Construction et validation d'une échelle d'attentes en matière de consultation auprès d'aidant(e)s de personnes âgées

Abstract

The purpose of this study was to establish the reliability and construct validity of the Consultation Expectations Scale for caregivers of elderly persons on the basis of Gerald Caplan's mental health consultation model. The reliability was determined by the Cronbach alpha coefficient ranging from .89 to .95 and the item-total correlation varying between .63 and .75. The content validity was demonstrated by an intra-class coefficient of .92 on all items evaluated by the judges. The internal consistency was determined by the correlations between the global scale and the subscales ranging from .67 to .91. The convergent validity relied on the positive and moderate correlations between the consultation expectations on the one hand and the need for support and psychological distress on the other. This scale demonstrated good psychometric qualities. Its utilisation should permit the consultants to keep the caregivers' point of view in mind, which will enable them to become more effective in their work.

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…CG  2012/ France [50]Amieva et al645 informal CGs; 61.1% spouseSelf-administeredCG’s needs28-item questionnaire. Four main needs: learning skills to improve daily life management of their relatives (7 items); information on the disease (7 items); improving CGs’ self-confidence (7 items); improving communication (7 items).No (elderly)Yes - Echelle d’attentes en matière de consultations (EAC)Psychometric properties tested in CGs of depressed elderly people (Cronbach’s alpha 0.89 to 0.95, intra-class coefficient 0.92) [51]. CG Frontotemporal Dementia (FTD) 2011/ Canada [52]Chow et al79 informal CGs; 57% female; median age = 58 yearsWeb-based surveyCG’s needs9 questions with multiple choice responses.Areas: diagnosis, symptoms, the troublesome aspects of caregiving, resources/interventions, process of learning about FTD.yesNo, questionnaire developed for the studyCG  2013/ Germany [53]Diehl-Schmid et al94 informal CGs; 72% female; 80% spouse; mean age = 89.11 yearsSelf-administeredSupport and service and intervention needsList of 45 support services and interventions relating to the following domains: information, psychosocial support for relatives, care outside of home, support at home, financial support, safety issues, therapies for the patients, and raising awareness.…”

“…Four main needs: learning skills to improve daily life management of their relatives (7 items); information on the disease (7 items); improving CGs’ self-confidence (7 items); improving communication (7 items). No (elderly) Yes - Echelle d’attentes en matière de consultations (EAC) Psychometric properties tested in CGs of depressed elderly people (Cronbach’s alpha 0.89 to 0.95, intra-class coefficient 0.92) [ 51 ]. CG Frontotemporal Dementia (FTD) 2011/ Canada [ 52 ] Chow et al 79 informal CGs; 57% female; median age = 58 years Web-based survey CG’s needs 9 questions with multiple choice responses.Areas: diagnosis, symptoms, the troublesome aspects of caregiving, resources/interventions, process of learning about FTD.…”

Care partner needs of people with neurodegenerative disorders: What are the needs, and how well do the current assessment tools capture these needs? A systematic meta‐review

“… Note : Carers Assessment of Difficulties Index (CADI) 22 , Care Needs Assessment Pack for Dementia (CARENAPD) 23 , Carers' Needs Assessment for Dementia (CNA‐D) 24 , Caregivers' Needs Checklist for Dementia (CNCD) 25 , Echelle d'attentes de consultation (EAC) 26 , Johns Hopkins Dementia Care Needs Assessment (JHDCNA) 27 , NA – Not able to Access, Needs Assessment Survey (NAS) 28 , Partnering for Better Health–Living with Chronic Illness: Dementia (PBH‐LCI:D) 29 , Questionnaire of Carers Needs Evaluation (QCNE) 30 , Questionnaire National dementia Programme survey needs and problems of informal caregivers of persons with dementia (QNP) 31 , Risk Appraisal Measure (RAM) 32 , Scales measuring the Impact of DEmentia on CARers (SIDECAR) 33 , Tayside Profile for Dementia Planning (Tayside) 34 , and Unmet Need Measure (UNM) 35 …”

“…• Carers Assessment of Difficulties Index (CADI) 22 • Care Needs Assessment Pack for Dementia (CARENAPD) 23 • Carers' Needs Assessment for Dementia (CNA-D) 24 • Caregivers' Needs Checklist for Dementia (CNCD) 25 • Echelle d'attentes de consultation (EAC) 26 • Johns Hopkins Dementia Care Needs Assessment (JHDCNA) 27 • Needs Assessment Survey (NAS) 28 • Partnering for Better Health-Living with Chronic Illness: Dementia (PBH-LCI:D) 29 • Questionnaire of Carers Needs Evaluation (QCNE) 30 • Questionnaire National dementia Programme survey needs and problems of informal caregivers of persons with dementia (QNP) 31 • Risk Appraisal Measure (RAM) 32 • Scales measuring the Impact of DEmentia on CARers (SIDECAR) 33 • Tayside Profile for Dementia Planning (Tayside) 34 • Unmet Need Measure (UNM) 35 Each assessment tool was scored one point for each need that was 'fully included' in the tool, half a point if a need was 'somewhat included', and zero for the 'not included' need. Each tool received a score estimated by summing the needs included score and dividing the total by the number of applicable fields, and multiplying by 100.…”