Contraception in women with cystic fibrosis: a systematic review of the literature

Roe, Andrea H.; Traxler, Sarah; Schreiber, Courtney A.

doi:10.1016/j.contraception.2015.07.007

Cited by 28 publications

(25 citation statements)

References 33 publications

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“…4 In particular, young women with cystic fibrosis (CF) face important disease-specific SRH concerns, including pubertal and menstrual delay, increased risk of vulvovaginal candidiasis, higher incidence of urinary incontinence, problems with sexual functioning, concerns regarding contraceptive choice, potentially decreased fertility, and adverse effects of pregnancy. [5][6][7][8][9][10][11][12][13][14][15][16] As the median life expectancy for patients with CF is now in the fourth decade of life, 17 an increasing number of patients require access to preventive services and care relevant to adolescence and the transition to adulthood, including SRH.…”

mentioning

confidence: 99%

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

et al. 2016

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OBJECTIVE: To explore the attitudes, preferences, and experiences of patients with cystic fibrosis (CF) and CF providers toward sexual and reproductive health (SRH) care for young women with CF. METHODS:Young women with CF aged 18 to 30 years from a US CF care center and pediatric and adult CF program directors from a national sample participated in qualitative interviews investigating their experiences regarding SRH care and their attitudes and preferences toward SRH care provision in the CF setting. Interviews were audio-recorded, transcribed, and coded by using a thematic analysis approach.RESULTS: Twenty-two patient participants and 16 CF program directors were interviewed. Themes shared by both groups included the importance of SRH discussion in the CF care setting, patient and provider discomfort as a barrier to SRH care, and the need for SRH educational resources and provider training to improve SRH care. Providers highlighted the lack of standardization around SRH care in the current CF care model. Patients desired SRH educational resources coupled with early SRH discussions initiated by their CF provider. CONCLUSIONS:Both CF providers and patients agree that the CF provider has a fundamental role in providing CF-specific SRH care. Educational resources coupled with individualized SRH discussions may facilitate improved SRH care for young women with CF. Investigation into the implementation of SRH education and services into pediatric-onset chronic disease care models is needed.

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confidence: 99%

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

et al. 2016

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“…The examination of adult women's perceptions, beliefs, and attitudes surrounding contraception makes this review unique. Other reviews have explored specific methods or specific health conditions under which women use contraception, but none has addressed the patient's perspective . Using the feminist poststructuralist framework allowed for a more nuanced understanding of how power dynamics and imbalances affect a woman's interaction with contraception.…”

Section: Discussionmentioning

confidence: 99%

Women's Contraceptive Perceptions, Beliefs, and Attitudes: An Integrative Review of Qualitative Research

Alspaugh

Barroso

Reibel

et al. 2019

J Midwife Womens Health

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Introduction: Unintended pregnancy rates will remain high until researchers explore the lived experience of women's relationships with contraception. This integrative review examines the extant qualitative literature on women's contraception to illuminate common themes in women's perspectives through the lens of the feminist poststructuralist framework. Methods: A literature review of PubMed and CINAHL databases was completed for English-language studies conducted in the United States from January 2008 through September 2018 that qualitatively examined women's perceptions, beliefs, and attitudes regarding contraception. Reports, dissertations, mixed-methods research, and literature reviews were excluded. The sample, methods, and findings of 19 studies were reviewed. Themes were identified using the 5 major tenets of the feminist poststructuralist framework: discourse, power, language, subjectivity, and agency. Results: Themes of power imbalance between partners and health care providers; societal and communal discourses on femininity and motherhood; distrust of hormonal contraception; the ability to enhance personal agency through contraceptive decision making; and a need for open, patient-focused communication arose from the 19 studies included in the review. Discussion: Using a feminist poststructuralist framework to examine women's contraceptive perceptions illuminates and magnifies the many ways in which contraceptive beliefs and use are dependent on gender roles and power dynamics. Gaps in knowledge specific to older women and exploration of women's subjectivity should be addressed. Clinicians should evaluate the power structures inherent to their practice while providing woman-focused, evidence-based contraceptive education.

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“…The CDC lists no contraception contraindications for cystic fibrosis. Some clinicians prefer the transdermal patch, vaginal ring, implant, and IUD to avoid the theoretical concerns of impaired gut absorption and risk of firstpass effect (Roe et al, 2016;Whiteman et al, 2016).…”

Section: Cystic Fibrosismentioning

confidence: 99%

“…Unintended pregnancies in patients with cystic fibrosis can be complicated and should involve extensive genetic counseling and disease management (Roe, Traxler, & Schreiber, 2016;Whiteman et al, 2016). The CDC lists no contraception contraindications for cystic fibrosis.…”

Section: Cystic Fibrosismentioning

confidence: 99%

Practice Guideline: Contraception for Adolescents with Chronic Illness

Hall¹,

Rende²

2017

Journal of Pediatric Health Care

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Contraception in women with cystic fibrosis: a systematic review of the literature

Cited by 28 publications

References 33 publications

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

Provider and Patient Attitudes Regarding Sexual Health in Young Women With Cystic Fibrosis

Women's Contraceptive Perceptions, Beliefs, and Attitudes: An Integrative Review of Qualitative Research

Practice Guideline: Contraception for Adolescents with Chronic Illness

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