Consumers and health providers working in partnership for the promotion of person-centred health services: a co-produced qualitative evidence synthesis

Merner, Bronwen; Hill, Sophie; Colombo, Cinzia; Xafis, Vicki; Gaulden, Carolyn M; Graham‐Wisener, Lisa; Lowe, Dianne; Walsh, Louisa; Biggar, Susan; Bourke, Noni; Chmielewski, Renee; Gill, Marie; Martin, Fiona; Martinek, Nathalie; McKinlay, Louise; Menzies, David; Mussared, Anne; Refahi, Nora; Smith, Lorraine; Sonawane, Roshni; Wardrope, Cheryl

doi:10.1002/14651858.cd013274

Cited by 11 publications

(8 citation statements)

References 19 publications

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“…• we assessed the availability and conducted content analysis of the patient education resources on hospital acquired pressure injury (HAPI) prevention on hospital websites in Victoria, Australia • greater proportion of hospitals do not have patient education materials on HAPI on their website • the available educational information on hospital websites accurately reflected messages included in the clinical practice guidelines, but was incomplete • to facilitate patient involvement in HAPI prevention, there is a need for evidence-based, consumer-endorsed, uniform materials on all hospital websites effective partnerships between practitioners and health care consumers is accepted as an effective means of improving patient-centred care. 37 The role of education tools is an important consideration in efforts to improve health literacy. Educating and involving patients in prevention and management of PIs has been identified as being important in clinical settings in Australia, 33,38,39 the United Kingdom, 40 the United States, 41,42 and other countries.…”

Section: Key Messagesmentioning

confidence: 99%

“…Patients' improved health literacy has been shown to improve self‐management, encourage adherence to treatment, promote wound healing, and prevent illness in certain target groups . Additionally, establishing effective partnerships between practitioners and health care consumers is accepted as an effective means of improving patient‐centred care . The role of education tools is an important consideration in efforts to improve health literacy.…”

Section: Introductionmentioning

confidence: 99%

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Patient education materials on pressure injury prevention in hospitals and health services in Victoria, Australia: Availability and content analysis

Team

Bouguettaya

Richards

et al. 2019

International Wound Journal

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Pressure injuries (PIs) are a common quality indicator for hospital care, and preventing PIs often requires patient engagement; as such, Australian consensus research has recommended that high‐quality education materials be made to patients for PIs via hospital networks. The purpose of the present study was to assess the availability and accuracy of patient education materials on PIs in publicly available hospital websites in Victoria, Australia. Two independent coders assessed 212 websites for content on PI prevention and management, analysing availability and accuracy of PI definitions, risk factors, preventive strategies, referral, visual tools, consumer endorsement, information for family/carers, and translation on community languages. A greater proportion of hospitals did not have any patient education materials on PI prevention publicly available, with private hospitals (compared with public) and metropolitan hospitals (compared to rural) more likely to have materials available on their sites. The available materials contained accurate messages on PI defining characteristics and risk factors for PIs, although there was considerable variability on the availability of other information. Our findings suggest a significant deficit in the availability of educational materials for acute care patients and their families. There is a need for evidence‐based, consumer‐endorsed, uniform materials on all hospital websites to prevent PIs in acute care.

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Section: Key Messagesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Patient education materials on pressure injury prevention in hospitals and health services in Victoria, Australia: Availability and content analysis

Team

Bouguettaya

Richards

et al. 2019

International Wound Journal

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“…58,59 Despite the clear policy focus on reducing inequalities and promoting health and well-being, lesbians requires a specific and sus- All patients want to be recognized as individuals receiving care that is person-centered and responsive to their particular situation and requirements. 61 Health practitioners need to identify and be aware of lesbians within mental health services and ensure their Arising from the findings of the current study, and the wider international research evidence, is an agenda that is reflective and responsive to the specific needs of lesbians. 64 There is a need to grow and develop the research evidence regarding the health concerns and responses required by this population.…”

Section: Discussionmentioning

confidence: 99%

“…All patients want to be recognized as individuals receiving care that is person‐centered and responsive to their particular situation and requirements 61 . Health practitioners need to identify and be aware of lesbians within mental health services and ensure their identity is positively regarded and affirmed to enable the full expression of their sexuality.…”

Section: Discussionmentioning

confidence: 99%

The views and experiences of lesbians regarding their mental health needs and concerns: Qualitative findings from a mixed‐methods study

