Coping with dementia caregiving: a mixed-methods study on feasibility and benefits of a psycho-educative group program

Pihet, Sandrine; Kipfer, Stephanie

doi:10.1186/s12877-018-0896-y

Cited by 16 publications

(38 citation statements)

References 23 publications

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“…We expected that contact with peers would have a positive effect on emotional and social wellbeing, as found in four other educational intervention studies among caregivers of people with dementia [21][22][23][24]. We found an initial improvement in emotional wellbeing, although this positive effect was no longer present three months after the start of the intervention.…”

Section: Discussionsupporting

confidence: 60%

“…Secondly, we expect that a poorer HRQL will be associated with a higher frequency of caregiving, a higher self-perceived pressure from informal care and less support from professionals, friends or family members [14][15][16][17][18][19][20]. Thirdly, we expect that the social element of the intervention will enhance emotional wellbeing in family caregivers and their engagement in social activities, which are two dimensions of HRQL as measured in this study [21][22][23][24].…”

Section: Introductionmentioning

confidence: 87%

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Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial

Wezel

Blom

Spreeuwenberg

et al. 2021

Patient Education and Counseling

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Objective: Gaining understanding of the health-related quality of life (HRQL) of family caregivers of people with dementia with Turkish or Moroccan immigrant backgrounds and to examine whether an educational peer group intervention can improve HRQL. Methods: Understanding of HRQL and associated variables was obtained by multiple linear regression analyses. The effects of the intervention on HRQL were assessed in multilevel analyses using data collected before the start (baseline), directly after the intervention (one to two weeks after baseline) and three months after the start of the intervention. The intervention (two interactive group sessions) entailed providing information about dementia and care/support options. Results: At baseline (n = 319), HRQL was moderately and significantly associated with migration background, gender, self-perceived pressure from informal care and the formal and informal support received (p < .05). The intervention had a small effect on Heide, I. van der, Wezel, N. van, Blom, M., Spreeuwenberg, P., Devillé, W.L.J.M., Francke, A.L. Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial. Patient Education and Counseling: 2020 Postprint version : 1.0

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Section: Discussionsupporting

confidence: 60%

Section: Introductionmentioning

confidence: 87%

Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial

Wezel

Blom

Spreeuwenberg

et al. 2021

Patient Education and Counseling

View full text Add to dashboard Cite

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“…From the beginning of the disease, people with AD need constant attention and supervision when performing all basic activities of their daily lives [9]. In most cases, the attention, support and care that people with AD require comes from their relatives [10,11].…”

Section: Introductionmentioning

confidence: 99%

Predictor Factors of Perceived Health in Family Caregivers of People Diagnosed with Mild or Moderate Alzheimer’s Disease

