Contributors to well-being and stress in parents of children with autism spectrum disorder

Costa, Andreia Pinto; Steffgen, Georges; Ferring, Dieter

doi:10.1016/j.rasd.2017.01.007

Cited by 58 publications

(43 citation statements)

References 55 publications

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“…Three (60%) of these [12,33,34] reported use of ambulatory blood pressure and heart rate measurement, while one used ambulatory measures to calculate heart rate variability [34]. Another study reported use of an electrocardiogram and heart rate monitor to measure heart rate variability [41]. Finally, one study reported obtaining a single laboratory measurement of blood pressure [40].…”

Section: Baseline Physiological Functioningmentioning

confidence: 99%

“…Four out of the five studies (80%) that reported on baseline cardiovascular activity reported cardiovascular activity that was in the normotensive range [33,34] or did not significantly differ from parents of typically developing children [12,40]. One study [41] found that parents of children with ASD showed significantly lower resting heart rate variability (indicative of more physiological stress) compared to parents of typically developing children.…”

Section: Physiological Outcomesmentioning

confidence: 99%

“…One study [12] reported that there was no significant correlation between cardiovascular measures and parent-reported distress, anxiety or depression. Higher unmet service needs and parent behavioural disengagement and lower child daytime sleepiness were reported as significant predictors of higher blood pressure among mothers of children with ASD [33], while parental perception of childrenÕs lability/negativity was found to significantly predict lower parent heart rate variability [41].…”

Section: Physiological Outcomesmentioning

confidence: 99%

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Psychophysiological measures of stress in caregivers of individuals with autism spectrum disorder: a systematic review

Padden

Concialdi-McGlynn

Lydon

2018

Developmental Neurorehabilitation

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Section: Baseline Physiological Functioningmentioning

confidence: 99%

Section: Physiological Outcomesmentioning

confidence: 99%

Section: Physiological Outcomesmentioning

confidence: 99%

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Psychophysiological measures of stress in caregivers of individuals with autism spectrum disorder: a systematic review

Padden

Concialdi-McGlynn

Lydon

2018

Developmental Neurorehabilitation

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“…Carlsson et al 17 detected stress-related illnesses in some parents. Compared to parents of children with typical development, parents of children with ASD report poorer subjective wellbeing and increased physiological stress 18 , with studies in this field showing that this is greater in the mothers than in the fathers 19 .…”

Section: Birth Of a Child With Asdmentioning

confidence: 99%

Parenting a child with autism

Aguiar

Pondé

2019

J. bras. psiquiatr.

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Objective: This study analyzes subjective aspects associated with parents' perception of the changes that have affected their lives since the birth of their child with autism spectrum disorder (ASD). Methods: A qualitative study, using a narrative approach. Semi-structured interviews were conducted with 7 fathers and 16 mothers of children with ASD enrolled in a special needs school in Salvador, Bahia, Brazil. The interviews were transcribed, analytical categories were defined, and data interpreted. Results: Five categories were identified: "Emotional and Health-Related Effects", "Effects on Daily/Professional and Academic Life", "Effects on Marital and/or Affective/Sexual Life", "Effects on Social Life", "Adaptation Strategies". The analysis showed that, despite the impacts suffered, social support, professional help can facilitate parents' adjustment to life changes following the birth of a child with ASD. Conclusion: The physical and emotional demands of living with and parenting a child with ASD are enormous, include changes in social roles and in couples' social and affective/sexual lives, highlighting the need for parents to receive support from healthcare professionals, particularly mental health professionals. Care strategies need to be implemented for parents, in addition to the healthcare provided to their children, in order to improve the comprehensive care given to the child with ASD. RESUMOObjetivo: Este estudo buscou analisar os aspectos subjetivos associados à percepção dos pais sobre as mudanças ocorridas em suas vidas após o nascimento de seu filho com transtorno do espectro autista (TEA). Métodos: Estudo qualitativo, com abordagem metodológica de narrativa. Foram feitas entrevistas semiestruturadas com 7 pais e 16 mães de crianças com TEA em escola especial, Salvador-Bahia. As entrevistas foram transcritas, as categorias de análise, elaboradas e os dados, interpretados. Resultados: Foram identificadas cinco categorias: "impacto emocional e na saúde", "impacto na vida diária/profissional e acadêmica", "impacto na vida do casal e/ou afetiva/sexual", "impacto na vida social" e "estratégias de adaptação". A análise revelou que, apesar dos impactos sofridos, apoio social e ajuda profissional podem facilitar uma adaptação às mudanças na vida dos pais, a partir do nascimento do filho com ORIGINAL ARTICLEParenting a child with autism J Bras Psiquiatr. 2019;68(1):42-7 física e emocional, mudança de papéis sociais, da vida social e da vida do casal e/ou afetiva/ sexual, o que demonstra necessidade de atenção aos pais por profissionais de saúde, especialmente os da saúde mental. Estratégias de cuidado precisam ser implantadas para os genitores, paralelamente à assistência à saúde dos seus filhos, buscando melhorar a atenção integral à criança. Palavras-chaveTranstorno do espectro autista, pais, saúde mental.

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“…The need to understand expressed emotion is also supported by research about the relationship issues it may bring forth to parent-child interactions (Costa, Steffgen, & Ferring, 2017). While the relationship between positive and negative cognitive appraisal and family functioning varies across research findings, there was an overall revelation that appraisals affect, and outcome are related.…”

Section: Behavioural Outcome: Expressed Emotionsmentioning

confidence: 99%

Caregiving for individuals with neurodevelopmental disability-influence of implicit attitudes and affiliate stigma on expressed emotions

Nee¹

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Focused on the Singapore context, this research investigates informal caregiver's pre-existing attitude as a direct antecedent to affiliate stigma, caregiver burden and expressed emotions towards children with neurodevelopmental disability (NDD). Study 1 was conducted with two aims: a)to understand self-reported public perception towards individuals with NDD and (b) the relationship among key variables of interest (implicit attitudes, affiliate stigma and expressed emotions. Study 2 was conducted among caregivers of individuals with NDD in Singapore through usage of semi-structured interview and questionnaire to understand the (a) direct influence of pre-existing attitudes and affiliate stigma on expressed emotions and (b) indirect influence of pre-existing attitudes and affiliate stigma on quality of caregiving (i.e. caregiver burden, subjective well-being, perceived social support). In general, participants in Study 1 reported positive attitudes towards individuals with NDD. Analysis of interview data from Study 2 extracted five main themes: 1) knowledge of NDD population prior to caregiver role; (2) thoughts about caregiver role and experience of caregiving for NDD; (3) management of various roles played by caregivers in everyday life; (4) interactions with individuals with NDD and self-concept; and (5) understanding Singapore's cultural context and attitude towards NDD population. Among the 21 caregivers in Study 2, 13 caregivers were found to be have discrepancies between quantitative and qualitative measures, which suggest possible intrinsic denial of individual's NDD condition. The preliminary findings of this study suggest a need for developing a research agenda to better understand the impact of implicit prejudice and affiliate stigma on expressed emotions.

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Contributors to well-being and stress in parents of children with autism spectrum disorder

Cited by 58 publications

References 55 publications

Psychophysiological measures of stress in caregivers of individuals with autism spectrum disorder: a systematic review

Psychophysiological measures of stress in caregivers of individuals with autism spectrum disorder: a systematic review

Parenting a child with autism

Caregiving for individuals with neurodevelopmental disability-influence of implicit attitudes and affiliate stigma on expressed emotions

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