Coping mechanisms for financial toxicity: a qualitative study of cancer patients’ experiences in Germany

Schröder, Sara Lena; Schumann, Nadine; Fink, Astrid; Richter, Michael

doi:10.1007/s00520-019-04915-w

Cited by 26 publications

(39 citation statements)

References 26 publications

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“…The qualitative studies demonstrated fair quality, with seven studies only missing one criterion [ 33 , 34 , 63 , 64 , 65 , 66 , 67 ]. All studies show sufficient quality in terms of underlying research method and data collection.…”

Section: Resultsmentioning

confidence: 99%

“…All studies show sufficient quality in terms of underlying research method and data collection. Limited quality occurred regarding analysis of potential bias, mainly in terms of relationship between researcher and participants [ 33 , 34 , 35 , 36 , 37 , 40 , 41 , 48 , 63 , 64 , 65 , 66 , 67 , 68 ] and sufficient data analysis [ 35 , 36 , 37 , 41 , 48 , 68 ].…”

Section: Resultsmentioning

confidence: 99%

“…Overall, risk factors before and during disease are shaped by systemic factors, such as the design of health insurance [ 7 , 33 , 34 , 36 , 40 , 43 , 44 , 49 , 52 , 55 , 58 , 64 , 65 , 67 , 68 , 71 ] or social security system [ 34 , 36 , 48 , 64 , 65 , 66 , 67 ]. Medical factors, such as cancer entity, cancer stage [ 38 , 43 , 44 , 45 , 47 , 54 , 55 ] or chosen treatment [ 7 , 39 , 44 , 45 , 49 , 54 , 55 , 56 , 57 , 60 , 64 , 67 , 68 ] determine the severity of illness and have an influence on the degree of financial distress. This affects associated side effects [ 37 , 40 , 47 , 48 ] and experienced well-being [ 39 , 46 , 47 , <...>…”

Section: Resultsmentioning

confidence: 99%

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Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

Pauge

Surmann

Mehlis

et al. 2021

Cancers

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Financial toxicity is a side effect of cancer that results from the perceived financial distress an individual may experience in the course of the disease. The purpose of this paper is to analyse underlying factors related to subjective financial distress in high-income countries with universal healthcare coverage. A systematic literature review was conducted to identify qualitative and quantitative studies of cancer patient-reported subjective financial distress by performing a search in the databases of PubMed, PsycINFO and CINAHL up to December 2020. A qualitative synthesis was performed linking the time-dependent occurrence of risk factors to derived categories of risk factors. Out of 4321 identified records, 30 quantitative and 16 qualitative studies were eligible. Classification of risk factors resulted in eight categories with a total of 34 subcategories. Subjective financial distress is primarily determined by pre-diagnosis sociodemographic- factors as well as financial and work factors that might change during the course of the disease. The design of healthcare and social security systems shapes the country-specific degree of subjective financial distress. Further research should focus on evolving multidisciplinary intervention schemes and multidimensional instruments for subjective financial distress to account for identified risk factors in universal healthcare systems more precisely.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

Pauge

Surmann

Mehlis

et al. 2021

Cancers

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“…In addition, most of the patients were not employed during the recruitment period, which further exacerbated their concerns over their ability to pay for further treatment and care. To meet the needs of their present treatment and prepare for the future, patients may have to adopt some coping strategies, such as application for additional financial assistance and reducing expenditures, to cope with the financial burden [25,26]. It may also be worthwhile for the government to revisit the current financial assistance and the co-payment mechanism under certain funds, such as the Samaritan Fund and the Community Care Fund medical assistance programs [27], to address the financial hardship faced by these patients.…”

Section: Discussionmentioning

confidence: 99%

“…Cancer patients may adjust their financial needs by reducing their expenditures for basic needs, luxuries and some health-related decisions. Although these adjustments may save money for future treatment expenditures, they may affect their physical and emotional well-being, thereby decreasing HRQoL [25].…”

Section: Discussionmentioning

confidence: 99%

Translation and validation of the Traditional Chinese version of the COmprehensive Score for financial Toxicity-Functional Assessment of Chronic Illness Therapy (Version 2)

Chan

Choi

et al. 2021

Health Qual Life Outcomes

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Background Cancer patients often experience severe financial distress due to the high cost of their treatment, and strategies are needed to objectively measure this financial distress. The COmprehensive Score for financial Toxicity-Functional Assessment of Chronic Illness Therapy (COST-FACIT) is one instrument used to measure such financial distress. This study aimed to translate the COST-FACIT (Version 2) [COST-FACIT-v2] instrument into traditional Chinese (COST-FACIT-v2 [TC]) and evaluate its psychometric properties. Methods The Functional Assessment of Chronic Illness Therapy (FACIT) translation method was adopted. The translated version was reviewed by an expert panel and by 20 cancer patients for content validity and face validity, respectively, and 640 cancer patients, recruited from three oncology departments, completed the translated scale. Its reliability was evaluated in terms of internal consistency and test–retest reliability. Confirmatory factor analysis has been used to evaluate the one- and two-factor structures of the instrument reported in the literature. The convergent validity was examined by the correlation with health-related quality of life (HRQoL) and psychological distress. Known-group validity was examined by the difference in the COST-FACIT-v2 (TC) total mean score between groups with different income levels and frequency of health care service use. Results The COST-FACIT-v2 (TC) showed good content and face validity and demonstrated high internal consistency (Cronbach’s alpha, 0.86) and acceptable test–retest reliability (intraclass correlation coefficient, 0.71). Confirmatory factor analysis showed that the one- and two-factor structures of the instrument that have been reported in the literature could not be satisfactorily fitted to the data. Psychological distress correlated significantly with the COST-FACIT-v2 (TC) score (r = 0.47; p < 0.001). HRQOL showed a weak to moderate negative correlation with the COST-FACIT-v2 (TC) score (r = − 0.23 to − 0.46; p < 0.001). Significant differences were seen among the COST-FACIT-v2 (TC) scores obtained in groups of different income level and frequency of health care service use. Conclusions The COST-FACIT-v2 (TC) showed some desirable psychometric properties to support its validity and reliability for assessing cancer patients’ level of financial toxicity.

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Correlates of financial toxicity in adult cancer patients and their informal caregivers

Sadigh

Switchenko

Weaver

et al. 2021

Support Care Cancer

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Coping mechanisms for financial toxicity: a qualitative study of cancer patients’ experiences in Germany

Cited by 26 publications

References 26 publications

Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

Patient-Reported Financial Distress in Cancer: A Systematic Review of Risk Factors in Universal Healthcare Systems

Translation and validation of the Traditional Chinese version of the COmprehensive Score for financial Toxicity-Functional Assessment of Chronic Illness Therapy (Version 2)

Correlates of financial toxicity in adult cancer patients and their informal caregivers

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