Fernández

Hernández‐Padilla

Ortiz‐Amo

et al. 2019

IJERPH

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Caring for a person diagnosed with Alzheimer’s disease has a negative impact on family caregivers’ psychological health. This study examined the factors related to ‘perceived health’ and ‘presence of new-onset mental health problems’ in family caregivers of people diagnosed with mild and moderate Alzheimer’s disease. A cross-sectional observational study carried out in Almeria’s Healthcare District (Spain). A total of 255 family caregivers (42.4% cared for people with mild Alzheimer’s disease and 57.6% cared for people with moderate Alzheimer’s disease) participated in the study from January to December 2015. Mainly, caregivers were women (81.5% in the mild Alzheimer’s disease group and 88.4% in the moderate Alzheimer’s disease group), and their average age was 56.54 years (standard deviation (SD) = 13.13) and 54.47 years (SD = 11.71), respectively. Around 47% of the caregivers had been caring for the person with Alzheimer’s between two and five years. The Goldberg General Health Questionnaire was used to measure perceived health and the presence of new-onset mental health problems. An exploratory descriptive analysis and a multivariate logistic regression analysis were conducted. For caregivers of people with mild Alzheimer’s disease, ‘perceived health’ was related to ‘perceived social support’ (r = −0.21; p = 0.028), ‘person’s level of dependency’ (r = −0.24, p = 0.05), ‘severity of the person’s neuropsychiatric symptoms’ (r = 0.22; p = 0.05), and ‘caregiver’s emotional distress in response to the person’s neuropsychiatric symptoms’ (r = 0.22; p = 0.05). For caregivers of people with moderate Alzheimer’s disease, ‘perceived health’ was related to ‘perceived social support’ (r = −0.31; p ˂ 0.01), ‘presence of neuropsychiatric symptoms’ (r = 0.27, p = 0.01), ‘severity of the person’s neuropsychiatric symptoms’ (r = 0.32, p = 0.01) and ‘caregiver’s emotional distress in response to the person’s neuropsychiatric symptoms’ (r = 0.029; p = 0.01). The presence of new-onset mental health problems was detected in 46.3% (n = 50) of caregivers of people with mild Alzheimer’s and 61.9% (n = 91) of caregivers of people with moderate Alzheimer’s. When people are diagnosed with mild Alzheimer’s disease, intervention programs for caregivers should aim to regulate emotions and promote positive coping strategies. When people are diagnosed with moderate Alzheimer’s disease, intervention programs for caregivers must allow them to adapt to caregiving demands that arise with the progression of Alzheimer’s disease.

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“… a The Caregiver Self‐Efficacy Scale designed by Pihet and Kipfer 23 is not included since it is a single question of how confident a caregiver is of providing care.…”

Section: Resultsmentioning

confidence: 99%

“…Rarely do researchers explain why one self‐efficacy scale was chosen over another. Researchers of caregivers of adults with cognitive impairment also may use general self‐efficacy scales 20,21 which may be imprecise for this population, or they may simply create their own self‐efficacy scales 22‐24 . A closer look at assessment tools especially created to study self‐efficacy in caregivers of persons with dementia can provide a foundation to update this concept.…”

mentioning

confidence: 99%

Self‐efficacy of family caregivers of older adults with cognitive impairment: A concept analysis

et al. 2020

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Background Research demonstrates that increased self‐efficacy can help family caregivers of older adults with Alzheimer's and other types of cognitive impairment experience lower burden and depressive symptom severity. Aims The purpose of this concept analysis is to address fundamental gaps in the understanding of self‐efficacy in family caregivers of older adults with cognitive impairment, including updating the 26‐year‐old concept analysis with a contemporary definition. Methods This study utilizes Walker and Avant's (2019) concept analysis method, an eight‐step iterative process that helps to clarify ambiguous concepts. A literature review was conducted from July 1993 through March 2019 using PubMed/MEDLINE, Scopus, CINAHL, and Embase. Inclusion criteria encompassed peer‐reviewed research articles and review articles that included family caregivers of older adults with cognitive impairment. Results Eight defining attributes of this concept are identified. The revised definition of self‐efficacy in this population is a family caregiver's confidence in their ability to: manage behaviors and other caregiving stresses, control upsetting thoughts, acquire medical information, manage medical issues, obtain self‐care, access community supports, assist with activities of daily living and other care, and maintain a good relationship with a relative, friend, or neighbor of an older adult with cognitive impairment. Conclusion This paper utilizes over a quarter‐century of research to build on the original analysis by Mowat and Spence Laschinger (1994) and update the concept's definition. This analysis should provide researchers with a clearer understanding of this concept and a renewed emphasis on the importance of targeting interventions to improve self‐efficacy in this vulnerable caregiving population.

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Coping with dementia caregiving: a mixed-methods study on feasibility and benefits of a psycho-educative group program

Cited by 16 publications

References 23 publications

Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial

Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial

Predictor Factors of Perceived Health in Family Caregivers of People Diagnosed with Mild or Moderate Alzheimer’s Disease

Self‐efficacy of family caregivers of older adults with cognitive impairment: A concept analysis

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