McCann¹,

Brown²

2020

Perspect Psychiatr Care

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The aim of this paper is to report the specific views and experiences of lesbians and identify their distinct mental health issues and concerns. Design and methods: A mixed-methods design with surveys and individual interviews was utilized. The data were thematically analyzed. Findings: The key themes were (a) enabling service access, (b) person-centered support, (c) models of care, (d) community presence and participation, and (e) future aspirations for mental health services. Practice implications: The study results inform and develops the understanding of the issues that impact upon the mental health and well-being of lesbians. The implications for mental health practice are discussed. K E Y W O R D S education, human rights, lesbian, mental health, nursing, psychosocial needs, social inclusion 1 | INTRODUCTION A developing body of international research evidence exists regarding lesbian, gay, bisexual, and transgender (LGBT) populations. 1-3 However, health-specific research focusing on LGBTQ + populations is a neglected area. 4-6 LGBTQ + subgroups within many of the existing research studies are often perceived as homogenous and indistinct entities, rendering it difficult to identify individual needs and service requirements. Studies that focus specifically on the LGBTQ + sub-populations are required, thereby recognizing and identifying the unique and diverse experiences of particular groups, including lesbians 7,8 In the UK, current evidence suggests that 93.2 percent of people identified as heterosexual (Office for National Statistics 2017). In the United States (US), a Gallup poll concluded that 4.5% of adult Americans identified as LGBT with 5.1% of women identifying as LGBT, compared with 3.9% of men (Gallup 2017). Another survey estimated that 0.6% of US adults identify as transgender. 9 While this evidence is useful regarding LGBT + populations as a whole, there is a lack of demographic figures regarding lesbians, as a distinct group. Lesbian is the term most widely used to describe sexual and romantic attraction between females. A clear definition is necessary to conceptualize the health implications for lesbians. However, there is no internationally recognized definition of lesbian. The term can be used to denote women who have sex with women; women who selfidentify as lesbian; and women whose sexual preference or desire is towards women. Some research studies have included women who self-identify as bisexual when defining lesbians. 10 Lesbians experience significant challenges regarding their physical and psychological well-being. A systematic review addressing comparisons between heterosexuals and lesbian and bisexual women identified disparities in physical health conditions including obesity, arthritis and cardiovascular disease. Further research is required to identify the factors contributing to these health disparities. 11 Another systematic review highlighted significant issues related eating disorders in lesbians including binge eating, purging, and low body satisfaction, compared with hete...

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“…At project completion, the five Cochrane Review titles that were selected as priority topics directly reflected the top priority areas as identified and voted on by stakeholders. One of the priority titles [13], an existing Cochrane Review needing updating, later became two protocols for new reviews as a result of a new coproduction process with stakeholders [18,21]. In response to stakeholders' desire to be involved in the priority Cochrane Reviews and to reflect the degree to which consumer engagement in health was a priority topic, CCCG required the priority review author teams to involve stakeholders.…”

Section: Shifted Priorities And/or Reallocation Of Resourcesmentioning

confidence: 99%

Evaluation of the Cochrane Consumers and Communication Group’s systematic review priority-setting project

Synnot

Tong

Ryan

et al. 2020

Health Res Policy Sys

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Background: Health researchers and funders are increasingly consulting with stakeholders to set their research agendas but these activities are rarely evaluated. The Cochrane Consumers and Communication Group (CCCG) conducted a priority-setting project for systematic reviews in partnership with stakeholders (consumers/patients, health professionals, policy-makers and others). In this paper, we aim to describe our evaluation of the project's processes and outcomes. Methods: We used a 10-element conceptual framework designed to evaluate processes (e.g. stakeholder engagement, use of explicit process) and outcomes (e.g. improved decision-making quality, stakeholder acceptance and understanding) of health priority-setting. Data sources included empirical data (feedback surveys, project documents and CCCG editorial policies) and CCCG staff reflections. Data were analysed using content analysis. Results: The project met three and partially met two of the process elements, for example, by engaging key stakeholders throughout the project and using predetermined and transparent methods that offered multiple and meaningful ways to contribute. The project met three and partially met two of the outcome elements. Stakeholders were satisfied with and accepted the process and an additional six Cochrane Review titles aligned with stakeholder priorities are now being conducted in partnership with stakeholders. The project has also directly influenced the editorial work of CCCG, for example, by shifting its organisational focus towards coproduction, and indirectly influenced the work of Cochrane's prioritisation and coproduction activities. Some areas were identified as having room for improvement, for example, there was low participation by people from diverse backgrounds, stakeholders could contribute to most but not all project stages, and there was no formal way for stakeholders to appeal decisions at project end. In the 3 years since its completion, the Cochrane Reviews are nearing completion but none of the reviews have been published. Conclusion: We demonstrated that our priority-setting methods were broadly in line with best practice and the project resulted in many positive outcomes beyond just identifying the top priorities for research. Our evaluation framework and recommendations for future evaluations may be of use to priority-setting researchers planning similar activities.

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Consumers and health providers working in partnership for the promotion of person-centred health services: a co-produced qualitative evidence synthesis

Cited by 11 publications

References 19 publications

Patient education materials on pressure injury prevention in hospitals and health services in Victoria, Australia: Availability and content analysis

Patient education materials on pressure injury prevention in hospitals and health services in Victoria, Australia: Availability and content analysis

The views and experiences of lesbians regarding their mental health needs and concerns: Qualitative findings from a mixed‐methods study

Evaluation of the Cochrane Consumers and Communication Group’s systematic review priority-setting project

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