Coping and Health Promotion in Persons with Dementia

Helvik, Anne-S.

doi:10.1007/978-3-030-63135-2_25

Cited by 4 publications

(1 citation statement)

References 64 publications

(134 reference statements)

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“…One observation we made during the theoretical analysis of RSS as the screen instrument is the discovery of different approaches to defining the term ‘relative’. While Scandinavia uses the term ‘relatives’ stress scale [ 24 , 26 , 27 , 28 , 30 ], which can only be taken as meaning ‘a family member’, Anglo-Saxon and eastern cultures use the term ‘relative’ stress scale [ 31 , 32 , 33 ], presumably meaning that the stresses are in comparison—relative—to each other, thus focussing the attention on the role of the relative and the stress they feel [ 34 ]. In this study, we have used the term ‘RSS’ to mean ‘Relatives’ Stress Scale’.…”

Section: Methodsmentioning

confidence: 99%

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

Tokovská

Šolcová

2022

Healthcare

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The role and responsibilities of next-of-kin carers are significant, filling several years of their lives and causing them to experience a burden of care. This study was conducted to investigate the burden of next-of-kin carers for dementia sufferers in Slovakia. Data were compiled via the Relatives’ Stress Scale (RSS) screening instrument through a survey of 112 primary next-of-kin carers and analysed using the statistical tests of descriptive statistics, means, scores and significance differences (Wilcoxon test). This is one of the few scales which provides: (a) specific measures of caregiver stress, and (b) is standardised for a population of informal carers in the home environment. The profiles of Slovak next-of-kin carers were identified with statistically significant characteristics (gender, age of carers). The study identified a high level of caregiving stress (82.15%), and selected factors were found to be significant in all burden dimensions: emotional stress (p = 0.001), social stress (p = 0.003), and negative feelings (p = 0.002). The results emphasise the need for coordination of healthcare and social services, possibly by expanding the network of social support groups, operating a counselling hotline/chat, and introducing national educational programmes for the next-of-kin carers of dementia sufferers. The results are also a source of reference for the umbrella organisation ‘the Slovak Alzheimer’s Society’ to access when implementing changes at a national level.

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Section: Methodsmentioning

confidence: 99%

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

Tokovská

Šolcová

2022

Healthcare

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The Costs of Coping: Long-Term Mortality Risk in Aging Men

Marino,

Trudel-Fitzgerald,

Aldwin

et al. 2024

The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences

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Objectives Prospective associations between coping and all-cause mortality risk are understudied, particularly among nonmedical samples. We assessed independent and joint associations of multiple components of the transactional stress and coping model with all-cause mortality in a cohort of community-dwelling men. We were particularly interested in how coping effort related to mortality. Methods Participants included 743 men from the Veterans Affairs Normative Aging Study who completed 1+ stress and coping assessment in 1993–2002 (baseline age: M = 68.4, standard deviation [SD] = 7.1) and had mortality follow-up through 2020. The Brief California Coping Inventory assessed coping with a past-month stressor. Cox regression evaluated associations of problem stressfulness, coping strategies, total coping effort, and coping efficiency with all-cause mortality risk. Results Over a mean follow-up of 16.7 years (SD = 7.1), 473 (64%) men died. Problem stressfulness was not associated with mortality risk (hazard ratio [HR]: 1.07, 95% confidence interval [CI]: 0.98–1.17), adjusted for demographics and health conditions. When examining coping via specific strategies, only social coping was associated with higher mortality risk (HR: 1.15, 95% CI: 1.05–1.26) after Bonferroni correction. Total coping effort was associated with 14% greater risk of all-cause mortality (95% CI: 1.04–1.26), independent of problem stressfulness, demographics, and health conditions. Coping efficiency, a benefit–cost ratio of coping efficacy to total coping effort, was not associated with mortality risk in adjusted models. Discussion Total coping effort may be an important indicator for longevity among aging men, above and beyond problem stressfulness and specific coping strategies, which have been the foci in prior research.

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Monitoring and Evaluation of Dementia-Friendly Neighborhoods Using a Walkshed Approach: Protocol for a Scoping Review

Groulx,

Freeman,

Gourlay

et al. 2024

JMIR Res Protoc

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Background The number of people in society living with dementia is growing. In Canada, most people who live with dementia live at home, often in a neighborhood setting. Neighborhood environments can be a source of independence, social engagement, and well-being. They can also contain barriers that limit physical activity, social engagement, and well-being. A dementia-friendly neighborhood includes assets that support persons living with dementia and their caregivers in multiple life domains, including those that support walking within the neighborhood environment. Objective The objectives for this scoping review are twofold. First, focusing on walkshed analysis, we aim to extend scholarly understandings of methodological practices used in the monitoring and evaluation of dementia-friendly neighborhoods. Second, we aim to provide clear and practical guidance for those working in planning, design, and public health fields to assess the neighborhood context in support of evidence-based action to improve the lives of persons living with dementia. Methods The study design follows Arksey and O’Malley’s scoping review framework and PRISMA-P (Preferred Reporting Items for Systematic Review and Meta-Analysis Protocols) guidelines. We will conduct a search of peer-reviewed studies in 6 electronic databases to identify the use of Geographic Information System analysis to measure the walkshed of persons living with dementia in a community setting. As age is a primary risk factor associated with dementia, we will also include studies that focus more broadly on community-dwelling older adults aged 65 years and older. Data will be extracted, analyzed, and represented according to 3 domains. This includes study details, walkshed analysis methods, and criteria and indicators used to measure dementia-friendly neighborhoods. Results The results of the study and the submission of a manuscript for peer review are expected in June 2024. The results of the review are expected to contribute to an understanding of methods for monitoring and evaluating dementia-friendly neighborhoods. Expected findings will include a detailed breakdown of current parameters and routines used to conduct walkshed analysis. Findings will also convey criteria that can be operationalized in a Geographic Information System as indicators to assess barriers and facilitators to walking in a neighborhood setting. Conclusions As far as we are aware, the proposed scoping review will be the first to provide comprehensive methodological or technical guidance for conducting walkshed analysis specific to persons living with dementia. Both the scalability and objective nature of walkshed analysis are likely to be of direct interest to public health practitioners, planners, and allied professionals. Clearly documenting methods used in walkshed analysis can spur increased collaboration across these disciplines to enable an evidence-informed approach to improving neighborhood environments for persons living with dementia. International Registered Report Identifier (IRRID) PRR1-10.2196/50548

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Coping and Health Promotion in Persons with Dementia

Cited by 4 publications

References 64 publications

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment

The Costs of Coping: Long-Term Mortality Risk in Aging Men

Monitoring and Evaluation of Dementia-Friendly Neighborhoods Using a Walkshed Approach: Protocol for a Scoping Review

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