Consumer Participation in Rehabilitation: An Unresolved Issue

Crisp, Ross

doi:10.1080/03124078908549982

Cited by 4 publications

(7 citation statements)

References 4 publications

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“…The level of participation for the person with a disability and the passivity of family members may vary significantly in other settings, such as acquired brain injury, where cognitive functioning is impaired. Crisp (1989) suggests that just as the term ‘case conference’ reflects the language of an outdated model of rehabilitation, perhaps the term ‘ family conference’ is also an anachronism in this setting and should be more appropriately named to more readily reflect its true aims and functions. Alternative terms such as ‘rehabilitation planning conferences’ could be considered.…”

Section: Findings and Discussionmentioning

confidence: 99%

“…The literature supports the enablement of a person with disabilities to co‐manage his or her own rehabilitation program, recognising that both the professional and the person with a disability contribute positively to the interaction (Crisp 1989). In addition, the person with a disability is considered an important team member with early and continuing involvement in the rehabilitation process desirable (Crisp 1989). Family involvement in this process supports the decisions made in a participatory process (Caplan & Reidy 1996).…”

Section: Literaturementioning

confidence: 99%

“…The concept of ‘unequal egalitarianism’ highlights the contradictions of values where professionals support the client's rights for self direction yet qualify their responses according to practical considerations, which ensures that unrestricted self direction does not occur (Wetherell et al . 1987; Crisp 1989). ‘If a client is excluded as an equal participant in his/her rehabilitation program he/she becomes, by exclusion, objectified, categorised and stigmatized as the subservient member of an unequal relationship’ (Crisp 1989; p. 40).…”

Section: Literaturementioning

confidence: 99%

“…1987; Crisp 1989). ‘If a client is excluded as an equal participant in his/her rehabilitation program he/she becomes, by exclusion, objectified, categorised and stigmatized as the subservient member of an unequal relationship’ (Crisp 1989; p. 40). If professional and client views diverge, a client can be viewed as non‐compliant, difficult, unrealistic or poorly motivated; therefore, an understanding of an individual's perspective and need for self determination is necessary (Carpenter 1994).…”

Section: Literaturementioning

confidence: 99%

“…Theories of power, such as connection power, legitimate and expert power, have particular reference to addressing ‘unequal egalitarianism’ (Toseland & Rivas 1984; Wetherell et al . 1987; Crisp 1989).…”

Section: Literaturementioning

confidence: 99%

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Insights from the family conference: Observations in rehabilitation

Fronek

2005

Aust Social Work

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Family conferences are regularly conducted in a number of settings. However, the published literature offers limited insight into the conference environment as created by the interdisciplinary team. The level of client participation in this process remains unclear. A participatory observation study was conducted with an accidental sample in a spinal injuries rehabilitation setting. Language and behaviours exhibited by family conference members provided data for analysis. The findings indicate that individuals with a disability were participatory members in the family conference and were able to express their point of view even if it differed from the view of the professional team. However, the finding that family members were less engaged in the process suggests that they have different needs to the person with a disability and these needs might have to be met in a different way. It is important that professionals develop an awareness of their own language and behaviours and the potential impact of these factors on the individual and the family in family conference processes.

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Section: Findings and Discussionmentioning

confidence: 99%

Section: Literaturementioning

confidence: 99%

Section: Literaturementioning

confidence: 99%

Section: Literaturementioning

confidence: 99%

Section: Literaturementioning

confidence: 99%

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Insights from the family conference: Observations in rehabilitation

Fronek

2005

Aust Social Work

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Care Planning Meetings: Issues for Policy, Multi-disciplinary Practice and Patient Participation

Donnelly¹,

Cahill

O’Neill

2017

Practice

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Although Care-Planning Meetings (CPMs) are an increasingly common part of the practice of social work with older people and multidisciplinary teamwork(MDT), it is uncertain how and by whom the voice and wishes of older people, including those with a cognitive impairment, are given due priority. In addition, there is little professional guidance as to how to best plan and facilitate CPMs for older patients with cognitive and communication deficits and other often complex needs. An added challenge is the wide, often diverse, and conflicting range of perspectives held by health and social care professionals and other family members who may be involved. This scoping review article on CPMs for older people, considers the facilitators and barriers to effective participation as identified in the literature and proposes suggestions for best practices in CPMs which could help promote an individualised approach to participation that best reflects the older patient's wishes.

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Effects of family group conferences among high-risk patients of chronic disability and their significant others: study protocol for a multicentre controlled trial

et al. 2018

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IntroductionMany patients and family members experience a large gap between the protected environment during inpatient medical rehabilitation and life in the community after discharge. They feel insufficiently prepared to cope with the consequences of their disability in daily life. This study protocol describes the design measuring the effectiveness and implementation of family group conferences on the empowerment of patients with a high risk of chronic disability and their significant others.Methods and analysisA multicentre controlled trial will be carried out in 12 rehabilitation centres in the Netherlands. A total of 328 clinically admitted patients will participate (≥18 years, diagnosed with acquired brain injury, spinal cord injury or leg amputation), and their significant others will be included. During three family group conferences, supported by the social worker, the patient, significant other and their social network will be stimulated in collaboration, to set up participation goals, determine the needed help and make a concrete action plan. Self-reported questionnaires will be collected at baseline, clinical discharge, and 3 months and 6 months following clinical discharge. Empowerment as the primary outcome is operationalised as self-efficacy and participation. Secondary outcome measures are psychological (eg, coping, neuroticism) and environmental (eg, family functioning, social support) factors. This is the first controlled trial evaluating the effectiveness of family group conferences in rehabilitation medicine among adult patients and their significant others, providing us with knowledge in improving rehabilitation care.Ethics and disseminationThis study has been approved by the Medical Ethics Committee of the University Medical Center Utrecht (number 15–617/C). The results will be published in peer-reviewed journals and presented in local, national and international conferences.Trial registration numberNTR5742; Pre-results.

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Consumer Participation in Rehabilitation: An Unresolved Issue

Cited by 4 publications

References 4 publications

Insights from the family conference: Observations in rehabilitation

Insights from the family conference: Observations in rehabilitation

Care Planning Meetings: Issues for Policy, Multi-disciplinary Practice and Patient Participation

Effects of family group conferences among high-risk patients of chronic disability and their significant others: study protocol for a multicentre controlled trial

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