Constipation in autistic people and people with learning disabilities

Maslen, Christina; Hodge, Rebecca; Tie, Kim; Laugharne, Richard; Lamb, Kirsten; Shankar, Rohit

doi:10.3399/bjgp22x720077

Cited by 16 publications

(21 citation statements)

References 22 publications

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“…19 In particular, those over 40 years of age are more vulnerable to proportionate increases in polypharmacy and multimorbidity while inversely effected by level of service and care, compared with their younger peers 20 Third, concerns about long-term side-effects relating to issues such as bone and bowel health need considering. 21,22 Who should 'own' the problem?…”

Section: Prescribing Asms For the Management Of Challenging Behaviour...mentioning

confidence: 99%

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Antiseizure medications prescribing for behavioural and psychiatric concerns in adults with an intellectual disability living in England

2023

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Summary Antiseizure medications (ASMs) are the second most widely prescribed psychotropic for people with intellectual disabilities in England. Multiple psychotropic prescribing is prevalent in almost half of people with intellectual disabilities on ASMs. This analysis identifies limited evidence of ASM benefit in challenging behaviour management and suggests improvements needed to inform clinical practice.

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Section: Prescribing Asms For the Management Of Challenging Behaviour...mentioning

confidence: 99%

“…Third, concerns about long-term side-effects relating to issues such as bone and bowel health need considering. 21,22…”

Section: Why Is Addressing Asm Prescribing In Pwid Important?mentioning

confidence: 99%

Antiseizure medications prescribing for behavioural and psychiatric concerns in adults with an intellectual disability living in England

2023

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“…Constipation is a symptom based heterogenous condition which is overrepresented in people with intellectual disabilities and/or autism (National Institute of Clinical Excellence (NICE), 2017b; Maslen et al, 2022). Population estimates report a third to half of people with intellectual disabilities experience constipation (Kinnear et al, 2018; Robertson et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

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confidence: 99%

“…reported with people with autism (Maslen et al, 2022). Constipation in people with intellectual disabilities and/or autism may be caused by a range of pathological processes such as neurological and genetic conditions (Maslen et al, 2022). There has been recognition of constipation often not recognised as a reason for distress behaviours associated with people with intellectual disabilities and/or autism (diagnostic overshadowing) (Marsh & Sweeney, 2008).…”

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Survey of parents of children with intellectual disabilities and/or autism who experience chronic constipation

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et al. 2023

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Background Constipation is common in children with intellectual disabilities and/or autism, but poorly researched. This study looks to understand parental knowledge, attitudes and management practices towards constipation in children with intellectual disabilities and/or autism. Methods A cross‐sectional online survey developed with patient facing organisations was circulated to parents of children with intellectual disabilities and/or autism using an exponential and non‐discriminatory snowballing method for recruitment. A smaller sample were purposively sampled for their in‐depth experiences. Results Of 68 responses, people were open to discussing constipation and knowledgeable about risk factors. In the qualitative interviews, of 15 parents, they wanted to be treated as an expert in their child's care. They desired a service that was more responsive when in difficulty. While wanting more information about medication options, parents want a more holistic approach. Conclusions Services need more emphasis on holistic management. Listening to parents and treating them as experts is important.

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