Constructions of dementia in the South Asian community: a systematic literature review

Uppal, Gobinderjit; Bonas, Sheila

doi:10.1080/13674676.2013.764515

Cited by 18 publications

(27 citation statements)

References 25 publications

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“…8 A literature review made a similar conclusion that assessment and access to dementia care for South Asian minorities (Indian, Pakistani, and Bangladeshi) with memory impairment could be improved by having culturally tailored services and employing staff with similar cultural backgrounds. 9 The objective of this current study was to explore with a group of Asian health care professionals (HCPs) about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia. The findings of this study could be used as a first step to understand the presentation of dementia in older Asian New Zealanders and to develop strategies and culturally appropriate services to meet their needs.…”

Section: Newmentioning

confidence: 99%

“…A study with older Chinese‐Canadians highlighted the importance of accessing information about dementia symptoms and psychosocial resources in their own language and community . A literature review made a similar conclusion that assessment and access to dementia care for South Asian minorities (Indian, Pakistani, and Bangladeshi) with memory impairment could be improved by having culturally tailored services and employing staff with similar cultural backgrounds . The objective of this current study was to explore with a group of Asian health care professionals (HCPs) about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia.…”

Section: Introductionmentioning

confidence: 99%

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Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

Cheung

Appleton

Boyd

et al. 2019

Int J Geriat Psychiatry

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Objective The number of Asian New Zealanders with dementia is growing. The objective of this study was to explore with a group of Asian health care professionals about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia. Methods A focus group was conducted with a group of bilingual Asian health care professionals. A topic guide was developed based on the discussion at a prior meeting with the Cross Cultural Interest Group. The data were independently analysed by three researchers using the thematic qualitative methodology. Results Eleven overseas‐born Asian health care professionals (Chinese: n = 9, 82%) participated in the focus group. Four main themes emerged from the data: (a) cultural interpretations of dementia; (b) stigma; (c) filial piety; and (d) inequity in the availability of resources. Conclusion Our findings suggest that much work is needed to destigmatise dementia in New Zealand Asian communities, through psychoeducation, public awareness, and the availability of readily accessible services that can meet their cultural and language needs.

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Section: Newmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

Cheung

Appleton

Boyd

et al. 2019

Int J Geriat Psychiatry

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“…What is evident in this work, as well as other studies in this review (see Uppal et al 2013), is that further work is required to raise the awareness of dementia within BME communities. The consequences of a lack of knowledge and awareness by individuals living with dementia and their carers has an impact on the lived experience of dementia and ability to access services and available treatment or therapy.…”

Section: Dementia Was Viewed As Amentioning

confidence: 82%

“…Similarly, the participants in Uppal et al's (2013) study, participants who were of the Sikh community also had little awareness of dementia. This study recruited Sikh adults from the East Midlands community, who were neither carers or living with individuals with a diagnosis of dementia.…”

Section: Lack Of Awareness About Dementiamentioning

confidence: 99%

“…It is unclear whether it was an assumption that the participants living with dementia would be of the same opinions or views as their carers or family members or whether they did not have the ability to contribute to the study. This is of significance, as my study aimed to gain the views of individuals living with dementia and an understanding of whether the individuals shared the same views or beliefs as their carers would be a key finding in my work.Similarly, the participants in Uppal et al's (2013) study, participants who were of the Sikh community also had little awareness of dementia. This study recruited Sikh adults from the East Midlands community, who were neither carers or living with individuals with a diagnosis of dementia.…”

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confidence: 99%

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[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

Mawaka

2017

Alzheimer's & Dementia

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In the United Kingdom(UK), Black and Minority Ethnic(BME) groups are more at risk of developing Vascular Dementia and experience a higher rate of younger-onset dementia (≤ 65 years), compared with the majority ethnic White British population. Despite this, BME people living with dementia in the UK, are under-represented in health services. They receive a diagnosis later in their disease progression and are less likely to access dementia services.There is a growing body of work in the UK exploring dementia experiences within Asian communities. However, there is limited research, considering the experiences of individuals Interpretive phenomenology based on the work of Heidegger (1927) was used to explore the experiences of six participants. Data was collected through a series of three semi-structured interviews with each participant, audio recorded and transcribed verbatim. Thematic data analysis was conducted, using a framework by Braun and Clarke (2006). A phenomenological interpretation identified three overarching themes: Life before Dementia, Journey to Diagnosis and Living with Dementia. The role of God and Religion was significant throughout the different stages of life and influenced the decision-making process to access health services.In totality, the themes represent the lived experience of living with dementia for the individuals of Black ethnicity who participated in this study. Through exploring the lived experience of dementia, this study provides some insight into the barriers to dementia service uptake in this population and their understandings of dementia.iii AcknowledgementsThere are many people who have encouraged me during this journey. I would like to thank the participants and their families, who gave up their time to talk to me, and without whom this ......................................................................................................... 15 2.2 Reviewing the literature ....................................................................................... 15 2.2.1 Literature search strategy .......................................................................... 15 2.2.2 Databases searched .................................................................................. 15 2.2.3 Key search terms employed ...................................................................... 16 2.2.4 Selection criteria ......................................................................................... 16 2.2.5 Inclusion and exclusion search criteria ...................................................... 16 2.2.6 Manual search ............................................................................................ 17 2.3 Identifying relevant papers/studies ...................................................................... 17 2.4 Reviewing literature within the qualitative research Gaps in the literature and rationale for study ...................................................... 31 2.7 Summary of chapter .......................................

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Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned

Cheng

Losada

et al. 2019

Curr Psychiatry Rep

185

142

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With the rising dementia population, more and more programs have been developed to help caregivers deal with the care-recipient as well as their own frustrations. Many interventions aim to enhance caregiver’s ability to manage behavior problems and other deteriorations in functioning, with less direct emphasis placed on caring for the caregivers. We argue that techniques based on psychotherapy are strategically important in assistance provided to caregivers because of their utility for promoting emotional health. This article provides a focused review of such methods used in evidence-based intervention programs, along with the mechanisms of change associated with these methods. While cognitive-behavioral therapy (CBT) has a strong evidence base, there is also a growing trend to package CBT techniques into various psychoeducational programs. These programs, which we call psychoeducation with psychotherapeutic programs, have been consistently found to be effective in reducing caregiver distress and are suited for delivery in group format, even by paraprofessionals, to lower the cost of intervention. A recent trend is the effective use of technological aids (e.g., the internet) to deliver CBT and psychoeducation, reaching more caregivers. As for therapeutic mechanisms, the use of coping skills, reduced dysfunctional thoughts, and increased self-efficacy in controlling upsetting thoughts has received support in studies. We conclude that psychotherapeutic techniques are increasingly being used effectively and efficiently to assist caregivers, aided by successful adaptation for educational or technologically advanced means of delivery. More research on therapeutic mechanisms is needed to understand how the techniques work and how they can be further refined.

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Constructions of dementia in the South Asian community: a systematic literature review

Cited by 18 publications

References 25 publications

Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals

[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

Psychological Interventions for Dementia Caregivers: What We Have Achieved, What We Have Learned

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