Contending with Ableism from Internalized Ableism to Collective Action

Silverman, Arielle

doi:10.1002/9781119142140.ch6

Cited by 6 publications

(5 citation statements)

References 100 publications

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“…Current research supports the recognition of this potential outcome, describing how ableism and perceived discrimination among disabled people can lead to a reduction in healthcare-seeking behaviors or acceptance of limited treatment options presented by providers due to bias, thus contributing to greater health disparities and poorer health outcomes in this population ( 54 – 58 ). Additionally, this study's participants amplify previous studies' findings that subtle or overtly dehumanizing messages from healthcare professionals can contribute to internalized ableism (i.e., the shame, self-blame, and self-questioning) among people with disabilities ( 24 , 59 ).…”

Section: Discussionsupporting

confidence: 71%

Infusing disability equity within rehabilitation education and practice: A qualitative study of lived experiences of ableism, allyship, and healthcare partnership

Feldner¹,

Evans²,

Chamblin³

et al. 2022

Front. Rehabilit. Sci.

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BackgroundAddressing issues of diversity, equity, and inclusion (DEI) has become central in implementing inclusive and socially responsible rehabilitation education and clinical practice. Yet, the constructs of disability and d/Deaf identity and culture, as well as ableism and allyship are often overlooked. Or, these concepts are approached using outdated philosophical perspectives that pathologize disability and fail to prioritize the lived experiences, expertise, intersectionality, and self-identified needs of people with disabilities. A Critical Disability Studies (CDS) framework may provide a background for better understanding and responding to these issues through allyship.PurposeThis study employed a CDS framework to understand the lived experiences of ableism and allyship from faculty, staff, and students on University of Washington (UW) campuses who identify as d/Deaf, disabled/with a disability, or as having a chronic health condition.MethodsDuring 2020–2021, we conducted in-depth, semi-structured interviews and focus groups with 22 diverse undergraduate and graduate students, faculty, and staff with disabilities, one third who also identified as people of color. Encounters were audio-recorded, transcribed verbatim, and coded using constant comparison until themes emerged.ResultsFour major themes that emerged from the data are: (1) Ever-present ableism in healthcare, (2) Ableism at the intersections, (3) COVID: Surfacing ableism and expanding access, and (4) Disability allyship and healthcare partnership building. Experiences of ableism and allyship were identified at individual, group/unit, and institutional/systemic levels, though participants reported significantly fewer instances of allyship compared to experiences of ableism. Participants identified intersections between disability and other marginalized identities and juxtaposed the benefits of widespread adoption of many access-increasing practices and technologies due to the COVID-19 pandemic, while also highlighting ways in which the pandemic created new obstacles to inclusion.ConclusionsThis analysis provides insights into ways of implementing inclusive practices in rehabilitation education, practice, and beyond. Rehabilitation students, faculty, and staff may not be aware of how ableism affects their disabled peers or underpins their professional education. It is important to cultivate opportunities within professional education and clinical training to explicitly address our collective role in creating inclusive and accessible academic and healthcare experiences for our diverse community post COVID-19. Drawing on a CDS framework, the research team devised the mnemonic TRAC, which includes Training, Recognition and Representation, Attendance and Action, and Calling to account as strategic guidelines for operationalizing such opportunities.

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Section: Discussionsupporting

confidence: 71%

Infusing disability equity within rehabilitation education and practice: A qualitative study of lived experiences of ableism, allyship, and healthcare partnership

Feldner¹,

Evans²,

Chamblin³

et al. 2022

Front. Rehabilit. Sci.

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“…This persistent and constant exclusion, which occasionally alternates with violation of privacy and personal spaces caused by the curiosity of a passerby who reaches out to grab one’s assistive technology as reported by participants in Study 2, leads not only to loss of opportunities, but also disempowerment, resentment and feelings of helplessness. When these feelings lead people with disabilities to adopt aggressive behaviors or simply call out ableist episodes, as seen from some the comments of young people in Study 1, this reinforces negative stereotypes and further damages intergroup relationships [ 62 ]. In contrast, participants without disabilities who had frequent interactions with peers with disabilities displayed more positive attitudes and were more likely to consider people with disabilities as part of their own social circle.…”

Section: Discussionmentioning

confidence: 99%

“When They See a Wheelchair, They’ve Not Even Seen Me”—Factors Shaping the Experience of Disability Stigma and Discrimination in Kenya

Barbareschi

Carew

Johnson

et al. 2021

IJERPH

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Disability stigma in many low- and middle-income countries represents one of the most pervasive barriers preventing people with disabilities from accessing equal rights and opportunities, including the uptake of available assistive technology (AT). Previous studies have rarely examined how disability stigma may be shaped through factors endemic to social interactions, including how the use of assistive technology itself may precipitate or alleviate disability stigma. Through two strands of work, we address this gap. Via a series of focus groups with Kenyans without disabilities (Study 1) and secondary data analysis of consultations with Kenyans with disabilities and their allies (Study 2), we identify shared and divergent understandings of what shapes disability stigma and discrimination. Specifically, Kenyans with and without disabilities were cognizant of how religious/spiritual interpretations of disability, conceptions of impairments as “different” from the norm, and social stereotypes about (dis)ability shaped the experience of stigma and discrimination. Moreover, both groups highlighted assistive technology as an influential factor that served to identify or “mark” someone as having a disability. However, whereas participants without disabilities saw assistive technology purely as an enabler to overcome stigma, participants with disabilities also noted that, in some cases, use of assistive technologies would attract stigma from others.

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“…Because of this, confrontation is often not perceived as warranted, thus resulting in negative perceptions of confronters (Becker et al, 2011;Chasteen et al, 2021;Wang et al, 2015). However, it is important to decipher socially costeffective ways of confronting ambiguous bigotry, as experiencing this form of prejudice is associated with worsened health, achievement, self-esteem, and cognitive capabilities (Dardenne et al, 2007(Dardenne et al, , 2013Dumont et al, 2010;Silverman, 2019;Vale et al, 2019). Our results suggest that by confronting in a moderate tone and by not labeling the perpetrator a bigot, social costs can be reduced even for confronters of ambiguous bigotry; however, future research should explore other prejudice types and potential moderating variables that were not included here.…”

Section: Discussionmentioning

confidence: 99%

The secret lies in the approach: Confronting antigay and antilesbian prejudice while minimizing individual costs.

Gans,

Schiralli,

Cadieux

et al. 2024

Psychology of Sexual Orientation and Gender Diversity

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Contending with Ableism from Internalized Ableism to Collective Action

Cited by 6 publications

References 100 publications

Infusing disability equity within rehabilitation education and practice: A qualitative study of lived experiences of ableism, allyship, and healthcare partnership

Infusing disability equity within rehabilitation education and practice: A qualitative study of lived experiences of ableism, allyship, and healthcare partnership

“When They See a Wheelchair, They’ve Not Even Seen Me”—Factors Shaping the Experience of Disability Stigma and Discrimination in Kenya

The secret lies in the approach: Confronting antigay and antilesbian prejudice while minimizing individual costs.

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