Content identification of the interdisciplinary assessment of cerebral palsy using the International Classification of Functioning, Disability and Health as reference

Andrade, Peterson Marco O.; Ferreira, Fernanda Oliveira; Mendonça, Ana Paula; Haase, Vítor Geraldi

doi:10.3109/09638288.2012.662572

Cited by 13 publications

(6 citation statements)

References 29 publications

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“…Until now, research has been centred on how ICF-CY can be understood, used, and function [4][5][6][7][8][9]. Many studies have applied the functionality of ICF-CY to specific disorders, including cerebral palsy [10], muscular disorders [11,12], spina bifida [13], disability following brain tumours [14], chronic disorders [15], and disability following trauma [16]. Comparison of content with ICF-CY in other various instruments has been performed [17], and validation for core data sets for ICF-CY has begun [18,19] together with studies of ICF-CY functionality and code selection in specific clinical settings [20,21].…”

Section: Introductionmentioning

confidence: 99%

Creating a Disability Variable for Children with Disability Using the WHO ICF-CY Classification System

Illum¹,

Gradel

2015

BJAST

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Aims:To create a single disability variable in 332 children with different disability severities, ICD-10 diagnoses, and ages by employing the WHO ICF-CY body functions coding system. Methodology: We included 332 children (144 boys and 188 girls; age range 1.0-15.9 years) with spina bifida, spinal muscular atrophy, muscular disorders, cerebral palsy, visual impairment, hearing impairment, mental disability, and disabilities following treatment for a brain tumour. A set of 47 body function codes (b codes) representing a broad spectrum of functions in daily living and with five qualifiers each was scored during interviews with parents. Psychometric and Rasch data analyses were performed. Original Research ArticleResults: Mean code score for each child was 32.17 (range 0-159). The corrected code-total correlation was high (0.70). Inter-code correlation was mean 0.50 (range 0.01-0.97), and Cronbach´s alpha 0.98. Following Rasch analysis and due to disordering of Andrich thresholds (τs) and infit and outfit mean square values >1.5, the number of codes was reduced from 47 to 33. Retained codes all had ordered τs and mean square and corresponding Z-standardised values within the recommended range of 0.5-1.5. The t-statistic for differential item functioning across codes and diagnosis group, age, and gender was between 2.0 and 3.0. Graphical data for disability variable, the child-code map, paralleled clinical expectations across the total population of children. Conclusion: WHO ICF-CY b codes can provide a coherent measure of the severity of disability in children across various diagnoses, age, and gender and add important information to WHO ICD-10 diagnosis codes when employed in daily clinical practice.

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Section: Introductionmentioning

confidence: 99%

Creating a Disability Variable for Children with Disability Using the WHO ICF-CY Classification System

Illum¹,

Gradel

2015

BJAST

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“…Definition of relevance was based on frequency of category use; to our knowledge there are only four experiences of identification of relevant ICF categories in children, with thresholds varying between 30 and 40% (Montirosso et al, 2009a(Montirosso et al, , 2009bAndrade et al, 2012;Leonardi et al, 2012a); therefore, we decided to rely on a conservative 30% selection threshold (for EF, it comprised both facilitators and barriers). The decision to address the presence of problems enabled us to focus on areas requiring intervention, and is consistent with the way in which data are organized in the Dynamic Functional Profile and the Functional Diagnosis.…”

Section: Methodsmentioning

confidence: 99%

The development of a structured schedule for collecting ICF-CY-based information on disability in school and preschool children

Raggi¹,

Meucci²,

Leonardi³

et al. 2014

International Journal of Rehabilitation Research

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The aim of this study was to present the development of an instrument to collect disability information in school settings, based on the International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY): the ICF-PEI Schedule (ICF-CY-based schedule for Individualized Education Plan). Through an action-research process, a group of 14 teachers participated in the definition of a comprehensive list of ICF-CY categories, which were then used in a pilot test: categories relevant in at least 30% of the cases were retained. Teachers also reported the most relevant difficulties they had in using the ICF-CY questionnaires: these were discussed in plenary. On the basis of a pilot test and teachers' difficulties, a set of structured, easy to use and feasible questions for the school context were developed. A total of 118 ICF-CY categories were included in the preliminary list and 67 were retained. The most relevant difficulties in using ICF-CY questionnaires were as follows: obtaining reliable information on bodily impairments; using capacity in activities and participation; using qualifiers in 'borderline situations'; and identifying systems and policies as barriers or facilitators. The ICF-PEI Schedule is composed of 62 items, with a simplified rating scale. Teachers are asked to rate performance, which is directly observed, and to address which environmental factors impact it; thus, environmental factor rating is simplified. The ICF-PEI Schedule was drafted as a feasible instrument for school settings to collect and exploit functioning and disability data. Teachers can fruitfully employ it to assist in the definition of educational objectives and verify them longitudinally.

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“…13 For other centers, assessment strategies and domains evaluated consistently cover the International Classification of Functioning, Disability and Health spectrum of body structures and functions, activities and participation, and environmental factors, and these processes are a particular focus for occupational therapists and physical therapists. 14,15 One center developed a ''road-map'' or clinical structure to promote integration of the International Classification of Functioning, Disability and Health into practice. Although providers voiced concern regarding the additional workload and organizational requirements of using this framework, with time they no longer felt constrained by this application and indicated that use improved communication between team members and with families 16,17 Formal implementation of this International Classification of Functioning, Disability and Health-grounded framework is still a ''work in progress,'' although it is acknowledged that use optimizes collaborative goal setting and interdisciplinary communication, and a more global view of the child's rehabilitation needs to promote functioning and health in all relevant environments.…”

Section: International Classification Of Functioning Disability and mentioning

confidence: 99%

International Classification of Functioning, Disability and Health (ICF) as a Framework for Change

Vargus‐Adams

Majnemer

2014

J Child Neurol

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The International Classification of Functioning, Disability and Health (ICF) utilizes domains of body functions and structures, activities and participation, as well as environmental and personal factors to fully encapsulate the concepts of health and disability. The International Classification of Functioning, Disability and Health provides a rich and holistic understanding of functioning that is particularly valuable in the setting of childhood disability and rehabilitation. With applicability that enhances a nuanced understanding of each child within their family, school, and community, the International Classification of Functioning, Disability and Health also ensures facile and meaningful communication between professionals. Use of the International Classification of Functioning, Disability and Health promotes improved treatment plans for individual children and for larger programmatic decisions. This article demonstrates how the International Classification of Functioning, Disability and Health has reinvented the language and understanding of childhood disability and rehabilitation.

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Content identification of the interdisciplinary assessment of cerebral palsy using the International Classification of Functioning, Disability and Health as reference

Cited by 13 publications

References 29 publications

Creating a Disability Variable for Children with Disability Using the WHO ICF-CY Classification System

Creating a Disability Variable for Children with Disability Using the WHO ICF-CY Classification System

The development of a structured schedule for collecting ICF-CY-based information on disability in school and preschool children

International Classification of Functioning, Disability and Health (ICF) as a Framework for Change

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