to be a respiratory disease, is now known to affect multiple organ systems with variable presentation and devastating or fatal complications. Despite the large numbers of people who have suffered this disease globally, the mid- to long-term impact of COVID-19 on a person’s general well-being and physical function has not been fully investigated in Ghana. Aim This study sought to determine the Quality of Life (QoL) and associated factors among Ghanaian patients following clinical recovery from COVID-19 infection. Methods This was a cross-sectional quantitative study involving 150 COVID-19 recovered patients attending the review clinic of the Ghana Infectious Disease Centre. Quality of life was estimated using the EuroQol Group Association five-domain, five-level questionnaire (EQ-5D-5L) while participants’ overall health status was measured on a visual analogue scale (EQ-VAS): a scale ranging from 0 (worst health) to 100 (best health). Kruskal-Wallis tests were used to assess differences in domain and overall QoL scores while quantile regression was used to determine demographic and clinical factors associated with QoL scores. Results The mean QoL from the EQ-5D-5L assessment tool was (81.5 ± 12.0) %, while the self-reported QoL from the EQ-VAS tool (75.6 ± 22.0) %. Persistence of symptoms after 30 days was significantly associated with EQ-5D-5L QoL (Adjusted median difference [95% CI] = -9.40 [-14.19, -4.61], p<0.001) while access to rehabilitative centres was significantly associated with EQ-VAS QoL (Adjusted median difference [95% CI] = -29.60 [-48.92, -10.29], p = 0.003). Conclusion Quality of life was relatively good among the COVID-19 recovered patients. Persistence of symptoms and access to rehabilitative centres significantly predicted one’s QoL.

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Coronavirus disease 2019 (COVID‐19) and individuals with intellectual and developmental disabilities in Nigeria

Cited by 4 publications

References 45 publications

Quality of life in adults with Down syndrome: A mixed methods systematic review

Quality of life in adults with Down syndrome: A mixed methods systematic review

A Scoping Review of Empirical Literature on People with Intellectual Disability in Nigeria

Assessment of the quality of life of COVID-19 recovered patients at the Ghana Infectious Disease Centre

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