Contextualizing diversity and culture within cancer control interventions for Latinas: Changing interventions, not cultures

Erwin, Deborah O.; Treviño, Michelle; Saad‐Harfouche, Frances G.; Rodriguez, Elisa M.; Gage, Elizabeth A.; Jandorf, Lina

doi:10.1016/j.socscimed.2010.05.005

Cited by 109 publications

(88 citation statements)

References 15 publications

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“…It explores how Latino males might positively or negatively influence their partners' decision to adopt early detection strategies, and concludes with a summary of the barriers captured across sites. Outcomes from the study related to Latinas and screening is published elsewhere [18,23,24].…”

Section: Methodsmentioning

confidence: 99%

Cancer Screening Behaviors Among Latina Women: The Role of the Latino Male

et al. 2011

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The purpose of this article is to determine, through a community-based breast and cervical cancer intervention program, the impact Latino males may have on Latinas and their cancer screening behaviors. This report includes data collected from 163 Latino males recruited throughout rural Arkansas and four New York City boroughs for the Esperanza y Vida program, designed to evaluate cancer screening outcomes among Latinas and address their health care needs and cancer control challenges. Basic demographics and identical pre- and post-program knowledge surveys were collected and analyzed using SPSS 15.0 and SAS 9.2. Results from this study suggest Latino men have little knowledge about breast or cervical cancer screening and are unfamiliar with their partners' screening histories. Male participants were also less likely to complete program assessment forms (pre, post, demographic questionnaires) and more likely to commit response errors (i.e. multiple answers, illegible responses). These findings suggest that including males in education programs for Latinas may be a crucial component in decreasing cancers among this segment of the population. The further development of programs such as Esperanza y Vida, that empowers Latino males, will be important in reducing the unequal burden of breast and cervical cancers for Latinas. It is important to continue including Latino men in these types of studies because the impact of their role on Latina's health remains understudied, unknown, and misunderstood.

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Section: Methodsmentioning

confidence: 99%

Cancer Screening Behaviors Among Latina Women: The Role of the Latino Male

et al. 2011

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“…The goal of this study was to build capacity around existing community research partnerships and initiate community engagement in cancer research efforts that include biospecimen donation as a form of research participation. The Hoy y Mañana (Translation: Today and Tomorrow) program was developed in partnership with previously established community partners from a cancer screening outreach study, (Esperanza y Vida (EyV), (Translation: Hope and Life) (Erwin et al 2005(Erwin et al , 2010Jandorf et al 2008Jandorf et al , 2012Saad-Harfouche et al 2011;Sudarsan et al 2011) as the authors theorized that discussions with individuals with some prior experience with outreach staff from the cancer center would facilitate biobanking discussions among engaged community members. This approach is further supported by community-based participatory research (CBPR) such as the Healthy Black Family Project (Thomas and Quinn 2008) that suggests that community members should receive services/resources in order to build relationships prior to solicitation for institutional/research gain.…”

Section: Introductionmentioning

confidence: 99%

Awareness and interest in biospecimen donation for cancer research: views from gatekeepers and prospective participants in the Latino community

2013

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Latinos are one of the fastest-growing population groups in the USA, and are underrepresented in scientific research and even more so in genetic research. The disproportionately lower number of certain subpopulations participating in biomedical research has a significant impact on the representativeness of scientific outcomes. We established a collaboration with scientists at a designated National Cancer Institute comprehensive cancer center to test the feasibility of community-based approaches for engaging Latinos in biospecimen donation for cancer genomic research. A methods triangulation approach was applied to gain a deeper understanding from the community, that included key informant interviews with Latino community leaders (N=6), four focus groups (N=22) with members of the Latino community, and the use of an audience response system within the focus groups to capture quantitative data. Overall, the majority of participants had never participated in biospecimen donation; however, despite being unaware of the biobank, they expressed willingness to participate as a way to help advance research. Themes included: Confusion on what biospecimen donation process entails; Barriers to and incentives for participation; Strategies and locations for reaching the Latino community. Clear communication of the "public good" as it relates to biospecimen donation by healthy/nonpatient participants is a less clearly conceptualized message; yet, the significance of delivering this message is important to gaining participation and increasing the diversity of samples available for cancer genomic studies from a broader community context.

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“…These methods and how the PEN-3 model is applied to qualitative findings are fully described in another paper by one of our authors (Erwin et al 2010). Basically, the thematic responses are analyzed as to whether they are "Perceptions," "Enablers," or "Nurturers" according to how they impact the individual's behaviors.…”

Section: Discussionmentioning

confidence: 99%

Establishing a community partnership to optimize recruitment of African American pedigrees for a genetic epidemiology study

2011

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We developed a breast cancer genetic epidemiology study in collaboration with a community partnership to optimize recruitment and participation of African American women. We recognized that recruitment of relatives for a family-based study was a unique challenge in this minority group in the USA. Through an established partnership with The National Witness Project, we convened focus groups to identify potential recruitment challenges and issues related to decisions about study participation that may be unique to African Americans and family-based recruitment. Using the PEN-3 model, we analyzed qualitative data and applied the thematic findings to our recruitment protocol in order to mitigate potential recruitment challenges. The most relevant positive themes included a need for research and education and potential benefit to future generations. Negative themes included communication barriers in sharing disease status within a family and historical issues such as fatalistic attitudes and shamefulness of cancer. Collaboration with community partners allowed for development of culturally appropriate recruitment strategies for African American breast cancer survivors and their family members for a genetic epidemiology study. Understanding factors unique to family-based recruitment in the USA is a significant factor in enhancing participation of under-represented minorities in future genetic studies.

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Contextualizing diversity and culture within cancer control interventions for Latinas: Changing interventions, not cultures

Cited by 109 publications

References 15 publications

Cancer Screening Behaviors Among Latina Women: The Role of the Latino Male

Cancer Screening Behaviors Among Latina Women: The Role of the Latino Male

Awareness and interest in biospecimen donation for cancer research: views from gatekeepers and prospective participants in the Latino community

Establishing a community partnership to optimize recruitment of African American pedigrees for a genetic epidemiology study

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