Consumer Response to Patient Experience Measures in Complex Information Environments

Schlesinger, Mark; Kanouse, David E.; Rybowski, Lise; Martino, Steven C.; Shaller, Dale

doi:10.1097/mlr.0b013e31826c84e1

Cited by 20 publications

(25 citation statements)

References 15 publications

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“…Further, our completion rate is typical of internet surveys that target samples representing the population on key demographic criteria. 26,41,42,43 Although individuals who earn less and have less formal education were under-represented, bivariate analyses demonstrated that the attitudes and beliefs examined did not differ significantly along these characteristics (data not shown). Further, our findings on the predictors of reduced obligations to participate in WG/ES-based NBS were based on a smaller sub-sample of 472 and should be interpreted cautiously.…”

Section: Discussionmentioning

confidence: 95%

Public views on participating in newborn screening using genome sequencing

et al. 2014

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Growing discussion on the use of whole-genome or exome sequencing (WG/ES) in newborn screening (NBS) has raised concerns regarding the generation of incidental information on millions of infants annually. It is unknown whether integrating WG/ES would alter public expectations regarding participation in universal NBS. We assessed public willingness to participate in NBS using WG/ES compared with current NBS. Our secondary objective was to assess the public's beliefs regarding a parental responsibility to participate in WG/ES-based NBS compared with current NBS. We examined self-reported attitudes regarding willingness to participate in NBS using a cross-sectional national survey of Canadian residents recruited through an internet panel, reflective of the Canadian population by age, gender and region. Our results showed that fewer respondents would be willing to participate in NBS using WG/ES compared with NBS using current technologies (80 vs 94%, Po0.001), or perceived a parental responsibility to participate in WG/ES-based NBS vs current NBS (30 vs 48%, Po0.001). Our findings suggest that integrating WG/ES into NBS might reduce participation, and challenge the moral authority that NBS programmes rely upon to ensure population benefits. These findings point to the need for caution in the untargeted use of WG/ES in public health contexts.

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Section: Discussionmentioning

confidence: 95%

Public views on participating in newborn screening using genome sequencing

et al. 2014

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“…Finally, although there is ongoing debate about the relationship between PE measures and care quality, 37 -40 there is widespread agreement that PE is an important outcome in its own right, and these scores may be of greater interest to consumers. 13 Although women did not explicitly state that the absence of PE data was a concern, by guest on May 9, 2018 http://pediatrics.aappublications.org/ Downloaded from years, HEDIS and similar measures have been made publicly available, providing consumers with direct access to performance data on quality at the health plan, medical group, and practice level. Although these data are imperfect, in most cases they are the only information (other than anecdotal information or Yelp-type ratings) available to consumers.…”

Section: Discussionmentioning

confidence: 99%

Patient Navigators and Parent Use of Quality Data: A Randomized Trial

Goff

Mazor²,

Pekow

et al. 2016

Pediatrics

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“…Even when consumers are motivated to learn, the complexity of medical decision making may seem overwhelming for many of them. This is particularly true as public reports incorporate more measures of quality, cost, or other attributes of provider practices (Schlesinger, Kanouse, Rybowski, Martino, & Shaller, 2012). Under these circumstances, consumers will often focus on a smaller subset that seems most relevant to their choices and well-being.…”

Section: Factors Shaping Consumer Engagementmentioning

confidence: 99%

“…And since many will have no particular reason to think that quality varies substantially among providers, they may have little motivation to pay attention to quality metrics. They will likely view existing measures with less interest, understanding, or trust than will more "experienced consumers" (Schlesinger et al, 2012). Effective engagement will depend on strategies to make a case for the relevance of quality information and to offset or overcome that distrust.…”

mentioning

confidence: 99%

Context-based Strategies for Engaging Consumers with Public Reports about Health Care Providers

Shaller¹,

Kanouse

Schlesinger

2013

Med Care Res Rev

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Efforts to engage consumers in the use of public reports on health care provider performance have met with limited success. Fostering greater engagement will require new approaches that provide consumers with relevant content at the time and in the context they need to make a decision of consequence. To this end, we identify three key factors influencing consumer engagement and show how they manifest in different ways and combinations for four particular choice contexts that appear to offer realistic opportunities for engagement. We analyze how these engagement factors play out differently in each choice context and suggest specific strategies that sponsors of public reports can use in each context. Cross-cutting lessons for report sponsors and policy makers include new media strategies such as a commitment to adaptive web-based reporting, new metrics with richer emotional content, and the use of navigators or advocates to assist consumers with interpreting reports.

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Consumer Response to Patient Experience Measures in Complex Information Environments

Cited by 20 publications

References 15 publications

Public views on participating in newborn screening using genome sequencing

Public views on participating in newborn screening using genome sequencing

Patient Navigators and Parent Use of Quality Data: A Randomized Trial

Context-based Strategies for Engaging Consumers with Public Reports about Health Care Providers

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