Coping with spinal cord injury: personal and marital adjustment in the Hong Kong Chinese setting

Chan, Raymond C.K.; Lee, P. W. H.; Lieh‐Mak, F.

doi:10.1038/sj.sc.3101085

Cited by 57 publications

(65 citation statements)

References 32 publications

(39 reference statements)

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“…10,12 On the CBI scale, caregivers scored much higher on the time-dependent and the development burden subscales compared with other subscales. These findings are similar to that reported in a Chinese population, 8 with the scores in this study being slightly higher than the scores reported in their study. Time-dependent burden reflects the limitations imposed on the caregiver because of the amount of time spent providing care for the SCI person.…”

Section: Discussionsupporting

confidence: 91%

“…Higher household income has been reported to be associated with lower timedependent burden. 8 In addition, the other important findings of this study are the absence of paid support and the presence of other family members in the care of SCI persons. Extended family structure is a common feature of the Fijian culture.…”

Section: Discussionmentioning

confidence: 76%

“…17 CBI has been used to measure the caregiver burden in spouses of SCI persons. 8 Functional independence of the care recipients. The level of independence in self-care and mobility of the SCI persons was measured using a modified version of the original Barthel Index (BI).…”

Section: Instrumentsmentioning

confidence: 99%

“…Psychosocial issues such as an increased emotional stress, burnout, fatigue, anger, resentment, mental weariness and isolation have been reported in the caregivers of SCI persons. [8][9][10] Caregiving has been associated with constraints in the social, vocational, and recreational opportunities of the caregivers. 11,12 Low levels of life satisfaction and marital adjustment, 4 ill-health and poor quality of life in caregivers has also been reported.…”

Section: Introductionmentioning

confidence: 99%

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Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Gajraj-Singh

2011

Spinal Cord

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Study design: This study was designed as a cross-sectional one. A set of structured questionnaires was administered. Objectives: The purpose of the study was to explore the psychological response of the caregivers of people with spinal cord injury (SCI) and to assess the burden of caregiving for SCI persons living in the community in Fiji. Setting: Fiji, South Pacific. Methods: A total of 30 primary caregivers of persons with SCI. The Index of Psychological Well-Being (IPWB) was used to assess the psychological impact of care giving, and Caregiver Burden Inventory (CBI) was used to evaluate the burden associated with caregiving for persons with SCI. Barthel Index (BI) scale was used to measure the functional abilities of the care recipients. Results: The majority of the participants (n ¼ 20) were women, who had an ethnic Fijian background (n ¼ 18) and were married (n ¼ 18), and were spouses (n ¼ 13). Mean BI of the persons with SCI was 7.1 (s.d. ¼ 5.23) on a 0-20 scale, with 90% (n ¼ 27) suffering from moderate-to-very severe disability (BIo15). The mean duration of caregiving was 6.1 years (s.d. ¼ 4.23). On average, the caregivers provided 6.1 h (s.d. ¼ 2.19) of caregiving per day. The experiences of caregiving adversely affected the caregiver psychological well-being. Participants demonstrated high levels of time-dependent and development burden. Caregiving was significantly related to the number of hours spent providing care (r s ¼ 0.35, Po0.05), and the older caregiver age (r s ¼ 0.46, Po0.01). Conclusion: Being a primary caregiver of a SCI person contributes to caregiver burden and psychological distress. The findings indicate that the contributions of these people should be recognized and interventions should be tailored not only toward the needs of the care recipients but also to the needs of the caregivers.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 76%

Section: Instrumentsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Gajraj-Singh

2011

Spinal Cord

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“…2 Relating to mood, it has been demonstrated that a group of people with SCI from Hong Kong had relatively high depression levels (according to the Beck Depression Inventory) in proportion to suggested cutoff values from Australia. 7 The literature therefore suggests that people with SCI in countries with a developing economy have lower QOL and life satisfaction scores, and higher depression scores, compared to countries with a developed economy.…”

Section: Introductionmentioning

confidence: 99%

A comparative review of life satisfaction, quality of life and mood between Chinese and British people with tetraplegia

Songhuai

Olver

et al. 2008

Spinal Cord

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Study design: Cross-sectional; questionnaire. Objective: To compare the differences in life satisfaction, quality, value and meaning of life, and mood between Chinese and British people with tetraplegia after the completion of rehabilitation. This study was undertaken at the China Rehabilitation Research Centre, Beijing, China and the National Spinal Injuries Centre, Stoke Mandeville Hospital, United Kingdom. Method: Self-report questionnaires were completed by 44 people with tetraplegia; 22 from China and 22 from the United Kingdom. The results of life satisfaction, quality, value and meaning of life, anxiety and depression were analysed. Results: The British group were significantly more satisfied than the Chinese group with their vocational situation, their financial situation and their family life. The British group was more positive than the Chinese group towards the value they placed on their life and had lower mood scores. No significant differences were identified between the two groups in life as a whole, self-care, leisure situation, sexual life, partnership relations, contact with friends, meaning of life and quality of life. Conclusion: To improve the value placed on life by people with tetraplegia in China, a future emphasis of rehabilitation should include addressing vocational, financial and family-life issues.

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The Experience of Families and Their Carers in Health Care

Elliott

Rivera

2003

Handbook of Clinical Health Psychology

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Coping with spinal cord injury: personal and marital adjustment in the Hong Kong Chinese setting

Cited by 57 publications

References 32 publications

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

Psychological impact and the burden of caregiving for persons with spinal cord injury (SCI) living in the community in Fiji

A comparative review of life satisfaction, quality of life and mood between Chinese and British people with tetraplegia

The Experience of Families and Their Carers in Health Care

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