Coping in Cyberspace: The Impact of Internet Use on the Ability of HIV-Positive Individuals to Deal with Their Illness

Reeves, Patricia M.

doi:10.1080/10810730050019555

Cited by 94 publications

(62 citation statements)

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“…Some studies have suggested a survival benefit for cancer patients as well, although this finding is controversial. David Spiegel appropriately comments, "Curing cancer may not be a question of mind over matter, but mind does matter" [33]. Group therapy is typically underutilized because many patients have difficulties attending due to transportation or cultural barriers.…”

Section: Community Building and Supportmentioning

confidence: 99%

Virtual Connections: Internet Health Care

et al. 2002

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Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH), founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a nonprofit organization dedicated to supporting and advancing compassionate health care delivery that provides hope to the patient, support to caregivers, and encourages the healing process. The Center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members.The 20th century success of the Internet is now translating into changes in 21st century medical practice. The changes brought about by the Internet have at once facilitated and complicated the practice of medicine. Physicians and patients are challenged to take advantage of the increased opportunities afforded by Internet access while being mindful of its drawbacks and the limitations to virtual communication. The case of Karen Parles, one of the authors, is presented. Karen developed locally advanced lung cancer and used the Internet to research her diagnosis. She found the information on lung cancer limited and confusing, and, in response, developed a website devoted to empowering lung cancer patients in their search for information and support (http://www.lungcanceronline.org). Here we discuss issues surrounding patients' use of the Internet for health information and communication with health care providers. The value of information-seeking as a coping mechanism is debated, and concerns are raised regarding confidentiality of electronic communications and the logistics of physicians adopting e-mail as a mechanism for communicating with patients. The Oncologist 2002;7:555-568 LEARNING OBJECTIVESAfter completing this course, the reader will be able to:1. Understand the increasingly important contribution of the Internet to information and connection for staff and patients with cancer.2. Evaluate the limited evidence on medical misinformation, isolation, and the limits of the Internet.3. Learn the best available oncology Internet resources.Access and take the CME test online and receive one hour of AMA PRA category 1 credit at CME.TheOncologist.com CME CME by guest on May 7, 2018http://theoncologist.alphamedpress.org/ Downloaded from

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Section: Community Building and Supportmentioning

confidence: 99%

Virtual Connections: Internet Health Care

et al. 2002

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“…Such spaces provide a communication channel for interaction between people facing the same or a similar situation. Several research studies report the benefits of such social support (Reeves, 2000;Eysenbach et al, 2004) that can complement or even replace traditional patient support groups. Participants share technical information about new treatments, discuss their experiences, and encourage each other.…”

Section: Exchangementioning

confidence: 99%

Internet and Health Communication

Heaton

2011

The Handbook of Internet Studies

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With the popularity of the Internet, more and more people are turning to their computers for health information, advice, support, and services. This chapter provides an analysis of the changes in healthcare communication resulting from the Internet revolution. It provides a variety of examples, including information about health websites and portals, online patient communities, Internet pharmacies, and web-enabled hospitals.The chapter's general structure is from the most simple uses to the more complex, from information retrieval and use, through situations where information is exchanged, either between patients and physicians or in patient online communities. Health interventions using the Internet are next. These consultations, promotion programs, and clinical applications involve actual medical treatment.Since the more complex health-related uses of the Internet rely heavily on infrastructure, we conclude with a discussion of computerized physician order entry (CPOE) and electronic health records. Each section concludes with a discussion of issues, implications, and challenges. Throughout, we have maintained a focus on how the Internet is affecting health communication. Economic, technical, and regulatory aspects of changes in healthcare are addressed only secondarily. Information Online health informationPerhaps the most widely felt impact of the Internet on communication in healthcare is in the widespread availability of, and interest for, health information on the web. A 2005 Harris Interactive poll of 1000 Americans suggested that approximately 75 percent of US adults have gone online to look for health or medical information. What is more, the frequency of searching is impressive: almost 60 percent reported that they had looked "often"(25 percent) or "sometimes"(33 percent), whereas the percentage saying that they rarely searched for The Handbook of Internet Studies Edited by Mia Consalvo and Charles Ess

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“…It is argued that information might make a difference in coping with HIV/AIDS (Kalichman, 2007;Kalichman et al, 2003Kalichman et al, , 2005Kalichman et al, , 2006bMo & Coulson, 2008;Reeves, 2000Reeves, , 2001, in the prevention and reduction of HIV/AIDS (Albright & Kawooya, 2005;Blumberg, 2000), motivation to adhere to treatment (Cornman, Schmiege, Bryan, Benziger, & Fisher, 2007;Johnson & Case, 2012), motivation to change sexual behavior (Fisher, 2012), and in promoting HIV testing (Davis et al, 2011). Substantial interest is reported in use of the Internet as tool for information seeking and for delivering educational interventions, as well as for information dissemination and supporting people in coping with HIV/AIDS (Kalichman, 2007;Kalichman, Weinhardt, Benotsch, & Cherry, 2002;Kalichman et al, 2003Kalichman et al, , 2005Kalichman et al, , 2006aKalichman et al, , 2006bKalichman et al, , 2012Kalichman, Picciano, & Roffman, 2008;Mayben & Giordano, 2007;Mo & Colson, 2008;Reeves, 2000;Rice, Monro, Barman-Adhikari, & Young, 2010;Robinson & Graham, 2010;…”

Section: Introductionmentioning

confidence: 99%

“…Substantial interest is reported in use of the Internet as tool for information seeking and for delivering educational interventions, as well as for information dissemination and supporting people in coping with HIV/AIDS (Kalichman, 2007;Kalichman, Weinhardt, Benotsch, & Cherry, 2002;Kalichman et al, 2003Kalichman et al, , 2005Kalichman et al, , 2006aKalichman et al, , 2006bKalichman et al, , 2012Kalichman, Picciano, & Roffman, 2008;Mayben & Giordano, 2007;Mo & Colson, 2008;Reeves, 2000;Rice, Monro, Barman-Adhikari, & Young, 2010;Robinson & Graham, 2010;…”

Section: Introductionmentioning

confidence: 99%

Reflections of affect in studies of information behavior in HIV/AIDS contexts: An exploratory quantitative content analysis

Julien¹,

Fourie²

2015

Library & Information Science Research

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Information seeking and use are critically important for people living with HIV/AIDS, and for those who care for people with HIV/AIDS. In addition, the HIV/AIDS context is characterized by significant affective or emotional aspects, including stigma, fear, and coping. Thus, studies of information behavior in this context should be expected to take account of emotional variables.In information behavior scholarship, emotional variables have been marginalized in favor of a focus on cognitive aspects, although in recent years greater attention is being paid to the affective realm. This exploratory study used quantitative content analysis to explore the degree to which information behavior studies across a range of disciplines actually include affect or emotion in their analyses. Findings suggest that most studies pay little or no attention to these variables, and that attention has not changed over the past 20 years. Those studies that do account for emotion, however, provide excellent examples of information behavior research that can lead the way for future work.

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Coping in Cyberspace: The Impact of Internet Use on the Ability of HIV-Positive Individuals to Deal with Their Illness

Cited by 94 publications

References 0 publications

Virtual Connections: Internet Health Care

Virtual Connections: Internet Health Care

Internet and Health Communication

Reflections of affect in studies of information behavior in HIV/AIDS contexts: An exploratory quantitative content analysis

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