Conversations on psoriasis - what patients want and what physicians can provide: A qualitative look at patient and physician expectations

Uhlenhake, Elizabeth E.; Kurkowski, David; Feldman, Steven R.

doi:10.1080/09546630903085328

Cited by 21 publications

(42 citation statements)

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“…[9] The desire for greater knowledge about psoriasis such as causes, triggers, co-morbidities and treatment options was acknowledged in a focus group study from the US. [10] Finally, in a recent study with patients and GPs, both parties felt lacking in understanding about the condition and its management. [11] Consequently, patients often sub-optimally managed their condition in isolation from the GP due to the absence of adequate advice on treatments.…”

Section: Introductionmentioning

confidence: 99%

The role of community pharmacists in supporting self-management in patients with psoriasis

Tucker

Stewart

2016

International Journal of Pharmacy Practice

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Background The majority of patients with psoriasis have mild to moderate disease which can be managed in primary care with topical therapies. The supportive role of pharmacists for patients with long‐term dermatological conditions is largely unknown. Objective To assess the impact of an educational intervention delivered by community pharmacists to improve self‐management for people with psoriasis. Method The study involved a pre‐ and post‐intervention design. Seven community pharmacies were selected based on their location (urban, rural etc.) and the pharmacists recruited via local comprehensive research networks. Patients with mild to moderate psoriasis were recruited either opportunistically or via a letter of invite by pharmacists who undertook a face‐to‐face consultation with one follow‐up visit after 6 weeks. The primary outcome was the change in person‐centred dermatology self‐care index (PEDESI) score and secondary outcomes were the self‐assessed psoriasis and severity index (SAPASI), measuring disease severity and the dermatology quality of life index (DLQI). Key findings A total of 47 patients were recruited. At 6 weeks, 42/47 (89.3%) patients completed the follow‐up consultation. There was a significant increase in mean PEDESI scores (25.15 versus 17.78, P < 0.001) at 6 weeks compared to baseline. Similarly, SAPASI (11.60 versus 7.74, P < 0.001) and DLQI (7.21 versus 4.14, P < 0.001) scores improved significantly. Conclusion Pharmacist‐assisted support for patients with psoriasis improved knowledge, reduced disease severity and the impact on quality of life. These results suggest that community pharmacists might have an important role to play in facilitating self‐management for patients with psoriasis.

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Section: Introductionmentioning

confidence: 99%

The role of community pharmacists in supporting self-management in patients with psoriasis

Tucker

Stewart

2016

International Journal of Pharmacy Practice

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“…With regards to communication on treatment options, physicians may overestimate their patients' disease education [13,14,21]. Particularly, psoriasis patients have previously expressed a desire for more information from their dermatologists [16]. Given the levels of alignment reported in this study, it is likely that for the majority of patients, informative discussions are already taking place with their dermatologist.…”

Section: Discussionmentioning

confidence: 90%

“…Such strategies emphasize active involvement by the patient and two-way communication leading to physician -patient consensus regarding the preferred treatment approach [12,14]. In relation to this, alignment between physicians and their patients is emerging as an important concept to ensure the successful implementation of a treatment plan as well as optimal outcomes [15,16].…”

Section: Introductionmentioning

confidence: 99%

Satisfaction with current psoriasis treatment: Misalignment between physician and patient perceptions

2015

Journal of the American Academy of Dermatology

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“…12,14 This attention to patient expectations will further strengthen the doctor-patient relationship and positively impact patients' views of treatment outcomes. 15,16 Moreover, by using a patient-centered approach, self-management approaches can be tailored to patients' specific needs, desires, and capabilities.…”

Section: Resultsmentioning

confidence: 99%

“…The importance of a well established doctor-patient relationship on a patients' perception of disease and treatment outcomes has been repeatedly highlighted. 15,16 Patients attribute satisfaction with their physician to their perceptions of physician friendliness and caring. 17 Many patients want to be involved in decisions regarding their care and be empowered by their doctors to take control of their disease.…”

Section: Addressing Expectations and Establishing Treatment Goalsmentioning

confidence: 99%

Self-management in patients with psoriasis

Pathak¹,

Scott²,

West³

et al. 2014

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Psoriasis is a chronic inflammatory disorder effecting the skin and joints. Additionally, multiple comorbidities exist, including cardiovascular, metabolic, and psychiatric. The chronic nature of psoriasis is often frustrating for both patients and physicians alike. Many options for treatment exist, though successful disease management rests largely on patients through the application of topical corticosteroids, Vitamin D analogs, and calcineurin inhibitors, amongst others and the administration of systemic medications such as biologics and methotrexate. Phototherapy is another option that also requires active participation from the patient. Many barriers to effective self-management of psoriasis exist. Successful treatment requires the establishment of a strong doctor-patient relationship and patient empowerment in order to maximize adherence to a treatment regimen and improve outcomes. Improving patient adherence to treatment is necessary in effective self-management. Many tools exist to educate and empower patients, including online sources such as the National Psoriasis Foundation and online support group, Talk Psoriasis, amongst others. Effective self management is critical in decreasing the physical burden of psoriasis and mitigating its multiple physical, psychological, and social comorbidities, which include obesity, cardiovascular disease, alcohol dependence, depression, anxiety, and social anxiety.

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Conversations on psoriasis - what patients want and what physicians can provide: A qualitative look at patient and physician expectations

Cited by 21 publications

References 0 publications

The role of community pharmacists in supporting self-management in patients with psoriasis

The role of community pharmacists in supporting self-management in patients with psoriasis

Satisfaction with current psoriasis treatment: Misalignment between physician and patient perceptions

Self-management in patients with psoriasis

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