Coping Styles in Patients with Parkinson’s Disease: Consideration in the Co-Designing of Integrated Care Concepts

Abstract

Integrated care models may help in designing care for Parkinson’s disease (PD) that is more efficient and patient-centered. However, in order to implement such models successfully, it is important to design these models around patients’ needs and preferences. Personality traits and coping styles play a well-studied important role in patients’ disease perception and their utilization of medical and social services to cope with their disease. There is evidence that coping styles remain largely unchanged over the course of PD; coping styles are defined in the early stages of life and extend over the entire lifespan of the patient. Therefore, it seems necessary to consider aspects of the personality traits and coping styles of PD patients in the development and implementation of care models. We postulate that by taking patients’ personality traits and coping styles into account, care models for PD can be designed in a more individualized and, thus, more effective way. This paper, structured in three main sections, attempts to structure the uptake of patients’ coping styles in the co-design of integrated care models. However, further studies are needed to better develop tailored care concepts to the needs of people living with PD and their individual coping styles.

Neuropsychological Insights into Coping Strategies: Integrating Theory and Practice in Clinical and Therapeutic Contexts

“…Considerable research has been carried out on the strategies that are used by people with neurological disorders, such as Alzheimer's and Parkinson's disease, in dealing with their symptoms. These studies often investigate the correlation between neuropsychological functioning and psychological coping mechanisms [186]. These studies contribute to a comprehensive comprehension of how cognitive functions and neural processes influence coping mechanisms, highlighting the importance of incorporating neuropsychological perspectives into clinical psychology research and practice.…”

Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies

“…Based on the result of this assessment, a draft care plan could be co-defined and adjusted based on the PwP personal goals, needs and expectations. This personalization allows us to identify unique personality traits and coping styles that impact care in PD [ 41 ]. However, the implementation of this tool requires trained and specialized nurses who are able to assess medical and social care needs.…”